The Racial Factor in Disease

Ginzler, Arthur M.

doi:10.1001/jama.1946.02870260060022

Cited by 1 publication

(2 citation statements)

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“…Of the 15 studies, 10 were from High Income Countries (HIC) such as the United States and the United Kingdom ( Table 2). 3 of these addressed ethical review of multi-site studies; 12 2 discussed ethics and ethical review in the field of operations research; 13 others tackled a diverse range of issues from consent in health services research, 14 exemptions from review for quality improvement projects and public health agencies, 15 to performance of ethics review committees, 16 and ethical review of interpretive research. 17 The remaining 5 studies were global in nature, and addressed issues related to both the developing and developed world.…”

Section: Literature Reviewmentioning

confidence: 99%

“…27 One of the key issues that was highlighted across these studies is the lack of diversity in the background and competencies of REC members, who are often most conversant with biomedical research. 28 Highlighting the increasingly diverse range of the types of research conducted globally, including HSR, these studies call for better representation of different fields of research among members tasked with ethical review of studies. This will ensure that the committee has a better understanding of HSR and related fields, and aid in the establishment of appropriate processes for the review of such studies.…”

Section: Literature Reviewmentioning

confidence: 99%

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A Scoping Study on the Ethics of Health Systems Research

Bachani

Rattani²,

Hyder

2016

Developing World Bioethics

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Currently, health systems research (HSR) is reviewed by the same ethical standards as clinical research, which has recently been argued in the literature to be an inappropriate standard of evaluation. The issues unique to HSR warrant a different review by research ethics committees (RECs), as it does not impose the same risks to study participants as other types of clinical or public health research. However, there are limited tools and supporting documents that clarify the ethical considerations. Therefore, there is a need for additional reflection around ethical review of HSR and their consideration by RECs. The purpose of this paper is to review, understand, and synthesize the current state of literature and practice to inform these deliberations and the larger discourse on ethics review guidelines for HSR. This paper presents a review of the literature on ethics of HSR in the biomedical, public health, and implementation research to identify ethical considerations specific to HSR; and to identify examples of commonly available guidance and/or tools for the ethical review of HSR studies. Fifteen articles were identified on HSR ethics issues, and forty-two international academic institutions were contacted (of the responses (n=29), no institution had special ethical guidelines for reviewing HSR) about their HSR ethics review guidelines. There appears to be a clear gap in the current health research ethics discourse around health systems research ethics. This review serves as a first step (to better understand the current status) towards a larger dialogue on the topic.

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Section: Literature Reviewmentioning

confidence: 99%

Section: Literature Reviewmentioning

confidence: 99%