The Significance of Trust in the Research Consent Process with African Americans

Earl, Catherine E.; Penney, Pamela J.

doi:10.1177/01939450122045528

Cited by 48 publications

(46 citation statements)

References 16 publications

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“…A history of negative relationships between universities and African American communities compounded by exploitation of these communities by researchers resulted in great wariness. 3,21 Most business owners were surprised when they learned the PI was an African American woman. Many had questions concerning "who her people were, where they were from, and her general involvement in the community."…”

Section: Recruitment Proceduresmentioning

confidence: 99%

Recruitment and Entrance of Participants Into a Physical Activity Intervention for Hypertensive African American Women

Banks-Wallace

Enyart²,

Johnson³

2004

Advances in Nursing Science

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Decreasing health disparities between White Americans and racial/ethnic minority populations is a public health priority. An ongoing inability to attract sufficient numbers of African Americans and other people of color to participate in research studies is a major barrier to accomplishing this goal. Participation of racial/ethnic minorities in intervention studies is especially critical to the development of appropriate strategies to promote health among these populations. This article examines the effectiveness of preintervention meetings as well as interactions between African American research team members and potential participants as recruitment strategies. Intersections between recruitment and health promotion are also addressed.

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Section: Recruitment Proceduresmentioning

confidence: 99%

Recruitment and Entrance of Participants Into a Physical Activity Intervention for Hypertensive African American Women

Banks-Wallace

Enyart²,

Johnson³

2004

Advances in Nursing Science

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“…Within the field of psychology, in particular, historical evidence has suggested cultural stereotyping (Guthrie, 1998) and a perpetuation of racism and oppression (Jung, 1930) when investigating and interpreting African American behavior. Recently, much has been written about the unique issues and challenges in recruiting African Americans for research studies (Breland-Noble, Bell, & Nicolas, 2006;Earl & Penney, 2001;Freimuth et al, 2001;Hatchett, Holmes, Duran, & Davis, 2000;Huang & Coker, in press;Mason, 2005;Qualls, 2002). Several obstacles to African American research participation are (a) distrust due to historical research bias, abuse, and institutional racism (Corbie-Smith, Thomas, Williams, & Moody-Ayers, 1999); (b) lack of participant knowledge and understanding of the nature of research studies, including issues of informed consent (Freimuth et al, 2001); (c) poor recruitment efforts by researchers (Hatchett et al, 2000); (d) potential perceived social stigma if the study involves an examination of a mental health issue (Breland-Noble et al, 2006); and (e) researchers' lack of preparation in addressing logistics, such as transportation and/or child care concerns of the participants (Gorelick, Harris, Burnett, & Bonecutter, 1998;Qualls, 2002).…”

mentioning

confidence: 99%

Research With African Americans: Lessons Learned About Recruiting African American Women

Coker

Huang

Kashubeck‐West

2009

J Multicult Couns & Deve

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the authors briefly explore literature related to recruiting african american research participants, reflect on their experiences conducting body image research with a sample of african american college women in an earlier study (s. Kashubeck-West et al., 2008), and discuss some methodological and cultural challenges that they encountered during data collection for the study.los autores exploran brevemente la literatura relacionada con el reclutamiento de individuos afroamericanos para participar en estudios de investigación, reflexionan sobre sus experiencias al llevar a cabo estudios sobre imagen corporal con una muestra de mujeres afroamericanas universitarias en un estudio anterior (s. Kashubeck-West et al., 2008) y por último discuten algunos de los desafíos metodológicos y culturales con los que tuvieron que enfrentarse durante la recopilación de datos para el estudio.

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“…The literature revealed four main themes that were particularly relevant: (1) fear of being a research ''subject,'' [13][14][15][16][17][18][19][20][21] (2) practical and logistical concerns, [14][15][16]18,[21][22][23] (3) regulations imposed by Institutional Review Boards (IRBs) and the Health Insurance Portability and Accountability Act (HIPAA), 19,[23][24][25][26] and (4) clinician and clinic staff attitudes regarding the study. 22,23,26,27 Fear of being a research subject is not limited to research that poses a risk for physical harm.…”

Section: Literature Reviewmentioning

confidence: 99%

“…Charts stuffed with research flier to prompt clinician to invite eligible patients to participate 29,30 Individual communication in the clinical setting 15,25 Emphasis on positive aspects of involvement including benefit to others through participation 31,32 Discussion of past research results that have benefited society and contributed to healthcare 21 Pointing out potential participant's value as expert in their situation 23 3. Informed consent process An interesting and non-threatening study title 22 Clear, direct, and simply stated consent form 16,22 Thorough verbal explanation to ensure comprehension 16,22 4.…”

Section: Publicity and Advertisementmentioning

confidence: 99%

“…Informed consent process An interesting and non-threatening study title 22 Clear, direct, and simply stated consent form 16,22 Thorough verbal explanation to ensure comprehension 16,22 4. Recruiter development Participation by recruiters in data collection protocol themselves 16 Potential participants greeted with a friendly smile, questions answered with confidence, and risks and shortcomings of the study fully disclosed 33 Personal, frequent contact between recruiter and potential participants 15,22,31 Easy to reach; phone calls returned promptly 20 Delay between first identification of interest in study and recruitment and enrollment minimized 20 Sincere interest in contributing to the health and well-being of those being studied conveyed 21 Recruiter affected by health condition under study if possible 18 …”

Section: Publicity and Advertisementmentioning

confidence: 99%

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Barriers and Strategies in Recruitment for Bariatric Surgery Research

Hulme

Land

McBride

2012

Bariatric Nursing and Surgical Patient Care

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Bariatric surgery patients present unique challenges for research recruitment. These include the stigma of obesity, sensitive psychosocial issues that may accompany obesity, and the many requirements of insurers before surgery is approved. Yet, little guidance is found in the literature on ways to improve recruitment success for bariatric surgery patients specifically. The purpose of this article is to describe the strategies we developed to overcome anticipated and unanticipated barriers to recruiting bariatric surgery patients for a prospective pilot study. First, we review the literature on barriers to recruitment and strategies to improve recruitment for clinical research projects in general. Pertinent barriers include fear of emotional distress, practical and logistical concerns for data collection, issues related to research regulations, and clinician attitudes regarding the study. Second, we demonstrate the ways in which successful strategies from the literature were incorporated into our recruitment plan. To help devise the recruitment plan, we categorized successful strategies into six recruitment steps that comprised the recruitment process for our pilot study. Third, we describe the ways in which our recruitment plan evolved to address unexpected challenges that emerged despite our systematic approach. We were able to complete the pilot study and maintain its integrity, but our initial goal of completing the study within a year was compromised. The information from this experience will help fill a gap in the literature, and can be used to improve the recruitment efficiency of bariatric surgery nurses and researchers who are involved in clinical research with bariatric surgery patients.

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The Significance of Trust in the Research Consent Process with African Americans

Cited by 48 publications

References 16 publications

Recruitment and Entrance of Participants Into a Physical Activity Intervention for Hypertensive African American Women

Recruitment and Entrance of Participants Into a Physical Activity Intervention for Hypertensive African American Women

Research With African Americans: Lessons Learned About Recruiting African American Women

Barriers and Strategies in Recruitment for Bariatric Surgery Research

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