The personal experience of living with chronic heart failure: a qualitative meta‐synthesis of the literature

Abstract

Nurses must have a personal knowledge of the experiences and needs of the patients. To do this, nurses should create care environments that promote an exchange of experiences and knowledge between the nurse and the patient and family.

The Status of Specialized Ambulatory Heart Failure Care in Canada: A Joint Canadian Heart Failure Society and Canadian Cardiovascular Society Heart Failure Guidelines Survey

“…This can contribute to fragmented care, difficulty navigating care providers, and poor patient/ caregiver experiences. 18 Patient-centred and seamless care requires integration of services and collaboration between care providers, as defined by the shared-care model. 18,19 A substantial proportion of patients, attending the HFCs represented in this survey, do not have a PCP.…”

Self‐management of congestive heart failure among elderly men in Japan

“…Falk and colleagues have suggested that patients with heart failure depend on others because of functional deterioration from various symptoms, express appreciation for being supported, and encourage and promote self‐care. Conversely, if patients feel that support from surroundings is a burden, this may lead to a decrease in self‐esteem (Olano‐Lizarraga, Oroviogoicoechea, Errasti‐Ibarrondo, & Saracibar‐Razquin, ). Basically, participants in this study autonomously lived with heart failure.…”

Communication about the Heart Failure Trajectory in Patients, their Families and Health Care Professionals

“…Heart failure has a major influence on patient's emotional, physical, spiritual and social dimensions. This day-to-day uncertainty of living with HF influences the well-being of the patient and the family (18). Heart failure has been described as more malignant than many of the most common types of cancer, such as prostate-, breast-, bladder-, and colorectal cancer (19).…”

“…Each patient has a personal experience of their illness, which might or might not be similar to other patients' experiences. Therefore, it is important that health care professionals who meet these patients try to understand what impact HF has on each individual patient and that they adapt the care and communication to each individual (18).…”