The role of appraisal and coping style in relation with societal participation in fatigued patients with multiple sclerosis: a cross-sectional multiple mediator analysis

Akker, Lizanne Eva van den; Beckerman, Heleen; Collette, Emma H.; Bleijenberg, Gijs; Dekker, Joost; Knoop, Hans; Groot, Vincent de

doi:10.1007/s10865-016-9762-6

Cited by 9 publications

(6 citation statements)

References 61 publications

(98 reference statements)

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“…The results of our study are consistent with other studies that have shown that people’s evaluation of their situation relates to their autonomy in participation [10, 27]. More specifically, our results indicate that perceptions of one’s health condition matter when it comes to social participation and autonomy in participation.…”

Section: Discussionsupporting

confidence: 92%

People with activity limitations’ perceptions of their health condition and their relationships with social participation and experienced autonomy

et al. 2019

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BackgroundPeople with activity limitations participate less in society, which may be due to both societal barriers and personal factors. The aim of this study was to examine the role of one specific personal factor, namely the perceptions that people have of their health condition. We hypothesized that perceptions of more personal control and less negative consequences increase the likelihood of participation in social activities and of experiencing autonomy in participation.MethodsSurvey data of 1681 people with activity limitations participating in a Dutch nationwide panel-study were analyzed by means of logistic and linear regression analyses. Perceptions of the health condition were assessed with the revised Illness Perception Questionnaire (IPQ-R). Social participation was operationalized as doing volunteer work, participating in club activities and meeting friends. Two scales of the Impact on Participation and Autonomy questionnaire were used to assess experienced autonomy regarding participation.ResultsPeople who perceived more personal control over their health condition were more likely to participate in volunteer work (OR = 1.36) and club activities (OR = 1.35). People who believed their condition to be long-lasting were also more likely to do volunteer work (OR = 1.34), whereas people who reported a better understanding of their condition were more likely to frequently meet friends (OR = 1.19). Perceptions of the health condition explained 14% of the variance in experienced autonomy in participation, in addition to the severity of participants’ activity limitations and their age, gender and education level. Especially a belief in more serious consequences, a perception of a long-lasting and less controllable condition, a perception of less understanding of the condition and a greater perceived impact on the emotional state were associated with experiencing less autonomy in participation.ConclusionsPeople with activity limitations who experience less control over their condition participate less in volunteer work and club activities than people who experience more control. Perceptions of the health condition are just as important to explain differences in participation as the severity of people’s activity limitations and their socio-demographic characteristics. Health and social care professionals should pay attention to people’s perceptions, to help people with activity limitations to participate according to their needs, circumstances, and preferences.

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Section: Discussionsupporting

confidence: 92%

People with activity limitations’ perceptions of their health condition and their relationships with social participation and experienced autonomy

et al. 2019

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“…Performance expectancy was assessed with 4 items used by Hennemann et al [35], which we adapted to assess expected outcomes in connection to the perceived usefulness or helpfulness of MS apps. Because social participation is essential for successful adjustment to MS [50], a fifth item was added to the survey (“Using MS apps could help me maintain social contacts.”).…”

Section: Methodsmentioning

confidence: 99%

Acceptance of Mobile Health Apps for Disease Management Among People With Multiple Sclerosis: Web-Based Survey Study

Apolinário-Hagen

Menzel

Hennemann³

et al. 2018

JMIR Formativ Res

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BackgroundMobile health (mHealth) apps might have the potential to promote self-management of people with multiple sclerosis (MS) in everyday life. However, the uptake of MS apps remains poor, and little is known about the facilitators and barriers for their efficient utilization, such as technology acceptance.ObjectiveThe aim of this study was to examine the acceptance of mHealth apps for disease management in the sense of behavioral intentions to use and explore determinants of utilization among people with MS based on the Unified Theory of Acceptance and Use of Technology (UTAUT).MethodsParticipants for this Web-based cross-sectional study were recruited throughout Germany with the support of regional MS associations and self-help groups. To identify determinants of intention to use MS apps, a measure based on the UTAUT was adapted with 4 key determinants (performance expectancy, effort expectancy, social influence, and facilitating conditions) and extended by Intolerance of Uncertainty (IU) and electronic health literacy. Potential influencing effects of both MS and computer self-efficacy (C-SE) as mediators and fatigue as a moderator were analyzed using Hayes’s PROCESS macro (SPSS version 3.0) for IBM SPSS version 24.0.ResultsA total of 98 participants (mean age 47.03 years, SD 10.17; 66/98, 67% female) with moderate fatigue levels completed the survey. Although most participants (91/98, 92%) were daily smartphone users, almost two-thirds (62/98, 63%) reported no experience with MS apps. Overall, the acceptance was moderate on average (mean 3.11, SD 1.31, minimum=1 and maximum=5), with lower scores among persons with no experience (P=.04) and higher scores among current users (P<.001). In multiple regression analysis (R2=63% variance explained), performance expectancy (beta=.41) and social influence (beta=.33) were identified as significant predictors of acceptance (all P<.001). C-SE was confirmed as a partial mediator in the relationship between IU and acceptance (indirect effect: B=−.095, 95% CI −0.227 to −0.01). Furthermore, a moderated mediation by C-SE was shown in the relationship between IU and behavioral intentions to use MS apps for low (95% CI −0.42 to −0.01) and moderate levels (95% CI −0.27 to −0.01) of fatigue.ConclusionsOverall, this exploratory pilot study indicates for the first time that positive expectations about the helpfulness for self-management purposes and social support might be important factors to be considered for improving the acceptance of MS apps among smartphone users with MS. However, given some inconsistent findings, especially regarding the role of effort expectancy and IU and self-efficacy, the conceptual model needs replication with a larger sample of people with MS, varying more in fatigue levels, and a longitudinal assessment of the actual usage of MS apps predicted by acceptance in the sense of behavioral intentions to use.

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“…The mRS comprises a scale ranging from 0 (no symptoms) -5 (a severe disability) (Yuan et al, 2020). The mRS score has been tested to correlate with the severity of acute brain damage and impairment (Tornbom et al, 2018).…”

Section: Multidimensional Scale Of Perceived Social Support (Mspss)mentioning

confidence: 99%

“…Studies on stroke patients have consistently found that individual participation was a powerful predictor of one's quality of life and life satisfaction (Bergstrom et al, 2015;Chou, 2015). Autonomy has been found to be a fundamental precondition for active participation and was described as 'the ability to make choices, to feel in control of which activities to engage in and in what manner these activities are performed' (Tornbom et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

Perceived participation and autonomy post‐stroke and associated factors: An explorative cross‐sectional study

Zhang

et al. 2020

Journal of Advanced Nursing

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Aims To explore the level and associated factors of perceived participation and autonomy among stroke survivors in Shanghai, China. Design Cross‐sectional explorative study. Methods From January to December 2018, 431 patients presenting at the neurology departments of three hospitals with a confirmed diagnosis of stroke were recruited. Impact on Participation and Autonomy Questionnaire, modified Rankin Scale, Self‐efficacy for Managing Chronic Disease six‐item Scale, Medical Coping Modes Questionnaire and Multidimensional Scale of Perceived Social Support were applied to measure their participation, physical function, self‐efficacy, coping styles, and social support. Results The average score of perceived participation and autonomy was 41.30 (SD 21.22); and 54.3%, 46.9%, 21.6%, and 7.7% of the participants reported poor participation in social relations, family role, autonomy indoors, and autonomy outdoors. Age, physical function, self‐efficacy, friend support, and knowledge of stroke were predictors of post‐stroke participation. Physical function and self‐efficacy were the most relevant factors of nearly all domains of participation except autonomy outdoors, while predictors of autonomy outdoors were social support, resignation coping style, and knowledge of stroke. Conclusion The stroke patients experienced insufficient participation compared with previous studies in western countries. Patients' physical function and self‐efficacy were particularly important and contributed to their participation, while the patient's age, perceived social support, coping styles, and knowledge of stroke also played a role in formulating participation. Impact The results may be used to provide nurses with a better understanding of the participation among stroke patients and assist them in promoting the post‐stroke participation. Nurses should pay special attention to those with older age, worse physical function, lower self‐efficacy, less support, little stroke‐related knowledge, or who applied resignation coping style since those patients might experience lower participation in their daily life. It needs further studies to explore the causal effects of self‐efficacy, coping styles, and social support on post‐stroke participation.

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The role of appraisal and coping style in relation with societal participation in fatigued patients with multiple sclerosis: a cross-sectional multiple mediator analysis

Cited by 9 publications

References 61 publications

People with activity limitations’ perceptions of their health condition and their relationships with social participation and experienced autonomy

People with activity limitations’ perceptions of their health condition and their relationships with social participation and experienced autonomy

Acceptance of Mobile Health Apps for Disease Management Among People With Multiple Sclerosis: Web-Based Survey Study

Perceived participation and autonomy post‐stroke and associated factors: An explorative cross‐sectional study

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