The Polycystic Ovary Syndrome Quality of Life scale (PCOSQOL): Development and preliminary validation

Williams, Sophie; Sheffield, David; Knibb, Rebecca

doi:10.1177/2055102918788195

Cited by 27 publications

(39 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…However, we did not observe statistically significant improvement in physical or mental QoL in women with PCOS over time. We used a general QoL questionnaire (SF-36) in the current study rather than a validated PCOS questionnaire (PCOSQoL) [24], which may have led to different results than the former study [23]. The results of lower physical QoL scores in women with PCOS suggest that this might be a pivot to focus on the physical health of women with PCOS.…”

Section: Discussionmentioning

confidence: 96%

Effectiveness of a 6-Month Lifestyle Intervention on Diet, Physical Activity, Quality of Life, and Markers of Cardiometabolic Health in Women with PCOS and Obesity and Non-PCOS Obese Controls: One Size Fits All?

et al. 2021

View full text Add to dashboard Cite

Little is known about the difference in effectiveness of lifestyle intervention between women with PCOS and non-PCOS women. In a post hoc longitudinal analysis of a randomized, controlled trial, we aimed to investigate whether infertile women with PCOS and obesity (N = 87) responded differently to a 6-month lifestyle intervention program than infertile non-PCOS obese controls (N = 172). We evaluated several aspects of the intervention such as changes in diet, physical activity, and dropout rate, as well as the effect on weight, quality of life (QoL), and cardiometabolic outcomes. Multilevel analyses were used, and analyses were adjusted for baseline characteristics such as age, education, and smoking. Although BMI in both groups significantly decreased at 3 months and 6 months, there were no significant differences between the groups at 3 months (adjusted B: −0.3, 95% CI: −0.9 to 0.3, p = 0.35) and 6 months (adjusted B: 0.5, 95% CI: −0.4 to 1.4, p = 0.29). Women with PCOS and non-PCOS women had similar compliance with the lifestyle intervention in terms of actual change in diet and physical activity. Mental QoL scores were not different at either 3 or 6 months. Physical QoL scores were lower in women with PCOS compared with non-PCOS women at 3 months (adjusted B: −2.4, 95% CI: −4.8 to −0.06, p = 0.045) but not at 6 months. Cardiometabolic parameters did not differ between the groups. Our results showed that infertile women with PCOS and obesity and non-PCOS obese controls responded largely similarly to our lifestyle intervention and achieved the same level of improvement in markers of cardiometabolic health.

show abstract

Section: Discussionmentioning

confidence: 96%

Effectiveness of a 6-Month Lifestyle Intervention on Diet, Physical Activity, Quality of Life, and Markers of Cardiometabolic Health in Women with PCOS and Obesity and Non-PCOS Obese Controls: One Size Fits All?

et al. 2021

View full text Add to dashboard Cite

show abstract

“…In the context of this study, the PCOSQOL was utilized as a validated measure of QoL (48). The PCOSQOL is a diseasespecific questionnaire which was developed and validated to measure QoL in UK women with PCOS, and is also the first PCOS-specific measurement tool to encompass all phenotypic subgroups according to the most recent diagnostic criteria (48). Briefly, this questionnaire incorporates 35 Likert-based questions allowing participants to report the impact of various PCOSrelated symptoms upon their day-to-day life, with subscales which allow reporting of the impact of PCOS, infertility, hirsutism, and mood upon QoL (49)(50)(51).…”

Section: Methodsmentioning

confidence: 99%

“…”), presence of comorbidities and typical sociodemographic questions. In the context of this study, the PCOSQOL was utilized as a validated measure of QoL ( 48 ). The PCOSQOL is a disease-specific questionnaire which was developed and validated to measure QoL in UK women with PCOS, and is also the first PCOS-specific measurement tool to encompass all phenotypic subgroups according to the most recent diagnostic criteria ( 48 ).…”

Section: Methodsmentioning

confidence: 99%

Sleep Disruption and Depression, Stress and Anxiety Levels in Women With Polycystic Ovary Syndrome (PCOS) During the Lockdown Measures for COVID-19 in the UK

Kite

Atkinson

McGregor

et al. 2021

Front. Glob. Womens Health

View full text Add to dashboard Cite

Background: Lockdown measures have been enforced globally in response to the COVID-19 pandemic. Given the comorbidity burden in women with polycystic ovary syndrome (PCOS), these lockdown measures may have a particularly negative impact on sleep health, quality of life (QoL), and depression/stress levels in this population. The aim of this study was to explore whether such potential problems were present in women with PCOS during the COVID-19 lockdown in the UK.Methods: UK women with PCOS were recruited through social media into a cross-sectional study during the COVID-19 lockdown. The study survey was delivered online, and included demographic and COVID-19 relevant questions, as well as validated questionnaires/scales, namely the Insomnia Severity Index (ISI), Depression Anxiety and Stress Scale (DASS-21), and PCOSQOL questionnaire.Results: Three hundred and thirty-three women with PCOS [median age: 30.0 (9.0) years] were recruited. Participants were dichotomized based on responses regarding the impact of COVID-19 restrictions on their sleep [negative (N = 242) vs. no/positive (N = 91) impact]. No differences were noted between groups regarding age, time since PCOS diagnosis, body mass index, or number of comorbidities. Based on the ISI, 44.2% of participants reporting a negative impact on sleep exhibited at least moderately severe clinical insomnia. Compared to those who reported no/positive effect on sleep, the participants reporting a negative impact on sleep also reported poorer QoL, based on the total PCOSQOL score, with a greater impact of PCOS and poorer mood in the corresponding PCOSQOL domains. Based on the DASS-21, the latter also had statistically higher depression and stress levels compared to the former. Finally, for this cohort significant inverse correlations were noted between the ISI and PCOSQOL scores (total and domain scores), whilst the DASS-21 and ISI scores were positively correlated (all p-values <0.001).Conclusion: The majority of recruited UK women with PCOS reported that the COVID-19 lockdown had a negative impact on their sleep, which was also associated with impaired QoL and higher depression/stress levels. Whilst further research is required, women with PCOS should be considered a vulnerable population that may experience an adverse impact on sleep, QoL and mental health well-being due to lockdown measures during the COVID-19 pandemic.

show abstract

“…About 714 women participated in the study to aid in the development of the PCOSQOL scale. Among different impacts, hirsutism, anxiety and depression, mood swings and infertility were reported at the top of the list (27). A study was conducted in Rawalpindi in which about 52 girls selected.…”

Section: Historical Backgroundmentioning

confidence: 99%

A Case Study: Psychophysiological Impact of Polycystic Ovarian Syndrome and its Management in Pakistani Women

Ullah

2022

jwmdc

View full text Add to dashboard Cite

Poly cystic ovary syndrome (PCOS) is a complicated and heterogenous endocrine disorder in the women and it can cause different metabolic, reproductive, and psychological abnormalities and is known for effecting about one among fifteen women globally. PCOS has been frequently diagnosed in women across pakistan and is previously reported to cause different physical and psychological abnormalities like obesity, infertility, hirsutism, depression, and anxiety on a large scale. Irrespective of the higher prevalence still there is inadequacy in the knowledge about PCOS. The aim of this study is to determine the prevalence of different physical and psychological symptoms of PCOS and their co relation with the impact on the quality of life of the affected individual and common methods of treatment used for PCOS. A questionnaire-based study would be designed to collect the data randomly from women of about 17-50 years of age who are affected with PCOS. This questionnaire would be containing all the necessary questions related to the physical and psychological impacts and the treatment methods. This questionnaire-based survey would be analysed by using different statistical analysis tools to provide the complete analytical results. This study will help the medical practioners in the determination of the most prevalent symptoms and can also aid for the improvision in the treatment methods to enhance effectiveness of treatment. It can be used in different educational seminars to spread awareness regarding the symptoms and treatment. It can also aid in further research.

show abstract

The Polycystic Ovary Syndrome Quality of Life scale (PCOSQOL): Development and preliminary validation

Cited by 27 publications

References 37 publications

Effectiveness of a 6-Month Lifestyle Intervention on Diet, Physical Activity, Quality of Life, and Markers of Cardiometabolic Health in Women with PCOS and Obesity and Non-PCOS Obese Controls: One Size Fits All?

Effectiveness of a 6-Month Lifestyle Intervention on Diet, Physical Activity, Quality of Life, and Markers of Cardiometabolic Health in Women with PCOS and Obesity and Non-PCOS Obese Controls: One Size Fits All?

Sleep Disruption and Depression, Stress and Anxiety Levels in Women With Polycystic Ovary Syndrome (PCOS) During the Lockdown Measures for COVID-19 in the UK

A Case Study: Psychophysiological Impact of Polycystic Ovarian Syndrome and its Management in Pakistani Women

Contact Info

Product

Resources

About