2021
DOI: 10.1080/17441692.2021.1954227
|View full text |Cite
|
Sign up to set email alerts
|

The role of support groups in the management of Parkinson’s disease in Kenya: Sociality, information and legitimacy

Abstract: Parkinson's disease (PD) is the second most common neurodegenerative disease globally. It is a progressive neurological disorder which can lead to a decline in wellbeing and quality of life for people living with PD (PwP) and their families/caregivers. However, little is known about the experience of PwP in low-and middle-income countries. In high-income countries, the benefits of support groups in providing social support, preventing social isolation and normalising the PD experience have been established. As… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
2
1
1
1

Citation Types

0
1
0
1

Year Published

2023
2023
2024
2024

Publication Types

Select...
7
1

Relationship

0
8

Authors

Journals

citations
Cited by 10 publications
(12 citation statements)
references
References 36 publications
0
1
0
1
Order By: Relevance
“…These groups promote sharing, learning, mutual support, and encouragement 33 . They fill information gaps that health services may leave for caregivers of people with Parkinson’s disease 34 , facilitate the exchange of personal experiences among mothers of autistic children 35 , and equip mothers of children with multiple disabilities due to congenital Zika syndrome to manage common health problems 19 .…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…These groups promote sharing, learning, mutual support, and encouragement 33 . They fill information gaps that health services may leave for caregivers of people with Parkinson’s disease 34 , facilitate the exchange of personal experiences among mothers of autistic children 35 , and equip mothers of children with multiple disabilities due to congenital Zika syndrome to manage common health problems 19 .…”
Section: Discussionmentioning
confidence: 99%
“…Es un espacio de aprendizaje colectivo que ayuda a asumir la crianza de manera diferente, valorando logros más que discapacidades; donde pueden resolver dudas prácticas y ganar mayor seguridad y confianza respecto al cuidado que brindan a sus hijos. Se ha evidenciado que el apoyo de madres cuidadoras con experiencia en el cuidado de niños con discapacidad asociado al Síndrome de Zika Congénito es un enfoque beneficioso y aceptable que promueve compartir, aprender, apoyarse y animarse unos a otros ( 33 , llena vacíos de información que no suministran los servicios de salud en cuidadores de personas con Parkinson 34 , posibilita el intercambio de información basada en experiencias personales en madres de niños con autismo 35 y enseña a manejar problemas de salud comunes entre madres de niños con discapacidad múltiple por síndrome de Zika congénito 19 .…”
Section: Discussionunclassified
“…Support groups play an important role in care and support for PwP and caregivers, while also filling in gaps in information and services that many health systems in low resource settings are unable to provide [96]. Therefore, PD support groups are important components within these settings, ensuring PwP and their families have the support they need, and a platform to advocate for PD.…”
Section: C) Support Groupsmentioning
confidence: 99%
“…The rest of the studies were carried out in Australia (n = 5), the Netherlands (n = 4), England (n = 3), Canada (n = 2), Africa (n = 1), China (n = 1), Brazil (n = 1), and Sweden (n = 1). The study design of the selected studies included quantitative studies (n = 25) (8,9,17,, qualitative studies (n = 7) (10,18,(41)(42)(43)(44)(45), and mixed method studies (n = 3) (11,36,46). Most of the studies were carried out in home settings (n = 18), followed by non-institutionalized communities (n = 8) and outpatient settings (n = 9).…”
Section: Study Characteristicsmentioning
confidence: 99%
“…Although only 11 studies focused on group discussions to share experiences, they all showed that patients and caregivers could gain experience and emotional support in different ways. Group discussions helped alleviate feelings of loneliness, isolation, and apathy among patients with PD and their caregivers while also providing them with peer support (8,11,27,41,43). During the group discussion, the main barrier was that some caregivers may consider some topics more sensitive, which could not be discussed in relatively large groups (43).…”
Section: Group Experiencesmentioning
confidence: 99%