The Role of Sensory Changes in Everyday Technology use by People with Mild to Moderate Dementia

Dixon, Emma; Lazar, Amanda

doi:10.1145/3373625.3417000

Cited by 26 publications

(24 citation statements)

References 98 publications

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“…In cases of exploring new or understudied design spaces, proxies are often well-positioned to provide initial inputs. For example, researchers have successfully sought additional help from a variety of practitioners in probing sensory changes and everyday technology use by people with dementia [20]. On the other hand, involving proxies is challenging and might risk replacing or supplanting the participants' voices with the proxies' opinions, as noted in previous works such as [4,13,46].…”

Section: Proxies In Assistive Technology Researchmentioning

confidence: 99%

Surfacing the Voices of People with Dementia: Strategies for Effective Inclusion of Proxy Stakeholders in Qualitative Research

Dai

Moffatt

2021

Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems

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Best practices for conducting HCI research on dementia care increasingly involve multiple stakeholders and incorporate diverse viewpoints. When done effectively, involving proxy stakeholders such as family members and professionals can help bring forward the voices of people with dementia. However, concrete practical guidance for navigating the challenges of integrating different perspectives is lacking. We critically reflect on our own recent qualitative fieldwork involving participants with dementia, family caregivers, and facilitators at a local social program for people with dementia, re-examining our interview transcripts and observation notes through content analysis. We illustrate practical approaches to prioritizing participants' voices through concrete excerpts that demonstrate strategies for better managing dynamics, intervening effectively, and engaging all stakeholders in the research process. Our reflections and proposed guidelines can benefit HCI researchers and practitioners working with vulnerable populations. We hope this work will spur further discussion and critique to strengthen and improve research practices in this domain.CCS Concepts: • Human-centered computing → Empirical studies in HCI.

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Section: Proxies In Assistive Technology Researchmentioning

confidence: 99%

Surfacing the Voices of People with Dementia: Strategies for Effective Inclusion of Proxy Stakeholders in Qualitative Research

Dai

Moffatt

2021

Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems

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“…Clinical researchers have begun to identify the sensory changes that people with age-related cognitive changes can experience that are unique to the normal process of aging [5,53,85,96,105,107]. Our prior work, published at the 2020 ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '20), described three strategies people with dementia and healthcare professionals who work with people with dementia used to overcome sensory changes associated with dementia, including: stimulating at a desired level, adjusting technologies using built-in settings, and switching devices [28]. When these strategies were inadequate, participants ceased to use devices that were inaccessible [28].…”

Section: Introductionmentioning

confidence: 99%

“…Our prior work, published at the 2020 ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '20), described three strategies people with dementia and healthcare professionals who work with people with dementia used to overcome sensory changes associated with dementia, including: stimulating at a desired level, adjusting technologies using built-in settings, and switching devices [28]. When these strategies were inadequate, participants ceased to use devices that were inaccessible [28]. The primary contribution of our past work included an understanding of technological accommodation strategies that are useful for people with dementia, evidence for the interrelationship between sensory stimulation and comprehension for those living with dementia, and new directions for technology design in this space [28].…”

Section: Introductionmentioning

confidence: 99%

“…When these strategies were inadequate, participants ceased to use devices that were inaccessible [28]. The primary contribution of our past work included an understanding of technological accommodation strategies that are useful for people with dementia, evidence for the interrelationship between sensory stimulation and comprehension for those living with dementia, and new directions for technology design in this space [28].…”

Section: Introductionmentioning

confidence: 99%

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Understanding How Sensory Changes Experienced by Individuals with a Range of Age-Related Cognitive Changes Can Affect Technology Use

Dixon

Anderson

Lazar

2022

ACM Trans. Access. Comput.

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Clinical researchers have identified sensory changes people with age-related cognitive changes, such as dementia and mild cognitive impairment, experience which are different from typical age-related sensory changes. Technology designers and researchers do not yet have an understanding of how these unique sensory changes affect technology use. This work begins to bridge the gap between the clinical knowledge of sensory changes and technology research and design through interviews with people with mild to moderate dementia, mild cognitive impairment, subjective cognitive decline, and healthcare professionals. This extended version of our ASSETS conference paper includes people with a range of age-related cognitive changes describing changes in vision, hearing, speech, dexterity, proprioception, and smell. We discuss each of these sensory changes and ways to leverage optimal modes of sensory interaction for accessible technology use with existing and emerging technologies. Finally, we discuss how accessible sensory stimulation may change across the spectrum of age-related cognitive changes.

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“…Social robotics applications are increasingly being addressed as solutions to the challenges of demographic change in aging societies [1][2][3][4]. In the field of care of older persons, the focus is on approaches that aim to alleviate social problems, thus promoting social interactions of people that have cognitive issues, supporting communication between caregivers and care recipients, and usage as therapeutic tools to promote emotional well-being or the preservation of cognitive, emotional, and physical abilities [5][6][7][8][9][10][11][12].…”

Section: Introductionmentioning

confidence: 99%

"That's Something for Children"

Paluch

Müller

2022

Proc. ACM Hum.-Comput. Interact.

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Robotic systems are increasingly seen as possible technical aids against the background of demographic change and the associated pressures on care systems, with increasing numbers of care recipients and a decreasing number of trained caregivers. In human-computer interaction and computer-supported cooperative work, different design paradigms are currently being pursued to explore which features and appearances are favorable for meaningful interactions of humans with robotic systems. One such approach, labeled as "otherware", proposes to conceptualize robots beyond a naive anthropomorphism or zoomorphism, rather developing the idea of a figure that goes beyond the dichotomy between "being alive" and "being a technical artefact". We present an ethnographic study on the perceptions, attitudes, and practices of care attendants and nursing-home residents in their experimenting with off-the-shelf robotic cats and dogs. The three-week study shows specific appropriation practices of the robotic pets, and how the care attendants - partly together with the residents - define their experiences of the robotic pets, i.e., in which situations the robotic pets are considered either as living beings or as technology toys. The study provides practice-based insights into how possible uses of robotic pets could be meaningfully integrated into care practices, but also which ethical reflections were discussed during their use. Finally, this ethnographic study functioned as a collaborative learning process between researchers, care attendants, and residents, and thus also points out possible aspects that arose with regard to future learning spaces of professional and organizational development for dealing with innovative technologies in residential care contexts.

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The Role of Sensory Changes in Everyday Technology use by People with Mild to Moderate Dementia

Cited by 26 publications

References 98 publications

Surfacing the Voices of People with Dementia: Strategies for Effective Inclusion of Proxy Stakeholders in Qualitative Research

Surfacing the Voices of People with Dementia: Strategies for Effective Inclusion of Proxy Stakeholders in Qualitative Research

Understanding How Sensory Changes Experienced by Individuals with a Range of Age-Related Cognitive Changes Can Affect Technology Use

"That's Something for Children"

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