The Role of Children with Congenital Anomalies in Generating Parental Depressive Symptoms

Sundus, Ayesha; Siddique, Osama; Ibrahim, Mohammad; Aziz, Sina; Khan, J. A.

doi:10.2190/pm.46.4.c

Cited by 3 publications

(4 citation statements)

References 16 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…When comparing parents of children with congenital anomalies with parents of healthy children, levels similar or exceeding norms of psychiatric outpatients were found of anxiety in 15% versus 7% and of depression in 18% versus 10% [31]. Similarly, clinically important psychological distress has been reported in 30% of parents of children with congenital anomalies versus 21% in parents of healthy children, clinically important state anxiety in 27% versus 14% [30], and moderate or severe depressive symptoms in 27% versus 14%, respectively [33]. Thus overall, parents of children with health conditions have reported higher levels of psychological symptoms than parents of healthy children.…”

Section: Discussionmentioning

confidence: 62%

“…Similarly, clinically important psychological distress has been found in 36% of mothers versus 23% of fathers of children with congenital anomalies [30]. Also, more depressive symptoms have been demonstrated in mothers compared to fathers [33]. Moreover, in general Swedish samples, higher levels of depression and anxiety have been reported in women compared with men [63,64].…”

Section: Discussionmentioning

confidence: 99%

“…Parents of children with gastrointestinal, urological, neurological [30] and cardiac [31,32] malformations may experience various psychological impacts, such as psychological distress [30], anxiety [30][31][32], depressive symptoms [31][32][33] and traumatic stress [30,32,34].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents

et al. 2019

View full text Add to dashboard Cite

Purpose VACTERL association is a rare and complex condition of congenital malformations, often requiring repeated surgery and entailing various physical sequelae. Due to scarcity of knowledge, the study aim was to investigate self-reported health-related quality of life (HRQoL), anxiety, depression and self-concept in children and adolescents with VACTERL association and self-reported anxiety and depression in their parents. Methods Patients aged 8-17 years with VACTERL association and their parents were recruited from three of four Swedish paediatric surgical centres during 2015-2019. The well-established validated questionnaires DISABKIDS, Beck Youth Inventories, Beck Anxiety Inventory and Beck Depression Inventory were sent to the families. Data were analysed using descriptives, t tests and multivariable analysis. Results were compared with norm groups and reference samples. Results The questionnaires were returned by 40 patients, 38 mothers and 33 fathers. The mean HRQoL was M = 80.4, comparable to children with asthma (M = 80.2) and diabetes (M = 79.5). Self-reported psychological well-being was comparable to the norm group of Swedish school children, and was significantly higher than a clinical sample. Factors negatively influencing children's HRQoL and psychological well-being were identified. The parents' self-reports of anxiety and depression were comparable to non-clinical samples. Conclusions Although children and adolescents with VACTERL association reported similar HRQoL to those of European children with chronic conditions, their psychological well-being was comparable to Swedish school children in general. Nevertheless, some individuals among both children and parents were in need of extra support. This attained knowledge is valuable when counselling parents regarding the prognosis for children with VACTERL association.

show abstract

Section: Discussionmentioning

confidence: 62%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents

et al. 2019

View full text Add to dashboard Cite

show abstract

“…The parents must understand and accept the disease and realize that the disease is lifelong. Many studies verify an increasing psychosocial burden on the entire family after a newborn is diagnosed with a chronic disease [11][12][13][14].…”

Section: Introductionmentioning

confidence: 99%

Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

Rautmann

Witt

Theiding

et al. 2023

IJERPH

View full text Add to dashboard Cite

Diagnosing a child by newborn screening with classic congenital adrenal hyperplasia due to 21-hydroxylase deficiency (CAH) causes multiple challenges for the affected parents and the whole family. We aimed to examine the health-related Quality of Life (HrQoL), coping, and needs of parents caring for a child with CAH to develop demand-responsive interventions for improving the psychosocial situation of affected families. In a retrospective cross-sectional design, we assessed HrQoL, coping patterns, and the needs of parents caring for a CAH-diagnosed child using specific questionnaires. Data of 59 families with at least one child diagnosed with CAH were analyzed. The results show that mothers and fathers in this study reached significantly higher HrQoL scores compared to reference cohorts. Decisive for the above-average parental HrQoL were effective coping behaviors and the parental needs being met. These findings verify the importance of helpful coping patterns and rapid fulfillment of parental needs for maintaining a good and stable HrQoL of parents with a child diagnosed with CAH. It is crucial to strengthen the parental HrQoL to build a reasonable basis for a healthy upbringing and improve the medical care of CAH-diagnosed children.

show abstract

Mental Health Outcomes of Mothers of Children With Congenital Gastrointestinal Anomalies Are Similar to Control Mothers: A Longitudinal Retrospective Cohort Study

Urichuk,

Singh,

Zrinyi

et al. 2024

Journal of Pediatric Surgery

View full text Add to dashboard Cite

The Role of Children with Congenital Anomalies in Generating Parental Depressive Symptoms

Abstract: The parents of children with anomalies (60.6%) had more depressive symptoms than parents of normal children (27.3%).

Cited by 3 publications

References 16 publications

Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents

Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents

Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

Mental Health Outcomes of Mothers of Children With Congenital Gastrointestinal Anomalies Are Similar to Control Mothers: A Longitudinal Retrospective Cohort Study

Contact Info

Product

Resources

About