The sociology of entrenchment: A cystic fibrosis test for everyone?

Koch, Lene; Stemerding, Dirk

doi:10.1016/0277-9536(94)90353-0

Cited by 36 publications

(26 citation statements)

References 3 publications

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“…Studies within science and technology studies (STS) have, in contrast, started to examine some of these issues. In particular, a number of authors have investigated the ways in which new technologies and new medical knowledge are co-constructed (Saetnan 1991, Blume 1992, Clarke and Montini 1993, Koch and Stemerding 1994, Prout 1996, Oudshoorn 1994, Berg 1997).…”

Section: Introductionmentioning

confidence: 99%

Genes as drugs: the social shaping of gene therapy and the reconstruction of genetic disease

Martin

1999

Sociology Health & Illness

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This paper examines the utility of using concepts from the sociology of technology to investigate how new technologies and new disease concepts are co-constructed. For researchers to introduce gene therapy into experimental clinical practice, they had to engage in a process of heterogeneous social-technical engineering. This included: the construction of local networks of regulators, genes, firms, clinicians and patients; the social shaping of gene therapy technology as a novel form of drug delivery; the creation of a new industry; and the reconceptualisation of many common acquired diseases as being genetic in some way. These changes marked a shift from an account of genetic disease based on the inheritance of deleterious genes, to one which explained acquired conditions in terms of a 'molecular pathology', resulting from errors in the way genes are regulated. This process of socio-technical change has resulted in the construction of a new type of 'genetic body'.

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Section: Introductionmentioning

confidence: 99%

Genes as drugs: the social shaping of gene therapy and the reconstruction of genetic disease

Martin

1999

Sociology Health & Illness

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“…Koch and Stemerding 1994: 1213, Bowker and Star 1999. The maternity care system had already been built and had often been characterised as uniform, accessible and acceptable (Hemminki et al 1990).…”

Section: Choicementioning

confidence: 99%

Genetic screening in maternity care: preventive aims and voluntary choices

Jallinoja

2001

Sociology Health & Illness

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This paper analyses a prenatal genetic screening programme for three gene defects, conducted at maternity care centres in Eastern Finland in 1995 and 1996. What is special in this case is that the screening ended sooner than was planned. This paper investigates how the genetic screening programme was launched, the problems it encountered and the circumstances of its closure. The present analysis focuses on the co-existence of, and tensions between, the two major objectives of the project: preventing disability and increasing mothers' choices. The tensions between these two objectives were highlighted at maternity care centres. The public health nurses working at these centres were confused about whether or not they should offer autonomous consumer choice or guidance to mothers to behave in responsible and health-conscious ways. The nurses' confusion was intensified because the goal of prevention was identified with financial savings for the municipality, which the nurses thought was an inappropriate reason for abortions.

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“…radical reconfiguration and redefinition of the elements constituting current practices in the field [6,7]. Seen [8,20] [21].…”

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confidence: 99%

DNA Diagnosis and the Emergence of Cancer Genetic Services in European Health Care

Stemerding

Koch

Bourret³

1997

Eur J Hum Genet

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The sociology of entrenchment: A cystic fibrosis test for everyone?

Abstract: Abstract-In this article we introduce the notion of entrenchment to conceptualize the processes in which new technological options, through the interactions between a variety of actors, become viable and established practices in society, both satisfying and modifying needs and interests.

Cited by 36 publications

References 3 publications

Genes as drugs: the social shaping of gene therapy and the reconstruction of genetic disease

Genes as drugs: the social shaping of gene therapy and the reconstruction of genetic disease

Genetic screening in maternity care: preventive aims and voluntary choices

DNA Diagnosis and the Emergence of Cancer Genetic Services in European Health Care

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