The results of a survey about psychosocial care throughout Europe

Teela, Lorynn; Haverman, Lotte; Burgess, Christina; Buckova, Petra; Vandenabeele, Karen; Rooney, Gloria; Torres-Ortuño, Ana

doi:10.1111/hae.14767

Cited by 1 publication

(2 citation statements)

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“…8 However, implementation of such support is highly varied, with MDTs even within a single centre reporting differences in the availability of psychosocial support for PwH. 7,9,10 In the absence of effective monitoring, poor mental health can result in suboptimal selfmanagement of their condition, jeopardizing treatment adherence and clinical outcomes, while risking further deterioration of psychological well-being. 11,12 Awareness of mental health problems and their impact on daily functioning therefore holds relevance not only for any specialist support within a MDT but for all healthcare staff tasked with optimising treatment outcomes.…”

Section: Introductionmentioning

confidence: 99%

“…Monitoring individuals for mental health issues is considered a mainstay for the haemophilia multidisciplinary team (MDT) in holistic care, ensuring maintenance of mental and physical health and preventing escalation 8 . However, implementation of such support is highly varied, with MDTs even within a single centre reporting differences in the availability of psychosocial support for PwH 7,9,10 . In the absence of effective monitoring, poor mental health can result in suboptimal self‐management of their condition, jeopardizing treatment adherence and clinical outcomes, while risking further deterioration of psychological well‐being 11,12 .…”

Section: Introductionmentioning

confidence: 99%

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Anxiety and depression among adults with haemophilia A: Patient and physician reported symptoms from the real‐world European CHESS II study

Ferri Grazzi,

Blenkiron,

Hawes

et al. 2024

Haemophilia

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IntroductionThe physical pain and disability affecting many people with haemophilia A (PwHA) are known detractors from psychological wellbeing. While psychosocial support is considered a core tenet of the haemophilia comprehensive care structure, the extent to which mental health challenges are detected and monitored by the individuals treating haematologist remains relatively unexplored.AimTo describe prevalence of anxiety and depression in a real‐world cohort of adult PwHA and evaluate the congruence in reporting of anxiety or depression (A/D) between PwHA and their treating physicians.MethodsData for PwHA without inhibitors was drawn from the European ‘Cost of Haemophilia: A Socioeconomic Survey II’ (CHESS II) study. Haematologist‐indicated comorbidities of anxiety and depression were unified into a single A/D indicator. The EQ‐5D‐5L health status measure was used to characterise self‐reported A/D, with individuals stratified into two non‐mutually exclusive subgroups based on level of A/D reported (Subgroup A: ‘some’ or above; Subgroup B: ‘moderate’ or above).ResultOf 381 PwHA with evaluable EQ‐5D‐5L responses, 54% (n = 206) self‐reported at least some A/D (Subgroup A) and 17% (n = 66) reported at least moderate A/D (Subgroup B). Patient‐physician congruence in A/D reporting was 53% and 76% for Subgroups A and B, respectively. Descriptive analysis suggested that individuals with physician‐ and/or self‐reported A/D experienced worse clinical outcomes (bleeding events, joint disease, chronic pain).ConclusionWhile adverse clinical outcomes appear to correlate with A/D, self‐reports of moderate–severe symptoms occasionally lacked formal recognition from treating physicians. Cross‐disciplinary surveillance of mental health issues could improve both psychological and clinical outcomes among PwHA.

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