The role of research for sustainable paediatric cardiac programmes in developing countries

Mavroudis, Constantine; Jacobs, Jeffrey P.; Siegel, Allison

doi:10.1017/s1047951112001989

Cited by 8 publications

(4 citation statements)

References 14 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…51 Research is paramount in order to ensure that pediatric hospitals can generate solutions to local problems, train local clinical experts, improve cost effectiveness of CHD treatment, and develop locally-sourced technology. 52,53 The World Society for Pediatric and Congenital Heart Surgery encourages basic and clinical research in CHD across the world to form worldwide databases and increase collaboration between health care workers of different nations. This in turn can aid in knowledge transfer of solutions for health care accessibility issues.…”

Section: Importance Of Research For Solutions To Health Care Barriersmentioning

confidence: 99%

Barriers to Accessing Congenital Heart Surgery in Low- and Middle-Income Countries: A Systematic Review

Cheng,

Heo,

Joos

et al. 2023

World J Pediatr Congenit Heart Surg

View full text Add to dashboard Cite

Background Congenital heart disease (CHD) is the most common major congenital anomaly. Ninety percent of children with CHD are born in low- and middle-income countries (LMICs), where over 90% of patients lack access to necessary treatments. Reports on barriers to accessing CHD care are limited. Accordingly, it is difficult to design evidence-based interventions to increase access to congenital cardiac surgical care in LMICs. Objective We performed a qualitative systematic review to understand barriers to accessing congenital cardiac surgical care in LMICs. Methods We conducted a search of Ovid MEDLINE and CINAHL databases to identify relevant articles from January 2000 to May 2021. We then used a thematic analysis to summarize qualitative data into a framework of preoperative, perioperative, and postoperative barriers. Results Our search yielded 1,585 articles, of which 67 satisfied the inclusion criteria. Notable preoperative barriers included delayed diagnosis, insufficient caregiver education, financial constraints, difficulty reaching treatment centers, sociocultural stigma of CHD, sex-based discrimination of patients with CHD, and Indigeneity. Perioperative barriers included lack of hospital resources and workforce, need for prolonged hospitalization, and strained physician–patient relationships. Many patients faced barriers postoperatively and into adulthood due to a shortage of critical care resources, inadequate caregiver counseling and patient education, lack of follow-up, and debt from hospital bills and missed work. Conclusion Reducing neonatal and childhood mortality begins with recognizing barriers to accessing health care. Our systematic review identifies and classifies challenges in accessing CHD in LMICs and suggests solutions to major barriers.

show abstract

Section: Importance Of Research For Solutions To Health Care Barriersmentioning

confidence: 99%

Barriers to Accessing Congenital Heart Surgery in Low- and Middle-Income Countries: A Systematic Review

Cheng,

Heo,

Joos

et al. 2023

World J Pediatr Congenit Heart Surg

View full text Add to dashboard Cite

show abstract

“…1 Bioethical controversies have been widely recognised in patients with congenital cardiac disease over the years. [2][3][4] These controversies include, but are not limited to [5][6][7][8][9][10][11][12][13][14][15][16][17][18] :…”

Section: Introductionmentioning

confidence: 99%

“…• Unintended Consequences of Public Reporting, 5 • Ethics of Databases, 6 • Surgical Innovation, 7 • Congenital Heart Surgery in Patients with Syndromic Abnormalities, 8,10,18 • Informed Consent, 9,16 • Post-Cardiotomy Extracorporeal Membrane Oxygenation (ECMO), 11 • Ethics of research in general, 12,13 • Ethical issues associated with rare and expensive medical conditions, The role of discussion, debate, and inquiry is to offer informed deliberation that can be processed by the readership and allow a venue for continued thought and debate.…”

Section: Introductionmentioning

confidence: 99%

Bioethics Forum of Cardiology in the Young. Quo Vadis?

Mavroudis

Jacobs

2022

Cardiol Young

Self Cite

View full text Add to dashboard Cite

The Editorial Board of Cardiology in the Young has recently discussed the need for a Bioethics Forum and has given authorisation to proceed with its creation. Herein, we provide the organisational structure and launch process to introduce properly this interesting and timely endeavour. By this communication, we are establishing this Bioethics Forum of Cardiology in the Young . We hope to attract manuscripts concerning timely bioethical subjects and to offer the readership the opportunity to respond to these topics with supporting or opposing views as appropriate. New articles regarding timely topics will be written by the readership, as well as by invited authors, and these articles will be published. We hope to stimulate interactive discussion concerning the published manuscripts, and these manuscripts and the associated discussions will be open to all interested parties.

show abstract

“…En 2015 se reportó que 20,8 % de los niños menores de cinco años con cardiopatías congénitas fallecieron a causa de estas alteraciones. A pesar de que la prevalencia es cercana a 150 por millón de habitantes, solo se intervienen 52 casos por millón (3)(4)(5).…”

Section: Introductionunclassified

Caracterización de cardiopatías congénitas en Manizales 2010-2016

et al. 2020

View full text Add to dashboard Cite

Las cardiopatías congénitas son la tercera causa de malformaciones congénitas y una de las principales responsables de la mortalidad en periodo neonatal en el mundo; se originan a partir de alteraciones en el desarrollo embrionario. La incidencia es variable; en Colombia, se estima que afectan del 2 al 3 % de los recién nacidos vivos. En 2015, 20,8 % de los niños menores de cinco años afectados con cardiopatías congénitas fallecieron a causa de estas alteraciones. El presente es un estudio descriptivo y retrospectivo. Se incluyeron los datos de 252 historias clínicas de pacientes con diagnóstico de cardiopatía congénita entre los años 2010 y 2016, el 56 % de la población encontrada fue de sexo femenino. Predominaron las cardiopatías congénitas no cianosantes (87 %). La mayor revalencia fue el ductus arterioso permeable (35,3 %). La ecocardiografía Doppler se utilizó en 98,4 % de los casos; con respecto al manejo, el 47,2 % de los pacientes estuvieron en seguimiento, siendo este más común que las alternativas médicas o quirúrgicas. En conclusión, el ductus arterioso permeable, la comunicación interventricular y la comunicación interatrial son las cardiopatías no cianosantes más frecuentes en la población estudiada y se asocian a hipertensión pulmonar que ameritan mayor seguimiento. La tetralogía de Fallot fue la cardiopatía congénita cianosante más común.

show abstract

The role of research for sustainable paediatric cardiac programmes in developing countries

Cited by 8 publications

References 14 publications

Barriers to Accessing Congenital Heart Surgery in Low- and Middle-Income Countries: A Systematic Review

Barriers to Accessing Congenital Heart Surgery in Low- and Middle-Income Countries: A Systematic Review

Bioethics Forum of Cardiology in the Young. Quo Vadis?

Caracterización de cardiopatías congénitas en Manizales 2010-2016

Contact Info

Product

Resources

About