The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

Abstract

The first Team Haemophilia Education (THE) Meeting was held on 7-8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19-20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.

Women and girls with heavy menstrual bleeding and inherited bleeding disorders: A call to action for the Haemophilia Treatment Centre Nurse

“…Recognizing the increased need for expertise in WBD, there are a number of educational opportunities that have been developed. Several meetings were held for multidisciplinary team members in HTCs across Europe 40,41 . The European Association for Haemophilia and Allied Disorders (EAHAD) nurses working group developed a curriculum to standardize and benchmark haemophilia nursing care 42 .…”

Education needs of nurses in thrombosis and hemostasis: An international, mixed‐methods study

“…Aside from being unsure of where to access training, our study indicates that when nurses do receive training, there is a perception they do not have the support required to implement their training and knowledge. Top down support for education and mentorship is not adequate, despite facilitators in place, such as shared professional setting, and that multidisciplinary collaborations are recommended …”

“…Top down support for education and mentorship is not adequate, despite facilitators in place, such as shared professional setting, and that multidisciplinary collaborations are recommended. 25,32 Bleeding and clotting disorders have significant effects on patients' health and quality of life. 33,34 The ability for nurses to provide therapeutic care, including psychological support and education, is essential especially given that these conditions are usually chronic and that patient age and the severity of the disorder varies considerably.…”