The potential for person-centred planning to support the community participation of adults with an intellectual disability

McCausland, Darren; Murphy, Elaine; McCarron, Mary; McCallion, Philip

doi:10.1177/17446295211022125

Cited by 16 publications

(13 citation statements)

References 42 publications

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“…Of the two competencies, only timely responsiveness has a net effect on satisfaction with community integration. Although past studies have reported an overall effect of PCP on choice-making (Malette 2002;Neally-Barnes et al 2008;Wigham et al 2008) and social integration (McCausland et al 2022), we were unable to find any large-scale studies that specifically investigate the effects of staff competencies on these outcomes.…”

Section: Discussionmentioning

confidence: 91%

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Effects of person‐centred planning and practices on the health and well‐being of adults with intellectual and developmental disabilities: a multilevel analysis of linked administrative and survey data

İsvan

Bonardi

Hiersteiner

2023

J intellect Disabil Res

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BackgroundA person‐centred service planning and practice approach (PCP) is one that is driven by service users' individual preferences, needs and priorities. The approach has been identified as a best practice and is codified in US policies that encourage and, in some contexts, require state systems of home and community‐based services to adopt and demonstrate person‐centred practice. However, there is insufficient research on PCP's direct impact on outcomes for service users. This study aims to contribute to the evidence base in this area by investigating the association between service experiences and outcomes of adults with intellectual and developmental disabilities (IDD) receiving state‐funded services.MethodsThe data for the study come from the 2018–2019 National Core Indicators® In‐Person Survey that links survey responses with administrative records for a sample of 22 000 adults with IDD receiving services from 37 state developmental disabilities (DD) systems. Associations among service experiences and outcomes of survey participants are examined through multilevel regression techniques that include participant‐level responses and state‐level measures of PCP. The state‐level measures are constructed by combining administrative records describing participants' service plans with the priorities and goals they expressed in response to the survey.ResultsCase managers' (CM) accessibility and attentiveness to individual preferences, as reported by survey participants, are significantly associated with self‐reported outcomes such as perceived control over life decisions and sense of health and well‐being. Controlling for participants' experiences with their CMs, their reports of the person‐centred content of their service plans have net positive associations with outcomes. After accounting for experiences with the service system as reported by participants, the state system's person‐centred orientation, measured by the extent to which service plans across the state reflect participants' wishes for improving their social connections, remains a significant predictor of participants' sense of control over their daily lives.ConclusionsThis study contributes to the evidence base supporting PCP as a service model by identifying pathways that link person‐centred service planning and delivery and person‐centred orientation of state systems to positive outcomes reported by adults with IDD and by demonstrating the value of linking survey and administrative data. The key implication of the findings for policy and practice is that an overall person‐centred orientation of state DD systems as well as PCP training for people who support planning for and delivery of direct supports will substantially improve the lives of adults with IDD.

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Section: Discussionmentioning

confidence: 91%

“…2008) and social integration (McCausland et al . 2022), we were unable to find any large‐scale studies that specifically investigate the effects of staff competencies on these outcomes.…”

Section: Discussionmentioning

confidence: 97%

Effects of person‐centred planning and practices on the health and well‐being of adults with intellectual and developmental disabilities: a multilevel analysis of linked administrative and survey data

İsvan

Bonardi

Hiersteiner

2023

J intellect Disabil Res

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“…For all domains of QoL, responses include an interaction between objective circumstances and subjective perceptions, evaluations, and feelings about them, and self-reports play an essential role in accurately assessing their QoL. An assessment of QoL without considering self-reports translates into a contradiction, in the sense that decision-making is focused on Person-centered planning [ 47 ].…”

Section: Discussionmentioning

confidence: 99%

Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports

et al. 2023

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Assessing quality of life (QoL) is important to provide personalized and individualized support plans with the purpose of improving personal outcomes. Based on the conceptual model of QoL, the aim of this study was to assess the congruence between the perceptions of institutionalized individuals with intellectual and developmental disabilities (IDD) and the perception of a third party, regarding QoL. Forty-two individuals participated in this study, including twenty-one with mild to severe IDD and their family members/caregiver/reference technician, who responded to the Personal Outcomes Scale (Portuguese version). Significant differences (p < 0.05) were found between reports in the personal development (t = −2.26; p = 0.024), emotional well-being (t = −2.263; p = 0.024), physical well-being (t = −2.491; p = 0.013) and total QoL (t = −2.331; p = 0.02). The results further show that most third-party reports tend to undervalue the QoL of the individual with IDD, and that there is no congruence in any of the QoL domains. The inclusion of self-reports in the QoL assessment is important. In addition to the assessment of third-party reports, the process of making decisions appropriate to the context and individual characteristics is equally important. On the other hand, the inclusion of third-party reports is an opportunity to promote communication among all stakeholders, recognize and discuss differences, and promote QoL, not only of individuals with IDD, but also of families.

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“…In the United Kingdom, Hughes et al (2019) and Morgan (2016) examined the role of using PATH in promoting organisational change, with school staff, and with a children's services department, respectively. McCausland et al (2021), examined the role of PCP in promoting community inclusion in a learning disability service in Dublin.…”

Section: Introductionmentioning

confidence: 99%

Young people's views and experiences of person‐centred planning: A systematic literature review

Gregory,

Atkinson

2023

Research in Spec Educ Needs

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Person‐centred planning (PCP) is both a philosophy and method of service delivery across varied contexts. It is used in pathway planning for young people with special educational needs and disabilities (SEND) to promote positive transition outcomes. Due to idiosyncratic use, it is unclear how PCP meetings are organised and structured and to what extent this reflects fidelity to PCP as a philosophy. It is also unclear how young people experience PCP meetings and how this impacts transition. To explore this further, a systematic literature review was undertaken from which six studies were included and their data reported using PRISMA guidelines. Drawing upon Gestalt theory as an interpretive lens, findings from these studies suggest that PCP meetings comprise intersecting ‘foreground’ and ‘background’ elements, making PCP meetings a complex space requiring skilled facilitation. Limitations and recommendations for further research and practice are included.

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The potential for person-centred planning to support the community participation of adults with an intellectual disability

Cited by 16 publications

References 42 publications

Effects of person‐centred planning and practices on the health and well‐being of adults with intellectual and developmental disabilities: a multilevel analysis of linked administrative and survey data

Effects of person‐centred planning and practices on the health and well‐being of adults with intellectual and developmental disabilities: a multilevel analysis of linked administrative and survey data

Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports

Young people's views and experiences of person‐centred planning: A systematic literature review

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