The responsiveness of the ICS<i>male</i> questionnaire to outcome: evidence from the ICS‐‘BPH’ study

Donovan, Jenny; Brookes, Sara; Rosette, J.J.M.H.C. de la; Peters, Tim J.; Porru, Daniele; Kondo, A.; Dabhoiwala, N.F.; Millard, R. J.; Bosch, J.L.H. Ruud; Nordling, Jørgen; Ferreira, A. Matos; Höfner, K.; Mostafid, Hugh; Walter, Steen; Nissenkorn, I; Möller, Carl; Silva, M. Mendes; Chapple, Christopher R.; Abrams, Paul

doi:10.1046/j.1464-410x.1999.00930.x

Cited by 25 publications

(16 citation statements)

References 12 publications

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“…This study builds on the development of other instruments designed to assess LUTS, such as the IPSS (7,11), ICIQ-MLUTS and ICIQ-BFLUTS (8)(9)(10), and DAN-PSS (12,13), which have been widely used in epidemiological studies and clinical trials. Findings from the qualitative research reported here point to both the strengths and the weaknesses of these individual instruments.…”

Section: Discussionmentioning

confidence: 99%

“…This qualitative research is useful to clinicians to understand what patients want when considering treatments for LUTS. ORIGINAL PAPER ª 2010 Blackwell Publishing Ltd Int J Clin Pract, August 2010, 64, 9,[1260][1261][1262][1263][1264][1265][1266][1267][1268][1269][1270][1271][1272][1273][1274][1275][1276][1277][1278] defined by the ICS are 'subjective indicator(s) of disease or change in condition as perceived by the patient, caregiver or partner' (1). Unfortunately, research to evaluate content validity is often given insufficient attention from researchers (4).…”

Section: What's Newmentioning

confidence: 99%

“…Thus, although many of these PRO measures have been widely used in epidemiological research and clinical trials (IPSS, ICIQ-MLUTS ⁄ FLUTS) (5)(6)(7)(8)(9)(10), little is known about how the items correspond to patients' descriptions of their symptoms and how this relates to treatment needs and expectations. To our knowledge, this is the first study to document exploratory qualitative research focusing on emergent descriptions of concepts related to the experience of LUTS from a patient perspective.…”

Section: What's Newmentioning

confidence: 99%

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Assessing patients’ descriptions of lower urinary tract symptoms (LUTS) and perspectives on treatment outcomes: results of qualitative research

Coyne¹,

Sexton²,

Kopp

et al. 2010

International Journal of Clinical Practice

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Summary Aims: Understanding the patient’s experience and symptom descriptions is critical to assess outcomes. Thus, there is a need for qualitative research to better understand how patients describe their symptoms and treatment expectations. Methods: Eight focus groups were conducted in two research phases: Phase 1 focused on eliciting patient’s descriptions of urinary symptoms, and Phase 2 assessed patient perspectives on treatment outcomes. Participants with a range of lower urinary tract symptoms (LUTS) were recruited from urology clinics and community settings in the United States. All interviews were audio recorded and transcribed. Content and descriptive analyses were performed. Results: A total of 33 men and 30 women participated. Mean ages for men and women were 55 and 61 in Phase 1, and 57 and 61 in Phase 2, respectively. About 73% of participants were white people, and most had a high school education or greater. A wide range of LUTS were emergently described, and the words, concepts and phrases were generally similar across groups. Most participants identified with the word ‘bother’, and thought it was important to assess both the frequency and bother of each symptom. Reasons for seeking care included symptom bother and fears about cancer and bladder infections. Most participants thought that a 50% improvement in a single symptom or group of symptoms would be a meaningful treatment outcome. Conclusion: This qualitative research provides a better understanding on how men and women describe their LUTS and their perspectives on treatment outcomes. This research can be used to inform the development of a new LUTS outcomes’ tool.

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Section: Discussionmentioning

confidence: 99%

Section: What's Newmentioning

confidence: 99%

Section: What's Newmentioning

confidence: 99%

See 1 more Smart Citation

Assessing patients’ descriptions of lower urinary tract symptoms (LUTS) and perspectives on treatment outcomes: results of qualitative research

Coyne¹,

Sexton²,

Kopp

et al. 2010

International Journal of Clinical Practice

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“…1,8,12 Focus groups, which typically involve 6-10 people with a common attribute, such as a disease, can have advantages over individual interviews in that descriptions of the patient experience are enriched by participants' responses to the comments of others. 10 Conversely, personal or sensitive topics may be better suited for one-on-one interviews or 40,41 Detailed assessment of male lower urinary tract symptoms and associated bother gender-specific groups. Focus groups and one-to-one interviews should be conducted by moderators with experience in qualitative methods, following a semi-structured interview or discussion guide.…”

Section: Conducting Qualitative Researchmentioning

confidence: 99%

Patient reported outcomes: The ICIQ and the state of the art

Coyne¹,

Kelleher

2010

Neurourology and Urodynamics

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The authors, both ICIQ committee members, debated the title. If the conceptualization of the ICIQ is correct, the PROs recommended by the ICIQ need to be under constant evolution and improvement to ensure the aims of the ICIQ project. A modular questionnaire design, recognized and implemented internationally, would add greatly to the universal inclusion, interpretation and understanding of PRO data in clinical practice and clinical research. However, in order to achieve the goals of the ICIQ project, we must ensure that the scientific quality of PRO development, documentation and validation meets current scientific standards, as well as societal and governmental regulatory guidelines. These topics are discussed along with recommendations for future areas of research and need for the ICIQ committee to explore these issues.

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“…The questionnaire is also responsive, showing sensitivity to expected changes after a range of treatments, i.e. TURP, drug therapies, minimally invasive therapies and watchful waiting [27].…”

Section: The Assessment Of Lutsmentioning

confidence: 99%

The measurement of symptoms, quality of life and sexual function

Donovan

2000

BJU International

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The responsiveness of the ICSmale questionnaire to outcome: evidence from the ICS‐‘BPH’ study

Abstract: The ICSmale questionnaire, in addition to being psychometrically valid and reliable, is responsive to change in outcome.

Cited by 25 publications

References 12 publications

Assessing patients’ descriptions of lower urinary tract symptoms (LUTS) and perspectives on treatment outcomes: results of qualitative research

Assessing patients’ descriptions of lower urinary tract symptoms (LUTS) and perspectives on treatment outcomes: results of qualitative research

Patient reported outcomes: The ICIQ and the state of the art

The measurement of symptoms, quality of life and sexual function

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