The Relationship between the Sick Role and Functional Ability: One Center's Experience

Cerrato, Annette; Avitable, Matthew; Hayman, Laura L.

doi:10.1177/152692480801800308

Cited by 8 publications

(7 citation statements)

References 16 publications

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“…Denial may serve as a way for transplant candidates to assert themselves [20]. Rejection of the sick role is actually associated with better coping skills in ESRD patients [21]. However, if ESRD patients deny their illness and fail to take steps toward receiving a LDKT, then this rejection and denial may decrease the patients’ chances of receiving a LDKT.…”

Section: Discussionmentioning

confidence: 99%

Inter- and Intrapersonal Barriers to Living Donor Kidney Transplant among Black Recipients and Donors

Davis

Grogan

Cox

et al. 2016

J. Racial and Ethnic Health Disparities

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Context End-stage renal disease (ESRD) is more common among Blacks, but Blacks are less likely to receive a live donor kidney transplant (LDKT). Objective The objective of this study is to identify barriers and coping mechanisms that Black LDKT recipients and donors experienced while receiving or donating a kidney. Design A qualitative study was conducted using structured interviews. Thematic analysis was used for data interpretation. Participants All 20 participants identified as Black, with two participants identifying themselves as multiracial. The mean age for the 14 recipients was 60, and the average age for the 6 living donors was 47. Results Themes emerging from the data suggest both recipients and donors faced barriers in the LDKT experience. Recipients faced barriers associated with their denial and avoidance of the severity of their ESRD, their desire to maintain the privacy of their health status, and their refusal to approach potential donors. Donors encountered negative responses from others about the donors’ desire to donate and the initial refusal of recipients to accept a LDKT offer. Recipients identified faith as a coping mechanism, while donors identified normalization of donation as their method of coping. Various types of social support helped donors and recipients navigate the transplant process. Conclusion Black LDKT recipients and donors must overcome barriers prior to receiving or donating a kidney. Most of these barriers arise from communication and interactions with others that are either lacking or undesirable. Future interventions to promote LDKT among Blacks may benefit by specifically targeting these barriers.

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Section: Discussionmentioning

confidence: 99%

Inter- and Intrapersonal Barriers to Living Donor Kidney Transplant among Black Recipients and Donors

Davis

Grogan

Cox

et al. 2016

J. Racial and Ethnic Health Disparities

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“…The collected data were analyzed using the Diekelmann’s hermeneutical analysis approach. This method has seven stages: (1) examining the text as a whole, (2) summarizing sections of the text and identifying categories, (3) analyzing the text based on categories in step two, (4) identifying relational themes in the text, (5) generating constitutive patterns in the text, (6) validating the analysis by persons not part of the research team but familiar with both textual content and the research method, and (7) preparing the final report using sufficient quotations from the interview to allow for validation of the findings by the reader [14].…”

Section: Methodsmentioning

confidence: 99%

“…Patients have various experiences in the post-transplantation period; they face many changes in the physical and emotional aspects of their life during this period [1, 2]. While patients expect full recovery following the transplantation, soon they understand that they have recovered from a chronic disease, but should adapt with another health issue [3]. In other words, they should fight for survival both before and after the transplantation [4].…”

Section: Introductionmentioning

confidence: 99%

Muslim transplant recipients’ family experiences following organ transplantation

Sheikhalipour

Zamanzadeh

Borimnejad

et al. 2019

Journal of Research in Nursing

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Background Despite the importance of family and its relationship to positive transplant outcomes, little is known about family experiences following organ transplantation from the perspective of the transplant recipients. The literature is also devoid of information that describes the family experiences of Muslim transplant recipients. Aims The purpose of this study was to describe Muslim transplant recipients’ family experiences following organ transplantation. Methods A hermeneutical phenomenological approach was employed to determine the emergent themes present in the data. The sample was composed of 12 Muslim organ transplant recipients (heart, kidney and liver) living in Iran. Semi-structured interviews were conducted with each participant. Results The primary constitutive pattern that emerged from the interview data was ‘Altered Family Relationships’ and three themes: fear in relationships, abnormal relationships, and the family at the centre of organ transplant issues. Conclusions There are several important findings in this study, notably that Muslim transplant recipients describe their family experiences following organ transplantation as ‘altered’ and not as they were pre-transplant. More research is needed that focuses on the family experience post-transplant, and how Muslim transplant recipient families are impacted by the transplant experience.

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“…Still, studies show a high degree of fluctuation in employment status of KTR. In a recent systematic literature review, sociodemographic aspects, physical and psychological comorbidities, as well as factors related to the transplant process, were identified as important determinants of successful employment and RTW in KTRs [22][23][24][25]. More specifically, sociodemographic predictors of RTW included pre-transplant employment [26], type of work [27], shorter unemployment duration after KTx, being married, younger age and higher educational level [7,16,18].…”

Section: Introductionmentioning

confidence: 99%

Employment Status and Associations with Workability, Quality of Life and Mental Health after Kidney Transplantation in Austria

Jordakieva

Grabovac

Steiner

et al. 2020

IJERPH

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Kidney transplantation (KTx) in end-stage renal disease is associated with a significant increase in quality of life (QoL) and self-perceived health, optimally leading to the maintenance of employment or return to work (RTW) in working-age patients. The aim of this study was to assess individual factors including the QoL and mental health of kidney transplant recipients (KTRs) associated with employment after transplantation. A cross-sectional study including working-age patients with a history of KTx after 2012 was conducted at two Austrian study centers (Vienna and Graz). Brief Symptom Inventory (BSI-18), World Health Organization Quality of Life (WHOQOL-Bref) and Workability Index (WAI) were assessed along with detailed questionnaires on employment status. Out of n = 139 KTRs (43.2 ± 9.07 years; 57.6% male), 72 (51.8%) were employed. Employed patients were more frequently in a partnership (p = 0.018) and had higher education levels (p = 0.01) and QoL scores (<0.001). Unemployed KTRs reported fatigue and mental health issues more often (p < 0.001), and had significantly higher anxiety, depression and somatization scores (BSI-18). In unadjusted logistical regression, workability score (WAS; odds ratio (OR) = 3.39; 95% confidence interval (CI) = 1.97–5.82; p < 0.001), partnership (OR = 5.47; 95% CI 1.43–20.91; p = 0.013) and no psychological counseling after KTx (OR = 0.06; 95% CI = 0.003–0.969; p = 0.048) were independently associated with employment. Self-assessed mental health, workability and QoL were significantly associated with employment status after KTx. Thus, in order to facilitate RTW after KTx in Austria, vocational rehabilitation and RTW programs addressing KTRs should focus on increasing social support and care for their mental health.

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The Relationship between the Sick Role and Functional Ability: One Center's Experience

Cited by 8 publications

References 16 publications

Inter- and Intrapersonal Barriers to Living Donor Kidney Transplant among Black Recipients and Donors

Inter- and Intrapersonal Barriers to Living Donor Kidney Transplant among Black Recipients and Donors

Muslim transplant recipients’ family experiences following organ transplantation

Employment Status and Associations with Workability, Quality of Life and Mental Health after Kidney Transplantation in Austria

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