The stigma perceived by parents of intellectual disability children: 
an interpretative phenomenological analysis study

Duran, Songül; Ergün, Sibel

doi:10.5455/apd.282536

Cited by 9 publications

(6 citation statements)

References 12 publications

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“…The study highlights less support of mothers by their spouses who were always absent either due to work or failed relationships, leaving all parental responsibilities to mothers. Duran and Ergün [ 32 ] found that in Turkey mothers of children with ID were frequently in arguments with their spouses over the care of these children. Most participants were women and either single parents, divorced, widowed, or separated from their spouses, raising the children without support of their partners.…”

Section: Discussionmentioning

confidence: 99%

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Modula

Sumbane

2022

IJERPH

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Background: Children with intellectual disability (ID) are known to have a deficit in self-care, social interaction, and learning abilities. Families raising these children experience a range of difficulties that require supportive systems to meet the physical, psychological, and social safety rights of children with ID. The study explored the safety of children with ID through the experiences of their families in the rural Capricorn District of Limpopo Province, South Africa. Methods: In-depth individual interviews and focus group discussion were conducted with 26 families directly involved in raising the children with ID. An inductive thematic analysis of data on the experiences of raising children with ID was undertaken with the aid of ATLAS.ti 8 computer programme. Results: The study revealed that children with ID lack safety at home, schools, and day care centre environments due to a lack of active involvement by nuclear family members, neighbours, and communities, including interaction with their peers and professional service providers in facilities. Safety of children with ID is compromised through exploitation and injuries, leading to marginalisation as they feared further humiliation. Conclusion: The study highlighted that active involvement of family members, communities, and governmental and non-governmental organisations is crucial in ensuring safe environments for children with ID.

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Section: Discussionmentioning

confidence: 99%

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Modula

Sumbane

2022

IJERPH

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“…This statement is also in line with another study by Butchner [27] on "society's attitude towards persons with disabilities" which found that society perceives that disability is a curse and punishment from ancestors and gods. Also, Duran and Ergun [28] in their study on "The stigma perceived by parents of children with disability: an interpretative phenomenological analysis study in Balikesir found that the majority of people often have negative perceptions and stigmatizing attitudes towards children with disabilities (CP) and their families. In the same study, it was found that parents of children with disabilities cope with insults and rude behaviors from community members while they struggle with the challenges of their children with CP.…”

Section: Parental Factorsmentioning

confidence: 99%

Access to Healthcare Services Among Children with Cerebral Palsy in the Greater Accra Region of Ghana

Andah¹

2023

Cerebral Palsy - Updates

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Children with cerebral palsy have quite a lot of challenges in accessing health care than those without disabilities. The purpose of the study was to explore the factors that influence parents in accessing healthcare services for their children with cerebral palsy. This study used a qualitative cross-sectional design using phenomenology. A total of 15 participants comprising parents of children with disabilities and healthcare providers provided data through in-depth interviews following written informed consent. Fifteen in-depth interviews were conducted. The interviews were recorded digitally and transcribed verbatim. Thematic analysis was adopted in the analysis of the data using Nvivo 12. Fifteen IDIs were completed: 10 parents of children with cerebral palsy and 5 healthcare providers. The study findings revealed individual factors such as transportation cost, distance to a health facility, and stigmatization as well as healthcare factors such as availability of specialized services, the attitude of health professionals, the physical environment of hospitals, and the availability of rehabilitation specialists influence parents access to healthcare services for their children with cerebral palsy. Access to healthcare services for children with cerebral palsy is influenced by individual factors (parental) and healthcare factors.

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“…For working mothers, the stigmatised experiences would be more significant as they are subjected to an additional domain of environment, i.e., the workplace. As stigmatisation can lead the mothers to get more emotionally distressed, become isolated, and subsequently affect their caring roles in meeting the child's needs, the issue thus, warrants an urgency to address and intervene (Duran & Ergün, 2018).…”

Section: Workplace Stigmamentioning

confidence: 99%

Workplace Stigmatism: The voices of mothers with disabled children

Zakaria

Azmi

Yorozu

2022

E-BPJ

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This qualitative study highlights the kinds of workplace stigma confronted by mothers of disabled children. It explores the forms of stigma that may be subtle yet could be detrimental to the mothers. This study also demonstrates how mothers are affected by and respond to workplace stigma. Five Malaysian mothers representing a variety of work structures and situations were engaged in the in-depth, semi-structured interviews. Text analysis reveals clear evidence that mothers are subjected to stigmatising treatments, consequently playing a significant role in their workplace engagement, career aspirations, and confidence. Keywords: Workplace, Stigma, Mothers, Disabled Children eISSN: 2398-4287 © 2022. The Authors. Published for AMER ABRA cE-Bs by e-International Publishing House, Ltd., UK. This is an open access article under the CC BYNC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians/Africans/Arabians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia. DOI: https://doi.org/10.21834/ebpj.v7i21.3689

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The stigma perceived by parents of intellectual disability children: an interpretative phenomenological analysis study

Abstract: Objective: The aim of this is to put forth perceptions of the stigma that parents of intellectual disabled individuals

Cited by 9 publications

References 12 publications

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Access to Healthcare Services Among Children with Cerebral Palsy in the Greater Accra Region of Ghana

Workplace Stigmatism: The voices of mothers with disabled children

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