The promise of virtual navigation in cancer care: Insights from patients and health care providers

Haase, Kristen; Strohschein, Fay J.; Lee, Virginia; Loiselle, Carmen G.

doi:10.5737/23688076263238245

Cited by 6 publications

(6 citation statements)

References 38 publications

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“…This study is part of a broader mixed methods study of patients' use of cancer information and the patient experience, which is beyond the scope of the present manuscript (details of the broader study are available at Haase et al, 2016). This inquiry was guided by a qualitative interpretive descriptive approach.…”

Section: Me Thodsmentioning

confidence: 99%

“…The Internet has become a key resource for individuals with cancer as they search for information to manage their illness (Ziebland et al, 2004). However, patients and healthcare professionals have differing perspectives about how CRII relates to patient use of healthcare services and relationships with their providers (Haase, Strohschein, Lee, & Loiselle, 2016). Some authors report oncology professionals with open attitudes to CRII (Shen et al, 2015), whereas others have found professionals have misgivings about the potential harm of self-sought CRII (Newnham et al, 2005).…”

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confidence: 99%

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Perspectives of healthcare professionals on patient Internet use during the cancer experience

et al. 2018

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In this study, we document cancer healthcare professionals’ views of patients’ use of cancer‐related Internet information (CRII) and their views on how it informs the ways patients interact with healthcare professionals and services from the point of view of health professionals. We used an interpretive descriptive approach, conducting interviews and focus groups with oncology healthcare professionals (n = 21) at a University‐affiliated western Canadian cancer treatment centre. Data were analysed using thematic analysis. We present an initial understanding of how CRII alters, informs and modulates patients’ cancer experience and relates to their interactions with healthcare professionals and services. Findings were synthesised into two thematic categories: pragmatic concerns and priorities; and processes and practices. Healthcare professionals were supportive of patients’ needs for more information, particularly at key points in the cancer trajectory when information may be lacking. Participants concurred that CRII could positively benefit patients and, if shared with their healthcare professional, could benefit the patient–healthcare professional relationship. Oncology healthcare professionals provide pivotal information to patients; thus, they are well situated to engage patients in discussions about CRII and incorporate this into patient encounters. These actions may open new lines of communication with patients, strengthen the patient–professional relationship and empower patients to be engaged in their own care.

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Section: Me Thodsmentioning

confidence: 99%

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Perspectives of healthcare professionals on patient Internet use during the cancer experience

et al. 2018

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“…Beyond unparalleled accessibility, there are numerous reports about what motivates patients to use ICIRs for health information. Some patients report turning to the Internet when their preferred source of information (their doctor or nurse) is unavailable (James et al, 2007), to prepare for/cross-check information from HCP consultations (Castleton et al, 2011; Haase, Strohschein, Lee, & Loiselle, in press; Loiselle et al, 2013), and to gain a sense of confidence around cancer information (Ziebland et al, 2004), whereas others report using the Internet when dissatisfied with HCP advice (Tustin, 2010). However, a great deal of information on the Internet is also of questionable quality and relevance, which is a concern cited by HCP and patients (Deshpande & Jadad, 2009; Lam, Roter, & Cohen, 2013; Verma et al, 2006).…”

Section: Literature Reviewmentioning

confidence: 99%

“…Furthermore, an in-depth qualitative analysis with multidisciplinary oncology team members ( n = 16) found that several providers had concerns about ICIRs demanding too much of their time in patient consultations (Haase & Loiselle, 2012). In a qualitative secondary analysis of patient and provider insights of the same ICIRs, the main point of divergence was on the patients’ view that ICIRs would enhance patient consultations and relieve time pressures, whereas providers felt it would be too time-consuming (Haase et al, in press). This final point indicates a need for the research proposed—to further clarify and understand the role of ICIRs in interactions with the health-care system, particularly around how the use of ICIR informs the use of health services.…”

Section: Literature Reviewmentioning

confidence: 99%

Internet Cancer Information Use by Newly Diagnosed Individuals and Interactions With the Health System

Haase

Thomas

Gifford

2016

International Journal of Qualitative Methods

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Nearly 40% of Canadians will be diagnosed with cancer in their lifetime, and people with cancer are increasingly turning to the Internet to bolster support and information received from health-care providers. However, little is known about the role of the Internet in patients' interactions with the health-care system. The goals of this study are (1) to qualitatively explore the content of commonly used websites from a holistic nursing perspective, (2) to explore the prompts to use the Internet and how it informs the ways patients utilize and interact with health services, and (3) to document the types of Internet resources and amounts of usage. This study is guided by a constructivist mixed methods design. Interpretive description will guide the overarching qualitative component, including an analysis of data from commonly used websites and interviews with 16 newly diagnosed individuals. Openended interviews will clarify, through exploration, the role of the Internet in participants' health system interactions. A survey of Internet use will add insight and depth about where, when, and how participants use the Internet. All interviews and website data will be analyzed using thematic analysis. Descriptive statistics will illustrate a summary of Internet usage. Triangulation of findings will provide oncology nurses and interdisciplinary team members with insight into how patients' use of the Internet informs their use of health services. Methodologically, this study advances the use of qualitative methods for websites analysis, on which relatively little has been documented.

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“…[3,4] Our research team has been documenting the effectiveness and usability of innovative interactive health communication approaches to overcome the barriers to support throughout the cancer trajectory. [5][6][7] Defined as the "interaction of an individual (eg, patient) with or through an electronic device or communication technology to access information or receive support on a health-related issue," [8] interactive health communication applications can take different format combining health information with at least one other type of support. [8] For instance, trained volunteers who have gone through a similar cancer experience can be a significant and readily accessible source of meaningful support for individuals with cancer.…”

Section: Introductionmentioning

confidence: 99%

Enhancing access to sustainable cancer supportive modalities: the roles of interactive health communication and trained volunteers

Attieh

Loiselle

2021

Journal of Psychosocial Oncology Research &Amp; Practice

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Background: Addressing the unmet needs of individuals with cancer in a timely manner is imperative for true implementation of person-centered care. Interactive health communication (ie, people's interactions with health information technologies) and more sustainable forms of support (eg, trained volunteers), are increasingly recognized as promising means to address the many barriers to accessing cancer-related support. This pilot study is timely as it tested an accessible cancer supportive approach that included e-handouts on 25 cancer distress-related topics and supportive phone calls by trained volunteers. The study objectives were to document participants' preferences for the types of support offered, assess changes in distress pre and post, and determine the usability of the approach. Methods: Individuals with various types and stages of cancer (N = 88), diagnosed within the past 6 months were recruited from a university-affiliated cancer center in Montreal, Quebec, Canada. Participants completed the Cancer Support Community Distress measure at baseline, and they were prompted to request different types of support. Participants completed a follow-up questionnaire including the distress measure one to four weeks post support provision. Results: Of the 88 participants who filled out baseline questionnaires, 68 completed the follow up measures. Of the former, 76% (n = 67) made at least one request (e-handouts/phone calls/or both). The most frequently requested e-handout addressed pain/physical discomfort (37 requests) and phone calls were requested mostly for sleep problems (8 requests). Participants who requested both support modalities reported significantly lower distress [F (3,64) = 3.52, P = .02] at follow-up compared to those who made no requests. Ninety-two percent of participants who requested e-handouts reported that other patients would benefit from these. Participants who requested phone calls agreed or strongly agreed that volunteers were knowledgeable. The usability score was excellent (mean = 85.5/100; SD = 16.36). Conclusion: Preliminary findings indicate that this supportive approach is promising. Future work would document the differential contributions of supportive modalities that compare, for instance, professional versus lay (trained) support.

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The promise of virtual navigation in cancer care: Insights from patients and health care providers

Abstract: Virtual navigation (VN)

Cited by 6 publications

References 38 publications

Perspectives of healthcare professionals on patient Internet use during the cancer experience

Perspectives of healthcare professionals on patient Internet use during the cancer experience

Internet Cancer Information Use by Newly Diagnosed Individuals and Interactions With the Health System

Enhancing access to sustainable cancer supportive modalities: the roles of interactive health communication and trained volunteers

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