The psychological well‐being of renal peer support volunteers

Brunier, Gillian; Graydon, Jane E.; Rothman, Barbara Katz; Sherman, Charline; Liadsky, Roselyn

doi:10.1046/j.1365-2648.2002.02144.x

Cited by 36 publications

(35 citation statements)

References 31 publications

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“…Our findings corroborate other research on the mutual benefits of providing peer support to HIV+ women (Arnstein et al, 2002; Brunier et al, 2002; Campbell & Mzaidume, 2001; Raine, 2003). These peer counselors identified ways in which they had been transformed by the experience of helping others.…”

Section: Discussionsupporting

confidence: 90%

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Embodied Work: Insider Perspectives on the Work of HIV/AIDS Peer Counselors

Messias

Moneyham

Vyavaharkar

et al. 2009

Health Care for Women International

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Our aim in this study was to explore HIV/AIDS peer counseling from the perspective of women actively engaged in this work within the context of a community-based program in rural areas of the southeastern United Sates. Based on this research we suggest that the embodied work of HIV/ AIDS peer counselors is constructed around their personal identities and experiences. This work involves gaining entry to other HIV-positive women's lives, building relationships, drawing on personal experiences, facing issues of fear and stigma, tailoring peer counseling for diversity, balancing risks and benefits, and terminating relationships. Peer counselors recognize the personal and collective value of their work, which, like much of women's work within the context of family and community, lacks public visibility and acknowledgement. We discuss implications for the training and support of peer-based interventions for HIV and other women's health issues across diverse contexts and settings. KeywordsHIV/AIDS; peer counseling; women's work; women's health Peer-based interventions are well-established in many public health and social service settings and are increasingly popular as a strategy for reaching disenfranchised and marginalized groups around the globe (Boudin, Carero, & Clark, et al., 1999;Eng, Parker, & Harlan, 1997;Everly, 2002). Despite the recent popularity and proliferation of peer interventions, there is a need for more in-depth and contextualized knowledge of this NIH Public Access

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Section: Discussionsupporting

confidence: 90%

“…Anecdotal evidence and findings from a few studies suggest a number of positive effects for peer counselors (Arnstein, Vidal, Wells-Federman, Morgan, & Caudill, 2002; Brunier, Graydon, Rothman, Sherman, & Liadsky, 2002; Paxton, 2002; Raine, 2003). The potential for negative effects also exists and should be explored.…”

Section: Peer Interventionsmentioning

confidence: 99%

Embodied Work: Insider Perspectives on the Work of HIV/AIDS Peer Counselors

Messias

Moneyham

Vyavaharkar

et al. 2009

Health Care for Women International

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“…Positive effects of a challenging buddy role have been reported previously for renal peer support volunteers [51], and peer leaders in an asthma self-management camp [52]. Also, the buddies’ combined roles of supervisor, advisor and leader for seems to match with the three types of assistance identified with peer support based on experiential knowledge (i.e.…”

Section: Discussionmentioning

confidence: 58%

Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL

Sattoe

Jedeloo²,

Staa

2013

BMC Nephrol

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BackgroundThe Camp COOL programme aims to help young Dutch people with end-stage renal disease (ESRD) develop self-management skills. Fellow patients already treated in adult care (hereafter referred to as ‘buddies’) organise the day-to-day program, run the camp, counsel the attendees, and also participate in the activities. The attendees are young people who still have to transfer to adult care. This study aimed to explore the effects of this specific form of peer-to-peer support on the self-management of young people (16–25 years) with ESRD who participated in Camp COOL (CC) (hereafter referred to as ‘participants’).MethodsA mixed methods research design was employed. Semi-structured interviews (n = 19) with initiators/staff, participants, and healthcare professionals were conducted. These were combined with retrospective and pre-post surveys among participants (n = 62), and observations during two camp weeks.ResultsSelf-reported effects of participants were: increased self-confidence, more disease-related knowledge, feeling capable of being more responsible and open towards others, and daring to stand up for yourself. According to participants, being a buddy or having one positively affected them. Self-efficacy of attendees and independence of buddies increased, while attendees’ sense of social inclusion decreased (measured as domains of health-related quality of life). The buddy role was a pro-active combination of being supervisor, advisor, and leader.ConclusionsCamp COOL allowed young people to support each other in adjusting to everyday life with ESRD. Participating in the camp positively influenced self-management in this group. Peer-to-peer support through buddies was much appreciated. Support from young adults was not only beneficial for adolescent attendees, but also for young adult buddies. Paediatric nephrologists are encouraged to refer patients to CC and to facilitate such initiatives. Together with nephrologists in adult care, they could take on a role in selecting buddies.

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“…However, to ensure positive therapy outcomes, peer counsellors should be trained. As Brunier et al . (2002) indicated, trained counsellors are more likely to have come to terms with their own illness, are able to maintain and possibly improve their own well‐being while allaying the distress of patients.…”

Section: Rehabilitation Programmementioning

confidence: 76%