The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease

Schiele, Steven E.; Emery, Charles F.; Jackson, Jamie L.

doi:10.1016/j.hrtlng.2018.10.026

Cited by 12 publications

(6 citation statements)

References 43 publications

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“…In this study, the average score of the disease uncertainty in patients after a PCI was 79.83±14.05, it was generally at a moderate level (Table 2); more than one third of the patients were in a state of high uncertainty, which is consistent with the findings of multiple studies (25)(26)(27)(28). The main sources of disease uncertainty among patients are as follows.…”

Section: Analysis Of the Current Situation And Causes Of Uncertainty ...supporting

confidence: 85%

Illness uncertainty and its associated factors in coronary heart disease patients with heart stent implantation: a cross-sectional study

Xia¹,

Yu²,

Wu³

2022

Ann Palliat Med

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Background: The purpose of this study was to investigate the illness uncertainty and its influencing factors in patients after heart stent implantation, and to explore the relationship between uncertainty of disease, selfmanagement behavior of coronary heart disease and quality of life after stenting. Methods:A cross-sectional study of 168 patients with cardiac stent implantation on illness uncertainty in a tertiary hospital in Shanghai. The General Information Questionnaire and the Mishel's Uncertainty in Illness Scale (MUIS) was used to measure the uncertainty of disease in patients after coronary stenting, and the Coronary Self-Management Scale (CSMS) and Quality of Life Scale (SF-36) were collected, using Pearson's method for correlation analysis. The indicators with significant statistical differences in univariate analysis were included, and the factors affecting patients' perception of disease uncertainty were analyzed by stepwise regression fitting multiple linear regression equations. Results:The study showed that the mean score for disease uncertainty was 79.83±14.05 out of 160 points.By the multiple stepwise linear regression analysis, the results showed that subjective symptom improvement, follow-up with nurses after discharge, care and support from family members after discharge, quality of the quantity of stents, guidance and support from nurses during hospitalization, and educational level had a significant impact on the total uncertainty score, and were the most important factor of patient illness uncertainty. In patients with coronary heart disease, uncertainty was moderately negatively correlated with self-management ability (P<0.05, r=−0.636), and highly negatively correlated with overall quality of life scores (P<0.05, r=−0.857).Conclusions: Overall, patients with coronary stents had moderate disease uncertainty, suggesting that uncertainty is common among patients after cardiac stenting. In order to improve the uncertainty of disease in patients after with heart stent implantation, (especially for patients with a large number of implanted stents), family members should give sufficient care; doctors and nurses should provide patients with adequate health education, assist patients in establishing healthy behaviors, and strengthen its self-management ability, thereby reducing the patient's sense of uncertainty, thereby improving the long-term prognosis and the patient's quality of life.

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Section: Analysis Of the Current Situation And Causes Of Uncertainty ...supporting

confidence: 85%

Illness uncertainty and its associated factors in coronary heart disease patients with heart stent implantation: a cross-sectional study

Xia¹,

Yu²,

Wu³

2022

Ann Palliat Med

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“…Moreover, they were positively correlated to psychological maladjustment specially with anxiety and stress. Several medical studies from a wide range of diseases, emphasized that perceived knowledge level is a well-known risk factor of worries and anxiety in patients [58][59][60]. Li et al [20], Lin [61] and Maekelae et al [62] confirmed the trend for COVID-19: higher perceived knowledge level was related to higher worries, anxiety, and distress.…”

Section: Discussionmentioning

confidence: 99%

Emerging Adults and COVID-19: The Role of Individualism-Collectivism on Perceived Risks and Psychological Maladjustment

Germani

Buratta

Delvecchio

et al. 2020

IJERPH

223

206

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The outbreak of the coronavirus disease 2019 (COVID-19) has dramatically changed our habits and routines. Uncertainty, insecurity, instability for the present and future, and reduced autonomy and self-directedness, are common feelings at the time of COVID-19. These aspects are very important during emerging adulthood. In spite of the fact that medical reports suggest that youth are less prone to experience COVID-19 infections, emerging adults might be at higher risk for their psychological adjustment. Emerging adults showed higher concerns about their role as a possible asymptomatic carrier than being positive with COVID-19 themselves. Both worries and concerns about COVID-19 and psychological maladjustment may be related to cultural factors. Individualism, collectivism, equality, and hierarchy seem to be meaningful perspectives to take into account. A total of 1183 Italian emerging adults were asked to fill out an online survey during the second week of the national lockdown in Italy. Results showed they reported an accurate perceived knowledge about COVID-19. At the same time, they showed higher worries and concerns about COVID-19 for their relatives, followed by more general/social worries. The lowest score included worries about COVID-19 related to themselves. State anxiety and stress levels were above the normal cutoff, confirming the challenges that emerging adults are facing during the pandemic. On one hand, emerging adults’ collectivistic orientation was related to higher perceived risks of infection; on the other hand, it predicted lower psychological maladjustment, controlling for socio-demographic variables. The study suggests that to fight the COVID-19 pandemic and decrease levels of psychological maladjustment in emerging adulthood, individuals’ cultural orientation such as the wish of sharing common goals with others, interdependence, and sociability, have to be emphasized and promoted as protective factors.

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“…Their uncertainty was significantly increased by recurrent fever, dyspnoea and unexpected CT results indicating ground‐glass lung markings. Research on of illness‐related uncertainty among patients showed that uncertainty could negatively influence physical health and directly and indirectly impact mental health through avoidant coping strategies in chronic diseases (Ni et al, 2018; Schiele et al, 2019; Zhang et al, 2018). In this study, as health care workers, participants were particularly worried about treatment‐related side effects and discomfort.…”

Section: Discussionmentioning

confidence: 99%

When health care workers became patients with COVID‐19: A qualitative study

Liu

Chen

et al. 2021

Int J of Nursing Practice

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Aims This study aimed to describe the experiences of nurses and other health care workers who were infected with coronavirus disease 2019. Methods An empirical phenomenological approach was used. Sixteen participants were recruited in Wuhan using purposive and snowball sampling. Semistructured, in‐depth interviews were conducted by telephone in February 2020. Interviews were transcribed verbatim and analysed following Colaizzi's method. Results Two themes emerged: (1) Intense emotional distress since becoming infected. Participants were fearful of spreading the virus to family and overwhelmed by a lack of information, experienced uncertainty and worried about treatment, felt lonely during isolation and reported moral distress about inadequate health care staffing. (2) Coping strategies were needed. They tried their best to address negative psychological reactions using their professional knowledge and gaining support from others and community resources. Conclusions Preparedness for catastrophic events and providing timely and accurate information are major considerations in government policy development, related to pandemics and adequacy of health care personnel. Mental health resources and support, both short‐ and long‐term should be anticipated for health care providers to alleviate their fear and anxiety.

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The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease

Cited by 12 publications

References 43 publications

Illness uncertainty and its associated factors in coronary heart disease patients with heart stent implantation: a cross-sectional study

Illness uncertainty and its associated factors in coronary heart disease patients with heart stent implantation: a cross-sectional study

Emerging Adults and COVID-19: The Role of Individualism-Collectivism on Perceived Risks and Psychological Maladjustment

When health care workers became patients with COVID‐19: A qualitative study

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