The prevalence and intensity of late effects in patients with testicular germ cell tumors: A first step of instrument development using a stepwise approach

Enzlin, Roos; Vervoort, Sigrid C. J. M.; Suelmann, Britt B. M.; Meijer, Richard P.; Teunissen, Saskia; Zweers, Daniëlle

doi:10.1016/j.ejon.2023.102303

Cited by 2 publications

(1 citation statement)

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“…Since TGCT affects the reproductive organs, gonadal disorders are commonly seen, often leading to late effects such as sexual dysfunction, reduced fertility, and concerns about reproduction [7,[10][11][12]. In addition, a Dutch cross-sectional study showed that "changes in sexual life" and "concerns about fertility" were the fifth most common late effects and were reported by 42% of TGCT patients [13]. Sexuality and reproduction are themes that play an important role in the specific stage of life of AYAs [14].…”

Section: Introductionmentioning

confidence: 99%

Perspectives and Concerns on Late Effects Regarding Sexuality among Adolescents and Young Adults Treated for Testicular Germ Cell Tumor: The PRICELESS-Study—A Qualitative Study

Kuiper,

Zweers,

Suelmann

et al. 2024

Cancers

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This study aimed to explore perspectives and concerns regarding sexuality among adolescents and young adults (AYAs) possibly experiencing late effects after testicular germ cell tumor (TGCT) treatment. A qualitative study was performed in which semi-structured interviews were held with thirteen AYAs from a center of expertise for TGCT in the Netherlands. Data were analyzed using Braun and Clark’s thematic analysis method. Seven interacting and interconnected themes were found: desire to have children, rediscovering sexuality, insecurity about sexual performance, acceptance of physical change, loss of masculinity, burden on relationship, and openness in discussing sexuality. Concerns about the desire to have children seem to play a significant role. In conclusion, TGCT patients face multiple changes (physical, emotional, relational, and sexual), followed by a difficult period of acceptance, after which a new phase of rediscovering sexuality appeared. These findings can help to make healthcare professionals aware of the underlying mechanisms and concerns about sexuality. Furthermore, insights can help to develop sexuality-themed items for a broader monitoring tool to structurally assess the late effects to support discussing sexuality.

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Section: Introductionmentioning

confidence: 99%

Perspectives and Concerns on Late Effects Regarding Sexuality among Adolescents and Young Adults Treated for Testicular Germ Cell Tumor: The PRICELESS-Study—A Qualitative Study

Kuiper,

Zweers,

Suelmann

et al. 2024

Cancers

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AYA cancer care indispensable in caring for testicular cancer patients

Vliem-van Doorn,

Zweers

2023

Tijdschr Urol

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SamenvattingPer jaar worden zo’n 3.900 adolescenten en jongvolwassen in de leeftijd van 18 tot en met 39 jaar, AYA’s, geconfronteerd met de diagnose kanker. Samen vormen zij 3,5% van het totaal aantal patiënten met kanker. Deze patiëntengroep behoeft extra aandacht door de unieke fysieke, psychische en maatschappelijke uitdagingen waar jongvolwassenen met kanker mee te maken krijgen. Zaadbalkanker is de meest voorkomende vorm van kanker onder jonge mannen. Uit de praktijk blijkt dat voeding en beweging, familie, gezin en vrienden, werk/opleiding en re-integratie, hypotheken en verzekeringen, emoties en seksualiteit veel voorkomende thema’s in deze patiëntengroep. Leeftijdspecifieke AYA-zorg dient dan ook integraal onderdeel te zijn van de zorg voor patiënten met zaadbalkanker.

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The prevalence and intensity of late effects in patients with testicular germ cell tumors: A first step of instrument development using a stepwise approach

Cited by 2 publications

References 26 publications

Perspectives and Concerns on Late Effects Regarding Sexuality among Adolescents and Young Adults Treated for Testicular Germ Cell Tumor: The PRICELESS-Study—A Qualitative Study

Perspectives and Concerns on Late Effects Regarding Sexuality among Adolescents and Young Adults Treated for Testicular Germ Cell Tumor: The PRICELESS-Study—A Qualitative Study

AYA cancer care indispensable in caring for testicular cancer patients

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