The sibling relationship after acquired brain injury (ABI): perspectives of siblings with ABI and uninjured siblings

Analytis, Penelope; Warren, Narelle; Ponsford, Jennie

doi:10.1080/02699052.2020.1809708

Cited by 6 publications

(5 citation statements)

References 34 publications

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“…These changes seemed transient; however, studies specifically analyzing the sibling relationship after one child sustains an acute brain injury have shown differently. Analytis et al 12 showed that younger siblings tended to situate their relationship in the present, meaning that their perception of the quality of the relationships was reflected only by interactions in the present moment and not on experiences in the past or projections of the future. We saw this phenomenon in one case when younger siblings developed cast envy or used play injuries to gain more attention from parents/caregivers.…”

Section: Discussionmentioning

confidence: 99%

Adolescent and Caregiver Perspectives on Living With a Limb Fracture

Bharadia

Golden-Plotnik²,

Manen

et al. 2023

Pediatr Emer Care

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Background: Fractures occur in up to half of children by age 16 years.After initial emergency care for a fracture, function is universally impaired in children, and impacts extend to the immediate family. Knowledge of expected functional limitations is key to providing proper discharge instructions and anticipatory guidance to families. Objectives:The primary objective of this study was to understand how changes in functional ability impact youth with fractures.Methods: We conducted individual, semistructured interviews from June 2019 to November 2020 with adolescents and their caregivers 7 to 14 days following their initial visit to a pediatric emergency department. We used qualitative content analysis methodology; recruitment proceeded until thematic saturation was achieved. Coding and analysis were concurrent with recruitment and interviews. The interview script was modified in an iterative process, to reflect emerging themes.Results: Twenty-nine interviews were completed. The most frequently affected functions were (a) showering and hygiene (requiring the most caregiver support), (b) sleep (due to pain and cast-related discomfort), and (c) exclusion from sports/activities. Many adolescents experienced disruptions to social activities and gatherings. Youth valued independence and took more time to complete tasks, regardless of inconvenience. Both adolescents and caregivers reported feelings of frustration from day-to-day impacts of the injury. Generally, caregivers' perspectives were in keeping with the experiences that adolescents described for themselves. Notable family impacts included "sibling burden," or conflicts that arose when a sibling had to take on extra chores/tasks. Conclusions:Overall, caregivers' perspectives were congruent with the self-described experiences of adolescents. Key messages for optimized discharge instructions include pain and sleep management, allowing extra time to complete tasks independently, considering impact on siblings, preparing for changes in activities and social dynamics, and normalizing frustration.These themes highlight an opportunity to better tailor discharge instructions for adolescents with fractures.

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Section: Discussionmentioning

confidence: 99%

Adolescent and Caregiver Perspectives on Living With a Limb Fracture

Bharadia

Golden-Plotnik²,

Manen

et al. 2023

Pediatr Emer Care

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“…The qualitative responses to the open-ended survey questions provide insights into these experiences. While the paediatric ABI family research has conducted qualitative research (Analytis et al, 2020(Analytis et al, , 2021Bursnall et al, 2018;Clark et al, 2008;Roscigno & Swanson, 2011;Tyerman et al, 2019;Yehene et al, 2021), the use of qualitative research methods is needed to provide a rich and nuanced understanding of the family experience.…”

Section: Discussionmentioning

confidence: 99%

“…The unexpected nature of an ABI also impacts sibling relationships (Analytis et al, 2020; Analytis et al, 2021; Bursnall et al, 2018; Tyerman et al, 2019). The ABI can challenge a sibling's world view, with their previous sense of meaning, safety and predictability contested.…”

Section: Introductionmentioning

confidence: 99%

“…Siblings' perceptions of their parents as ‘omnipotent’ can also be shattered, exposing the parents' powerlessness to prevent the injury and personal vulnerabilities. That the injured child has survived often gives hope to siblings that life will return to ‘normal’ (Analytis et al, 2020; Gent, 2011). As the injured child's care transitions through the phases from acute care—rehabilitation—return home, siblings report frustration and disappointment when faced with changes to family routines, structure and roles, decreased emotional and physical availability of parents, and increased caregiving responsibilities (Bursnall et al, 2018; Hickey et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

“…The extent of sibling subsystem changes post‐injury appears to be largely dependent on the interactions that occur within the family system. With family resources being directed towards the injured child, the siblings feeling the loss of their parents' attention and support and a sense of isolation from within the family system (Analytis et al, 2020; Bursnall et al, 2018; Clark et al, 2008; Fay & Barker‐Collo, 2003; Nodell, 1990; Robson et al, 2005; Sambuco et al, 2008; Swift et al, 2003; Tyerman et al, 2019). This is often exacerbated by sibling perceptions that their parents have changed their parenting style in favour of the injured child.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Australian parent and sibling perspectives on the impact of paediatric acquired brain injury on family relationships during the first 6 weeks at home

Hickey

Anderson

Jordan

2022

Health Social Care Comm

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This study explores the impact of paediatric acquired brain injury (ABI) on family relationships. Twenty‐three families (n = 18 mothers, n = 7 fathers, and n = 4 siblings) of children who sustained an ABI requiring treatment from inpatient acute and rehabilitation services reported on their perceptions regarding changes in family relationships since the injured child's return home. Thematic analysis of survey data was conducted. Family members (parents and siblings) described four themes: (1) negative changes in sibling interactions; (2) role changes arising from an increase in parental expectations of non‐injured siblings; (3) family system challenges in balancing needs within the parent–child dyad and sibling subsystems; and (4) supporting emotional responses within the family system. Findings reveal a critical time for families as they resume full care of the injured child at home. Clinical implications for social workers and other rehabilitation clinicians are explored.

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An ecological and systems thinking approach for support to siblings with and without disabilities

Meltzer

Muir

2021

Soc Theory Health

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The sibling relationship after acquired brain injury (ABI): perspectives of siblings with ABI and uninjured siblings

Cited by 6 publications

References 34 publications

Adolescent and Caregiver Perspectives on Living With a Limb Fracture

Adolescent and Caregiver Perspectives on Living With a Limb Fracture

Australian parent and sibling perspectives on the impact of paediatric acquired brain injury on family relationships during the first 6 weeks at home

An ecological and systems thinking approach for support to siblings with and without disabilities

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