2021
DOI: 10.1007/s00520-020-05901-3
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The power of informal cancer caregivers’ writings: results from a thematic and narrative analysis

Abstract: Background Cancer is a disease that disrupts not only the patient’s life, but that of the entire family as well, from a care, organizational, and emotional perspective. Patients share their experience of illness frequently with their informal caregiver (IC), a partner, son/daughter, friend, volunteer, or any other person in the family or social network who offers to support them during their clinical journey. The purpose of this study was to investigate ICs’ still unknown cancer experiences throu… Show more

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Cited by 9 publications
(19 citation statements)
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“…We focused on thematic narrative analysis (e.g. Suter et al, 2021). First, the data were read carefully and then coded using Atlas.ti software.…”
Section: Method Data and Analysismentioning
confidence: 99%
See 1 more Smart Citation
“…We focused on thematic narrative analysis (e.g. Suter et al, 2021). First, the data were read carefully and then coded using Atlas.ti software.…”
Section: Method Data and Analysismentioning
confidence: 99%
“…First, the data were read carefully and then coded using Atlas.ti software. Following the principles of qualitative data analysis (see Pheonix, 2017;Squire, 2017;Suter et al, 2021), the codes were grouped thematically. The main themes arising from the data formed a narrative, a thematic story that followed a chronological structure (see also Phoenix, 2017); the students reflected on their starting points, the teaching practice experience and how it had affected their future plans.…”
Section: Method Data and Analysismentioning
confidence: 99%
“…1 Informal caregivers (ICGs) are generally defined as persons who provide unpaid assistance or supervision with personal or instrumental activities of daily living toward a person (ie, relative or friend) who is unable to perform these activities due to cognitive, physical, or psychological impairments. 10 Caregiving of a person with a chronic disease can also be a contributing factor, leading to the lack of BC information, health behaviors, and screening adherence. According to data, caregivers are less likely than noncaregivers to practice health-promoting behaviors.…”
Section: Introductionmentioning
confidence: 99%
“…Whilst there were some carers prior to COVID-19 who reported needing hospitals to provide more information and guidance around dietary information, hygiene guidance and medication supervision (Ussher et al, 2009), the sudden healthcare changes during COVID-19 were associated with an increased number of carers needing additional support (Weaver et al, 2022). Due to the increased amount care tasks that carers took up in the absence of proper healthcare services, carers have been found to be viewed as co-workers in care provision by healthcare professionals (Suter et al, 2021;Weaver et al, 2022). This view of carers as co-workers often meant that their support needs were not acknowledged by healthcare professionals (Weaver et al, 2022).…”
Section: The Covid-19 Pandemic In Aotearoamentioning
confidence: 99%
“…Many studies (e.g. Suter et al, 2021;Masa et al, 2000) found that cancer carers associated their caring journey with psychological distress, especially anxiety, depression, helplessness, frustration, and fatigue. The term 'caregiver burden' has been used to conceptualise the physical (such as tiredness and sleep trouble), emotional (such as mood disturbances), social (such as social isolation) and financial burdens experienced by carers within the cancer caring journey (e.g.…”
Section: The Covid-19 Pandemic In Aotearoamentioning
confidence: 99%