Background and Objectives
Communication partner training (CPT) is essential in dementia care. Despite families being the largest group of community carers, previous reviews primarily focus on formal carers. This study aimed to understand the characteristics and effectiveness of CPT for families of people with dementia.
Research Design and Methods
The systematic review included intervention/protocol studies on dementia CPT for families, excluding formal carers and programs not focused on communication. CINAHL, PsycINFO, SpeechBITE, Medline, SCOPUS, and Embase were searched between 30 th November and 6 th December 2021. After deduplication, 3172 records were screened. Quality assessment used JBI Critical Appraisal tools and the Mixed Methods Appraisal Tool. Data synthesis utilised three reporting tools, the International Classification of Functioning, Disability and Health, and content analysis.
Results
Of 30 studies (27 programs) there were 10 quasi-experimental, five RCTs, four mixed-methods, four case studies, four qualitative, and two protocols. Studies were published between 1998-2021 and included 671 family members. Characteristics varied with 7/27 programs including consumers during creation and one program including telehealth. One study included all reporting tool criteria. Programs typically used four intervention functions, with 12/27 programs addressing three behaviour change areas. 33/74 outcome measures targeted the ‘Environment’ of the person with dementia. Studies showed positive improvements in communication skills and knowledge, with mixed results on behaviour/psychosocial outcomes. Qualitative results identified improvements in conversation and attitudes.
Discussion and Implications
CPT for families improves communication outcomes, however quality of studies varied significantly. Future research should address gaps in telehealth, consumer involvement, and intervention descriptions.