The Quality of Life in Bipolar Disorder (QoL.BD) questionnaire a decade on – A systematic review of the measurement of condition-specific aspects of quality of life in bipolar-disorder

Morton, Emma; Murray, Greg; Yatham, Lakshmi N.; Lam, Raymond W.; Michalak, Erin E.

doi:10.1016/j.jad.2020.09.017

Cited by 7 publications

(9 citation statements)

References 74 publications

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“…Baseline Brief QoL.BD scores (Table 4) were comparable to those found in our pilot study and published cohort studies (Morton et al, 2021). Loss to follow-up at 5 weeks (17.9%) was lower than expected, and (as tested by χ 2 and t test) unrelated to any of the baseline variables shown in Table 3.…”

Section: Resultssupporting

confidence: 84%

“…The primary outcome measure was total score on the 12-item brief version of the disorder-specific self-report Quality of Life in Bipolar Disorder (QoL.BD; Michalak & Murray, 2010) instrument. The QoL.BD and Brief QoL.BD are validated, widely used measures of subjective QoL, with established psychometric properties including evidence of sensitivity to change (e.g., Michalak et al, 2019; Morton et al, 2021). The Brief QoL.BD, carved from the full 56-item Qol.BD for repeated measures use, covers 12 factor-analytically derived domains (Physical, Sleep, Mood, Cognition, Leisure, Social, Spirituality, Finance, Household, Self-esteem, Independence, and Identity).…”

Section: Methodsmentioning

confidence: 99%

“…In the validation sample, Cronbach’s α for the total score was 0.87 ( SD = 8.76), giving a reliable change of 3.16 points. The Brief QoL.BD has been validated for online use and shown superior sensitivity to change in clinician-rated symptoms compared to commonly used generic QoL measures, including sensitivity to effects of psychological intervention in BD (Morton et al, 2021).…”

Section: Methodsmentioning

confidence: 99%

“…A recent review of treatment studies with QoL.BD as an outcome concluded that statistically significant improvement is rarely found (Emma Morton et al, 2021), and earlier research suggested that QoL change may be delayed relative to improvements in symptoms (G. Murray & Michalak, 2007). Research in other chronic illnesses suggests that QoL improvement is difficult, but can be supported by encouraging patients to first identify a specific condition-related issue upon which to focus behaviour change efforts (Anderson & Ozakinci, 2018).…”

Section: Targeting Quality Of Lifementioning

confidence: 99%

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Mindfulness-based online intervention to improve quality of life in late-stage bipolar disorder: A randomized clinical trial.

Murray¹,

Thomas²,

Michalak³

et al. 2021

Journal of Consulting and Clinical Psychology

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Lindblom) who supported the project. We would also like to thank those who shared their lived experience for the website video content, the lived experience forum moderators, Rybazoid for multimedia production and Media Insights for website development.Recruitment was facilitated by International Bipolar Foundation, Bipolar Life (Australia), and Bipolar UK; international online risk management was facilitated by Unsuicide.com. MB is

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Section: Resultssupporting

confidence: 84%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Targeting Quality Of Lifementioning

confidence: 99%

See 2 more Smart Citations

Mindfulness-based online intervention to improve quality of life in late-stage bipolar disorder: A randomized clinical trial.

Murray¹,

Thomas²,

Michalak³

et al. 2021

Journal of Consulting and Clinical Psychology

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“…Accordingly, optimal treatment of BD involves not only symptom management but also attention to QoL [5,6]. For example, there is only a small to moderate correlation between mood stability and QoL [7][8][9][10], indicating that interventions specifically targeting QoL are required.…”

Section: Introductionmentioning

confidence: 99%

Supporting Self-management and Quality of Life in Bipolar Disorder With the PolarUs App (Alpha): Protocol for a Mixed Methods Study

Michalak¹,

Barnes²,

Morton³

et al. 2022

JMIR Res Protoc

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Background Quality of life (QoL) is increasingly being recognized as a key outcome of interventions for bipolar disorder (BD). Mobile phone apps can increase access to evidence-based self-management strategies and provide real-time support. However, although individuals with lived experiences desire support with monitoring and improving broader health domains, existing BD apps largely target mood symptoms only. Further, evidence from the broader mobile health (mHealth) literature has shown that the desires and goals of end users are not adequately considered during app development, and as a result, engagement with mental health apps is suboptimal. To capitalize on the potential of apps to optimize wellness in BD, there is a need for interventions developed in consultation with real-world users designed to support QoL self-monitoring and self-management. Objective This mixed methods pilot study was designed to evaluate the alpha version of the newly developed PolarUs app, developed to support QoL self-monitoring and self-management in people with BD. Co-designed using a community-based participatory research framework, the PolarUs app builds on the web-based adaptation of a BD-specific QoL self-assessment measure and integrates material from a web-based portal providing information on evidence-informed self-management strategies in BD. The primary objectives of this project were to evaluate PolarUs app feasibility (via behavioral use metrics), the impact of PolarUs (via the Brief Quality of Life in Bipolar Disorder scale, our primary outcome measure), and explore engagement with the PolarUs app (via quantitative and qualitative methods). Methods Participants will be residents of North America (N=150), aged >18 years, with a Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision diagnosis of BD type 1, BD type 2, or BD not otherwise specified as assessed by structured diagnostic interview. An embedded mixed methods research design will be adopted; qualitative interviews with a purposefully selected subsample (approximately, n=30) of participants will be conducted to explore in more depth feasibility, impact, and engagement with the PolarUs app over the 12-week study period. Results At the time of publication of this protocol, the development of the alpha version of the PolarUs app was complete. Participant enrollment has begun in June 2022. Data collection is expected to be completed by December 2022. Conclusions Beyond contributing knowledge on the feasibility and impact of a novel app to support QoL and self-management in BD, this study will also provide new insights related to engagement with mHealth apps. Furthermore, it will function as a case study of successful co-design between people with BD, health care providers, and BD researchers, providing a template for the future use of community-based participatory research frameworks in mHealth intervention development. The results will be used to further refine the PolarUs app and inform the design of a larger clinical trial. International Registered Report Identifier (IRRID) PRR1-10.2196/36213

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Clinical characteristics, sociodemographic profile, and treatment pattern of bipolar disorder - A multicenter study from India

Reddy¹,

Rao²,

Kumar³

et al. 2022

Psychiatry Research Communications

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The Quality of Life in Bipolar Disorder (QoL.BD) questionnaire a decade on – A systematic review of the measurement of condition-specific aspects of quality of life in bipolar-disorder

Cited by 7 publications

References 74 publications

Mindfulness-based online intervention to improve quality of life in late-stage bipolar disorder: A randomized clinical trial.

Mindfulness-based online intervention to improve quality of life in late-stage bipolar disorder: A randomized clinical trial.

Supporting Self-management and Quality of Life in Bipolar Disorder With the PolarUs App (Alpha): Protocol for a Mixed Methods Study

Clinical characteristics, sociodemographic profile, and treatment pattern of bipolar disorder - A multicenter study from India

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