The quality of life after cleft lip and palate surgery

Abstract

Background and aims. Labio-maxillo-palatal clefts represent one of the most common congenital malformations, which manifests through aesthetic, functional and psycho-social alterations. The long course of multidisciplinary treatments represent a psycho-emotional and financial burden for both the patient and his family, being an important factor in the complex management of these patients.
 The study aims to assess the quality of life of parents of children with clefts and the psychosocial impact on the family and society.
 Methods. The study included 40 subjects who met the inclusion criteria for this study. Following patient informed consent and the approval of the ethics committee, the data were collected by applying the quality-of-life evaluation questionnaire. The evaluation was performed using the Likert scale (1 - not at all to 5 - very satisfactory), and the data were statistically processed.
 Results. Most of the questionnaires were completed by the mother, who accompanied the child to the regular check-up; 58% of parents believe that their social life is not affected by having a child with a cleft, and 83% say that interfamilial relationships have not been affected. Most parents consider that the postoperative result was very good, which led to improved psycho-social integration of the child.
 Conclusions. The study confirmed an acceptable quality of life for the children’s parents, which was not influenced by the family presence of a child with a cleft. At the same time, the excessive care of the parents for the child with the cleft was confirmed. The postoperative improvement of the aesthetic aspect led to a much better psycho-emotional integration of the child in the society.

BMP signaling during craniofacial development: new insights into pathological mechanisms leading to craniofacial anomalies

“…Therefore, it has been unclear whether genetic or non-genetic reasons cause that, and caused by single gene mutation or combined effect of several genes. The current primary therapeutic option for orofacial cleft and craniosynostosis is invasive surgeries, which decrease their quality of life ( Esparza and Hinojosa, 2008 ; Seruya et al, 2011 ; Shkoukani et al, 2014 ; Opriş et al, 2022 ; Spazzapan et al, 2022 ). Therefore, defining the molecular and cellular pathogenesis of CFAs could facilitate the strategies for the early identification, prevention, and treatment of these developmental diseases.…”

Perception and Attitude of Parents of Children With Orofacial Clefts Regarding the Use of Presurgical Orthopedics and Feeding Obturators

“…DynaCleft utilizes tapes to join the cleft segments and bring bone and tissue into a more favorable surgical position [ 10 ]. OFC is not only an esthetic concern, but it also affects functions such as speech, mastication, deglutition, and hearing [ 16 ]. Prior to palatal defect closure, newborns with OFC face various obstacles to successful feeding [ 17 ].…”

Current Perspectives on Cleft Lip and Palate and Children’s Health

“…Furthermore, parents still have sparse information about the rehabilitation process and its impact on their lives [11]. Nevertheless, all this stress will be diminished or even solved after cleft lip and palate repair, leading to a better integration of the cleft patient in society [12]. This Special Issue in Children, entitled "Current Perspectives on Cleft Lip and Palate and Children's Health," considers all perspectives to children with an orofacial cleft.…”