The Sharing Circle Method: Understanding Indigenous Cancer Stories

Carr, Tracey; Sedgewick, Jennifer R.; Roberts, Rose; Groot, Gary

doi:10.4135/9781529711264

Cited by 4 publications

(9 citation statements)

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“…Indigenous peoples enjoy a strong affinity with the circle because it symbolizes and resembles many cycles in the natural world, such as the sun and the moon, and the wind as it whirls in circles. In other Indigenous communities, it is also a symbol of equity, where community members come together to share and learn from one another in a safe space ( Carr et al, 2020 ; Latimer et al, 2018 ). The use of storytelling also incorporates decolonizing methods that break down the power hierarchy between researcher and participant and enables both parties to engage in storytelling ( Loppie, 2007 ).…”

Section: Methodsmentioning

confidence: 99%

“…In addition, as storytelling or narrative is an essential component of many Indigenous cultures, sharing circles will allow community members to share their experiences and views in a format aligned with their culture ( Loppie, 2007 ). How they differ from focus groups is the sacred meaning they have and by incorporating a culturally appropriate approach that allows for Indigenous protocols to be included ( Carr et al, 2020 ; Lavallée, 2009 ). Furthermore, with focus groups, participants tend to limit personal information and experiences whereas sharing circles encourage storytelling, allowing participants to make connections to past and future generations of family, community, and nation ( Archibald, 2008 ; Hopkins, 2007 ).…”

Section: Methodsmentioning

confidence: 99%

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Exploring Indigenous Ways of Coping After a Wildfire Disaster in Northern Alberta, Canada

et al. 2021

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In May 2016, a wildfire devastated a northern region of Alberta, Canada, resulting in negative consequences on physical and mental stress, social relationships, and overall resilience among Indigenous residents. Research on coping and managing stress following a disaster has failed to incorporate unique characteristics from Indigenous perspectives. Sharing circles were held in urban and rural community settings to capture: (a) Indigenous perspectives of coping, (b) individual and collective strengths that helped Indigenous residents and communities to cope during and after the wildfire, and (c) intergenerational experiences of coping from stress among Indigenous residents. Indigenous residents’ experience with coping from the wildfire was shaped by: (a) heightened physical and emotional stress, (b) existing structural inequities, and (c) strong community cohesion and connection to culture. An unexpected outcome of this research was the therapeutic value of the sharing circles for participants to share their experience.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Exploring Indigenous Ways of Coping After a Wildfire Disaster in Northern Alberta, Canada

et al. 2021

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“…Our study is a patient-oriented qualitative analysis that used a data-gathering practice suitable to an Indigenous population, sharing circles, conducted under the guidance of the first patient partner, L.A., a cancer survivor. 16,17 Preparation for data collection occurred over the 2 weeks leading to the sharing circle, which was held on 1 day, Sept 22, 2017. During this preparation period, the patient partner assisted with educating the other researchers in protocol and selecting an Elder and circle keeper.…”

Section: Study Design and Settingmentioning

confidence: 99%

“…Data collection took place in a single sharing circle. The details of the sharing circle protocol have been published, 16 and our data collection was conducted according to customs of sharing circles. 17,[19][20][21] In addition to the study participants, 3 members of the research team (the first patient partner, a circle keeper [R.R.]…”

Section: Data Collectionmentioning

confidence: 99%

The experiences of Indigenous people with cancer in Saskatchewan: a patient-oriented qualitative study using a sharing circle

Carr

Arcand

Roberts

et al. 2020

cmajo

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I ndigenous Peoples (First Nations, Métis and Inuit) in Canada are diagnosed with common cancers at a higher rate, 1-5 are more likely to receive diagnoses at a later stage 6 and have lower survival rates 7,8 relative to non-Indigenous Canadians. Indigenous patients with cancer tend to rely on the connection among family, culture and spirituality 9,10 to cope during their cancer journey. Much of what is currently

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“…This research project was guided by an advisory team of Indigenous patient partners, clinicians, academics, and policy makers, whereby the phases were to conduct a scan of the current Indigenous-specific cancer supports in Canada, a sharing circle study with Indigenous people affected by cancer, and a study with service providers to examine perspectives on barriers and supports for Indigenous cancer patients. Separate studies were selected for Indigenous cancer patients and service provider participants to address potential power imbalances between patients and providers and because of the importance of using a culturally-relevant data collection method with Indigenous participants (e.g., sharing circles) [12,15].…”

Section: Introductionmentioning

confidence: 99%

Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment

Sedgewick

Ali

Badea

et al. 2021

BMC Health Serv Res

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Background In Saskatchewan, Canada, Indigenous cancer care services at the municipal, provincial, and federal levels are intended to improve quality care but can result in a complex, fragmented, and multi-jurisdictional health care system. A multi-phase needs assessment project was initiated to document Indigenous cancer care needs. Guided by Indigenous patient partners, clinicians, academics, and policy makers, the present study reflects a needs assessment of Indigenous cancer supports from the perspectives of cancer care service providers. Methods Qualitative data were collected through three focus groups with 20 service providers for cancer patients and their families at three Saskatchewan cities. Participants included chemotherapy and radiation nurses, social workers, a patient navigator, dieticians, and practicum students. A semi-structured interview guide was used to conduct the sessions to allow for freedom of responses. Data were recorded, transcribed verbatim, and analyzed using thematic analysis. Results Service providers’ perspectives were categorized into five themes: 1) addressing travel-related issues, 2) logistical challenges, 3) improvements to Indigenous-specific health care supports, 4) cultural sensitivity in health care, and 5) consistency in care. Supports provided differed for the two Indigenous groups, First Nations and Métis. Service providers made recommendations regarding how needs could be met. They saw language translation providers and Elder supports as important. Recommendations for improving travel were for medical taxis to include breaks so that passengers may alleviate any uncomfortable side effects of their cancer treatment. Further, Indigenous-specific accommodations were recommended for those requiring medical travel. These recommendations aligned with supports that are available in four other Canadian provinces. Conclusions These results identified gaps in supports and outlined recommendations to address barriers to cancer care from the perspectives of service providers. These recommendations may inform evidence-based health system interventions for Indigenous cancer patients and ultimately aim to improve cancer care services, quality of life, and health outcomes of Indigenous patients throughout their cancer journey.

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The Sharing Circle Method: Understanding Indigenous Cancer Stories

Cited by 4 publications

References 0 publications

Exploring Indigenous Ways of Coping After a Wildfire Disaster in Northern Alberta, Canada

Exploring Indigenous Ways of Coping After a Wildfire Disaster in Northern Alberta, Canada

The experiences of Indigenous people with cancer in Saskatchewan: a patient-oriented qualitative study using a sharing circle

Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment

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