The role of occupational therapy in dementia?C.O.P.E. (Caregiver Options for Practical Experiences)

Miller, Patricia A.; Butin, Danielle N.

doi:10.1002/(sici)1099-1166(200001)15:1<86::aid-gps124>3.0.co;2-8

Cited by 32 publications

(22 citation statements)

References 12 publications

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“…When occupational therapy targets caregivers the purpose is to reduce burden of the caregivers by increasing their ability to handle problematic behaviors and their sense of competence [51,52].…”

Section: Study Classificationmentioning

confidence: 99%

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Vandepitte

Noortgate

Putman

et al. 2016

JAD

107

118

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Abstract.Background: Dementia is known as a major public health problem affecting both patients and caregivers, and placing a high financial strain upon society. In community-dwelling patients, it is important to support informal caregivers in order to help them sustain their demanding role. Previous reviews about effectiveness of such supporting strategies often included a small number of studies, focused only on particular supportive types, particular outcomes, or solely on caregivers. Objective: A general systematic review was conducted investigating effectiveness of different supportive strategies on at least the well-being of the caregiver or the care-recipient. Methods: A systematic literature search was conducted in Web of Science and PubMed. An adapted version of the Downs and Black (1998) checklist was used to assess methodological quality. A new classification was developed to group different types of caregiver support. Results: Fifty-three papers met the inclusion criteria. Although 87% of the interventions were to some extent effective, methods and findings were rather inconsistent. Psychoeducational interventions generally lead to positive outcomes for caregivers, and delay permanent institutionalization of care-recipients. Cognitive behavioral therapy decreases dysfunctional thoughts among caregivers. Occupational therapy decreases behavioral problems among patients and improves self-efficacy of caregivers. In general, those interventions tailored on individual level generate better outcomes. Comparative research on respite care was very rare. Conclusions: Despite methodological inconsistency, supporting caregivers appears to be an effective strategy often improving well-being of caregiver or care-recipient and resulting in additional benefits for society. However, there is a need for more research on the (cost)-effectiveness of respite care.

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Section: Study Classificationmentioning

confidence: 99%

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Vandepitte

Noortgate

Putman

et al. 2016

JAD

107

118

View full text Add to dashboard Cite

show abstract

“…Health care professionals and researchers alike have placed great value on the idea that activity can be beneficial for persons with dementia (BazanSalazar, 2005;Dowling, 1995;Nolan, Ryan, Enderby, & Reid, 2002). However, critical reviews of the literature have indicated that there is limited conceptual development and empirical support to confirm this position (Miller & Butin, 2000;Occupational Therapy Evidence-Based Practice Research Group, 1999). Since the time of these Correspondence: Alison Phinney, School of Nursing, University of British Columbia, T201-2211 Wesbrook Mall, Vancouver, BC V6T 2B5, Canada.…”

Section: Meaningful Activity In Dementiamentioning

confidence: 99%

“…Moreover, most of this research has been conducted in formal care settings with severely impaired individuals, even though the majority of people with dementia live in their own home. Therefore, how people with less advanced disease engage in activities, and how they perceive the significance of this involvement, remain important gaps in current knowledge (Miller & Butin, 2000).…”

Section: Meaningful Activity In Dementiamentioning

confidence: 99%

Doing as much as I can do: The meaning of activity for people with dementia

Phinney

Chaudhury

O’Connor

2007

Aging & Mental Health

270

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While it is assumed that persons with dementia benefit from being involved in meaningful activity, research examining this claim is limited. In particular, how individuals with dementia perceive this involvement is poorly understood. Therefore, the purpose of this research is to determine what constitutes meaningful activity from the perspective of persons with dementia, and to explore how they perceive its significance in their lives. We conducted an interpretive phenomenological analysis of multiple interviews and participant observation conducted with eight community-dwelling elders with mild to moderate dementia. For several participants, the single most important driving force in their lives was being active, doing as much as they possibly could. They were involved in a wide range of activities including leisure pastimes, household chores, work-related endeavors, and social involvements. These activities were meaningful in three ways: Through their involvement, participants experienced feelings of pleasure and enjoyment; felt a sense of connection and belonging; and retained a sense of autonomy and personal identity. Findings suggest that familiarity of the social and physical environment promotes involvement in activities. This provides a sense of continuity for people with dementia, with implications for their quality of life and personhood. Further implications of these findings for dementia care and future research are discussed.

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“…Several occupational therapy researchers have developed and disseminated interventions to improve caregiver quality of life, self-rated health and self-effi cacy (Bradford et al, 2001;Gitlin et al, 2001Gitlin et al, , 2003Miller and Butin, 2000). Nevertheless, published interventions targeting caregivers of middle-aged and older adults with MS could not be located.…”

Section: Introductionmentioning

confidence: 99%

Retracted: Development of an education programme for caregivers of people aging with multiple sclerosis

Finlayson

Garcia

Preissner

2008

Occupation Therapy Intl

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This paper describes a three-phase project to identify and develop an occupational therapy response to the challenges experienced by caregivers of middleaged and older adults with multiple sclerosis (MS). Three hundred and two caregivers of middle-aged and older adults with MS were interviewed by telephone to identify the caregiving challenges they experienced in phase 1. A total of eight challenges were identifi ed, with the four most prevalent ones including fi nding and using formal support services, managing the emotional aspects of caregiving, doing the physical aspects of caregiving, and dealing with informal supports. In phase 2, a comprehensive literature review was conducted to identify existing caregiver education programmes that could be used to address these challenges. None of the 21 programmes that were located addressed all of the challenges identifi ed through the phase 1 interviews. In response, a new fi ve-session psycho-educational group programme entitled 'Meeting the Challenges of MS' was developed in phase 3. The programme was empirically grounded in phase-1 fi ndings, and drew on theory to guide group process and sequencing. The fi ndings from this study and the resulting programme cannot be generalized to caregivers of younger adults with MS, although the steps taken to develop this programme have the potential for replication with this population and others served by occupational therapists.R e t r a c t e d R e t r a c t e d Finlayson et al. R e t r a c t e d R e t r a c t e d client groups. With the fi eld's growing emphasis on evidence-based practice, there remains a need to provide documentation and theory to support clinical practice -including programme development.

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The role of occupational therapy in dementia?C.O.P.E. (Caregiver Options for Practical Experiences)

Cited by 32 publications

References 12 publications

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Doing as much as I can do: The meaning of activity for people with dementia

Retracted: Development of an education programme for caregivers of people aging with multiple sclerosis

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