The Role of Health care Professionals in the Decision-Making Process of Family Caregivers Regarding Placement of a Cognitively Impaired Elderly Relative

Couture, Mélanie; Ducharme, Francine; Lamontagne, Julie

doi:10.1177/1084822312442675

Cited by 20 publications

(28 citation statements)

References 24 publications

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“…Our results indicate that caregivers' needs for support are often not met. Moreover, caregivers appreciated it when a health care professional could act as a decision coach, 21,25,38,39 which indicates that involving all parties in decision making and training them in decision-making support are promising future directions. 21…”

Section: Discussionmentioning

confidence: 99%

A Synthesis Of Knowledge About Caregiver Decision Making Finds Gaps In Support For Those Who Care For Aging Loved Ones

Garvelink

Ngangue

Adekpedjou³

et al. 2016

Health Affairs

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We conducted a mixed-methods knowledge synthesis to assess the effectiveness of interventions to improve caregivers' involvement in decision making with seniors, and to describe caregivers' experiences of decision making in the absence of interventions. We analyzed forty-nine qualitative, fourteen quantitative, and three mixed-methods studies. The qualitative studies indicated that caregivers had unmet needs for information, discussions of values and needs, and decision support, which led to negative sentiments after decision making. Our results indicate that there have been insufficient quantitative evaluations of interventions to involve caregivers in decision making with seniors and that the evaluations that do exist found few clinically significant effects. Elements of usual care that received positive evaluations were the availability of a decision coach and a supportive decision-making environment. Additional rigorously evaluated interventions are needed to help caregivers be more involved in decision making with seniors.

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Section: Discussionmentioning

confidence: 99%

A Synthesis Of Knowledge About Caregiver Decision Making Finds Gaps In Support For Those Who Care For Aging Loved Ones

Garvelink

Ngangue

Adekpedjou³

et al. 2016

Health Affairs

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“…Particularly, since we have some evidence suggesting that informal caregivers appreciate support offered by formal care during the decision process. 2,39 By exploring the reasons for institutionalization according to informal caregivers themselves, this study offers some understanding of their reasoning regarding the motives for institutionalization.…”

Section: Discussionmentioning

confidence: 99%

Reasons for Institutionalization of People With Dementia: Informal Caregiver Reports From 8 European Countries

Afram¹,

Stephan

Verbeek³

et al. 2014

Journal of the American Medical Directors Association

184

146

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Objectives:To explore reasons for institutionalization of people with dementia according to informal caregivers as well as variation in reasons between countries.Design: An explorative cross-sectional study was conducted in eight European countries. Setting:Per country a minimum of three long-term care facilities, offering care and accommodation as a package, participated in this study. Participating countries were selected to represent different geographic areas in Europe. Participants:Of the 791 informal caregivers involved in the RightTimePlaceCare project of people with dementia who were recently admitted to a long-term care facility, 786 were included for this study. Measurements:As part of a semi-structured interview, informal caregivers were asked the main reason for institutionalization in an open-ended question. Answers were categorized according to a conventional coding approach. All reasons were then quantified and tested. Results:Mainly patient related reasons were stated, such as neuropsychiatric symptoms (25%), care dependency (24%) and cognition (19%). Neuropsychiatric symptoms were among the most often mentioned reasons in the majority of countries. Beside patient related reasons, caregiver burden and the inability of the informal caregiver to care for the patient were stated as reasons (both 15%). Further analyses showed countries differ significantly in reasons according to informal caregivers. Additionally, reasons were analysed for spouses and child-caregivers, showing that spouses more often stated reasons related to themselves compared to child-caregivers. Conclusion:Multiple reasons contribute to the institutionalization for people with dementia, with several factors that may influence why there were country differences. Variation in the organization of dementia care and cultural aspects, or the relationship between the informal caregiver and person with dementia may be factors influencing the reasons. Because of a wide variation in reasons between countries, no one-size-fits-all approach can be offered to guide informal caregivers when facing the possibility of institutionalization of the person with dementia.

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“…, Couture et al . ), addressing the issue of admission can be a starting point in the process of guidance and collaboration. Making informal caregivers aware and conscious about a possible upcoming care transition could make this process smoother.…”

Section: Discussionmentioning

confidence: 99%

Predicting institutional long‐term care admission in dementia: a mixed‐methods study of informal caregivers’ reports

Afram

Verbeek

Bleijlevens

et al. 2014

Journal of Advanced Nursing

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The Role of Health care Professionals in the Decision-Making Process of Family Caregivers Regarding Placement of a Cognitively Impaired Elderly Relative

Cited by 20 publications

References 24 publications

A Synthesis Of Knowledge About Caregiver Decision Making Finds Gaps In Support For Those Who Care For Aging Loved Ones

A Synthesis Of Knowledge About Caregiver Decision Making Finds Gaps In Support For Those Who Care For Aging Loved Ones

Reasons for Institutionalization of People With Dementia: Informal Caregiver Reports From 8 European Countries

Predicting institutional long‐term care admission in dementia: a mixed‐methods study of informal caregivers’ reports

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