The positive impact of children with an intellectual disability on the family

Stainton, Tim; Besser, Hilde

doi:10.1080/13668259800033581

Cited by 182 publications

(139 citation statements)

References 10 publications

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“…For example, in a study by Stainton and Besser (1998), parents reported a number of positive things that a birth of a child with intellectual disability had on their lives such as increased sense of purpose, increased tolerance and understanding, positive impact on others/society etc.…”

Section: Introductionmentioning

confidence: 99%

Quality of Life of Parents of Children with Intellectual Disabilities in Croatia

Misura¹,

Memišević²

2017

Journal of Educational and Social Research

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Section: Introductionmentioning

confidence: 99%

Quality of Life of Parents of Children with Intellectual Disabilities in Croatia

Misura¹,

Memišević²

2017

Journal of Educational and Social Research

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“…Parents have also described a sense of purpose and fulfillment, as well as pride in their childrens' efforts and achievements [31]. It was especially rewarding for parents to see their children achieve or succeed at something they were not expected to be capable of [32].…”

Section: General Positivitymentioning

confidence: 99%

“…Parents have reported that they felt more tightly knit, and closer to their children [30][31]. Families felt that they grew stronger because of the shared experience of addressing inherent challenges, such as the pain of dealing with negative perceptions of outsiders [32]. Caregivers have also reported gaining new networks in their communities, improved support, and increased communication and closeness within the family [31].…”

Section: Family Closenessmentioning

confidence: 99%

“…Parents have described the experience of caring for a child with a disability has having made them less selfish, broadening their interests, providing a sense of purpose, and testing their abilities [26]. In addition, many parents report experiencing an increased sense of compassion [30], increased tolerance and understanding, feelings of personal strength, and ability to challenge people in positions of authority on behalf of their family and children [32].…”

Section: Personal Growthmentioning

confidence: 99%

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Rewards of Parenting a Child with a Fetal Alcohol Spectrum Disorder

Brown¹,

Rodger²,

George³

et al. 2008

TOFAMSJ

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There is a considerable amount of research on the challenges associated with parenting children who have disabilities, and little that focuses on positive aspects. The purpose of the study was to describe the rewards of parents of children with a fetal alcohol spectrum disorder (FASD). Nineteen birth, foster or adoptive parents were asked to answer the following question: "What are the rewards of parenting a child with a FASD?" The data were analyzed using multidimensional scaling and cluster analysis. Four clusters resulted. Parents indicated that they saw the children's effort, growth, and accomplishment in a variety of domains as encouraging. Parents also reported feeling appreciated by the children. Results suggest that rewarding parenting experiences with children who have alcohol-related disabilities are multiple, diverse and, when compared to the literature, largely consistent. The results lend credibility to the existing literature on the rewards of parenting children with developmental disabilities, and FASD in particular.Keywords: Fetal alcohol spectrum disorder, parenting, rewards.Prenatal alcohol exposure on the developing fetus can result in multiple lifelong effects [1]. These effects vary with amount, duration and timing of alcohol consumption, the general health of the mother, as well as genetic factors [2][3]. Fetal alcohol syndrome (FAS) is characterized by craniofacial abnormalities, prenatal and/or postnatal growth restriction, and central nervous system impairment [4]. Fetal alcohol spectrum disorder (FASD) is an umbrella term that encompasses the complete spectrum of effects resulting from alcohol use during pregnancy [2,5,6]. FASD includes a range of diagnostic terms from FAS, to categories that include some of the features such as fetal alcohol effects, prenatal alcohol effects, partial fetal alcohol syndrome, alcohol related birth defects (ARBD) and alcohol related neurodevelopmental disorder [7][8][9].A range of factors influences the ascertainment and diagnosis of FASD, and therefore its frequency has been difficult to determine [10]. Estimated prevalence of FAS in the United States ranges between 0.5 -2 per 1000 live births and the rate of FASD between 9-10 per 1000 live births [10,11]. It has been estimated that the total of people with FASD in the United States exceeds 2.6 million [12]. Although Canadian studies have estimated the prevalence of FASD in small populations, there are currently no national data [5].Children with an FASD diagnosis may experience medical complications related to hearing, speech and vision [3]. In addition, neurodevelopmental delays, most commonly in the forms of intellectual and attention-related disabilities [13][14][15], are present. In addition to these primary disabilities, children with FASD are also at high risk for the development of secondary disabilities. Secondary disabilities are those that a person is not born with and could potentially be ameliorated through intervention [16]. Streissguth and colleagues *Address correspondence to th...

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“…Parents vividly remember the first time a professional talks to them about their child's disability or diagnosis and have strong feelings about the experience (e.g., Chamak, Bonniau, Oudaya, & Ehrenberg, 2011;Hedov, Wikblad, & Anneren, 2007;O'Brien & Daggett, 2006). The professionals' own perceptions about the meaning of disability and about the quality of life and inherent value of individuals with disabilities powerfully influence their manner and choice of words when communicating with families and when training new professionals (Shakespeare, Iezzoni, & Groce, 2009;Stanton & Besser, 1998).…”

Section: Resilience and Transformation In Families Of Children With Dmentioning

confidence: 99%

Child-Parent Psychotherapy in the Context of the Developmental Disability and Medical Service Systems

Williams

Carson

Zamora

et al. 2014

PCSP

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Child-Parent Psychotherapy (CPP), an evidence-based dyadic treatment for young children who have experienced trauma, shows promise in intervening with children with developmental disabilities, as illustrated in the cases we described of 14-month-old "James" and 6-year-2-month-old "Juan" (Harley, Williams, Zamora, & Lakatos, 2014). In their thoughtful commentary on these cases, Ghosh Ippen, Noroña, & Lieberman (2014) discuss additional clinical considerations important to the use of CPP with this population. In this response, we explore further implementation of CPP in the context of the developmental disability and medical service systems. In particular, we highlight the importance of resilience in parents’ responses to their child’s developmental disability, contributions from pediatric psychology to understanding pediatric medical traumatic stress, infusing relationship-based approaches in collaboration with other service systems, and addressing barriers to service access in ethnic minority families. Finally, we provide recommendations for training and fidelity monitoring when applying CPP to children with developmental disabilities and their families.

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The positive impact of children with an intellectual disability on the family

Cited by 182 publications

References 10 publications

Quality of Life of Parents of Children with Intellectual Disabilities in Croatia

Quality of Life of Parents of Children with Intellectual Disabilities in Croatia

Rewards of Parenting a Child with a Fetal Alcohol Spectrum Disorder

Child-Parent Psychotherapy in the Context of the Developmental Disability and Medical Service Systems

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