The Role of Hope with Psychological Adjustment and Quality of Life in a Pediatric Cancer Population

Germann, Julie N.; Stewart, Sunita M.; LeVieux, Jane; Fribley, Corinne; Stuenzi, Thomas; Leavey, Patrick J.

doi:10.1097/01.dbp.0000390270.72917.c7

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“…The current research highlighted the importance of implementing evidence-based practice that enhance cognitivemotivational strengths, such as hope, with the goal of assisting adolescents in coping more adequately with their illness and any associated adverse experiences. The hope intervention proposed by Snyder [38] based on problem-solving, narratives, and motivational interviewing [38] may be effective in developing evidence-based therapies to aid adolescents dealing with thalassemia [39]. These findings suggest that future research should focus on the effect of hope on the quality of life of adolescents with thalassemia and their families.…”

Section: Discussionmentioning

confidence: 90%

Hope and Quality of Life among Adolescent with Thalassemia: A Cross-sectional Study in Indonesia

Mardhiyah

Mediani²,

Panduragan³

et al. 2022

Open Access Maced J Med Sci

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Background: Adolescents with thalassemia major had a worse quality of life (QOL) than healthy adolescents. Hope is considered as a protective factor to enhance QOL. The relationship between hope and quality of life in adolescents has been evaluated in various chronic diseases, across multiple countries, cultures, and settings. However studies on exploring the relationship between hope and QOL among adolescents with thalassemia are limited, especially in Indonesia. Objectives: This study aimed to determine the relationship between hope and QOL among adolescents with thalassemia in Indonesia. Methods: A cross-sectional study was carried out from April to Juni 2021. The respondents in this study were 120 adolescents who met the criteria (1) they were teenagers (10-19 years old) who received regular blood transfusions, (2) they could write and read, (3) adolescents who are not mentally retarded. Instruments include demographic data sheets, Child Hope Scale (CHS), and TranQOL. Data were analysis using the Pearson correlational test and multiple regression hierarchical analysis. Results: This study found that 65 (54.17%) were boys, and 55 (45.83%) were girls. About 64.17% had transfusion period for once in 2 - 4 weeks, and 4.17% with comorbidity, and 77.5% having hemoglobin 7 mg/dl. The mean QOL score among adolescents with thalassemia was 47.82 (SD=15.38). Hope and TranQOL scores were positively and strongly associated (r = 0.463, p<0.01). After adjusting for demographic and clinical factors, this finding revealed that hope was significantly and positively associated with QOL in step two. Hope had a significant impact on thalassemic adolescents' QOL (R2 = 0.371, R2 change = 0.239) Conclusion: Hope is a factor that is related and greatly influences the quality of life of thalassemia survivors so that the development of programs and policies that design the expectations of thalassemia survivors and their families will improve the quality of life of patients with thalassemia.

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Section: Discussionmentioning

confidence: 90%