The psychosocial impact of haemophilia from patients’ and caregivers’ point of view: The results of an Italian survey
Arianna Fornari,
Ippazio Cosimo Antonazzo,
Angiola Rocino
et al.
Abstract:BackgroudA huge amount of data about psychosocial issues of people with haemophilia (PwH) are available; however, these materials are fragmentary and largely outdated, failing to reflect the impact of current treatment strategies.AimDescribing the influence of illness on psychosocial aspects of adult PwH (≥18 years) and caregivers of children with haemophilia (CPwH) without inhibitors, in Italy.MethodsSurveys (for adult PwH, CPwH and haemophilia specialists) were developed by a multidisciplinary working group … Show more
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