The supportive care needs of individuals recovering from first episode psychosis: A scoping review

Davies, Ellen; Gordon, Andrea; Pelentsov, Lemuel J.; Esterman, Adrian

doi:10.1111/ppc.12259

Cited by 7 publications

(5 citation statements)

References 30 publications

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“…An interview guide (Table 1 ) was developed based on a scoping review about the experience and supportive care needs of individuals undergoing intravenous treatment in the community [ 8 ] and published literature about supportive care needs including Fitch’s model of supportive care needs in individuals with cancer [ 27 , 30 , 31 ] The questions related to five key supportive care need areas: social, physical, information, emotional and practical domains. Participants were also asked to identify any other challenges or supports they required to determine if any needs sat outside these areas.…”

Section: Methodsmentioning

confidence: 99%

“…The supportive care needs framework categorises needs into physical, emotional, social, psychological, informational, spiritual, health care, and practical care domains. This framework has informed the assessment of needs in a broad range of health conditions including adults with colon cancer [ 29 ] those experiencing first episode psychosis [ 30 ] and families of children with rare diseases [ 31 ].…”

Section: Introductionmentioning

confidence: 99%

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Supportive care needs of adults living with a peripherally inserted central catheter (PICC) at home: a qualitative content analysis

Sharp,

Xu,

Pumpa

et al. 2024

BMC Nurs

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Background Peripherally inserted central catheters (PICCs) are common vascular access devices inserted for adults undergoing intravenous treatment in the community setting. Individuals with a PICC report challenges understanding information and adapting to the device both practically and psychologically at home. There is a lack of research investigating the supportive care needs of individuals with a PICC to inform nursing assessment and the provision of additional supports they may require to successfully adapt to life with a PICC. The aim of this study was to identify the supportive care needs of adults with cancer or infection living with a PICC at home. Method Qualitative, semi-structured interviews were used to identify supportive care needs of adults living with a PICC at home. Participants were recruited from cancer and infectious diseases outpatient units. Two researchers independently analysed transcripts using content analysis. Results A total of 15 participants were interviewed (30–87 years old). There were 5 males and 10 females interviewed, 9 participants had a cancer diagnosis and most lived in a metropolitan area. Many participants lived with a partner/spouse at home and three participants had young children. Participants identified supportive care needs in the following eight categories (i (i) Adapting daily life (ii) Physical comfort (iii) Self-management (iv) Emotional impact (v) Information content (vi) Understanding information (vii) Healthcare resources and (viii) Social supports. Conclusions Adults living with a PICC at home report a broad range of supportive care needs. In addition to practical and information needs, health consumers may also require support to accept living with a device inside their body and to assume responsibility for the PICC. These findings may provide nurses with a greater understanding of individual needs and guide the provision of appropriate supports.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Supportive care needs of adults living with a peripherally inserted central catheter (PICC) at home: a qualitative content analysis

Sharp,

Xu,

Pumpa

et al. 2024

BMC Nurs

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“…23 27 28 Psychosis often interferes with an individual's life and increases the risks of disrupting their education, employment and social relationships. [29][30][31] Individuals with serious mental illness, including psychosis, have multiple basic unmet needs to function adequately, such as housing, food security, transportation and telephone, ensuring each individual's quality and dignity of life. 32 Several factors that impact their recovery from an episode of mental illness are associated with supportive care needs.…”

Section: Socialdemographic Characteristics and Needs Of People With Fepmentioning

confidence: 99%

“…Most people who experience the FEP in South Africa are unfamiliar with what is happening to them, with more than one in three patients reporting consulting traditional healers before seeking medical treatment, with a higher rate in rural than urban areas 23 27 28. Psychosis often interferes with an individual’s life and increases the risks of disrupting their education, employment and social relationships 29–31. Individuals with serious mental illness, including psychosis, have multiple basic unmet needs to function adequately, such as housing, food security, transportation and telephone, ensuring each individual’s quality and dignity of life 32.…”

Section: Introductionmentioning

confidence: 99%

Developing and testing unconditional cash transfer strategies among young adults with first-episode psychosis in South Africa: a study protocol for a pilot randomised control trial (PRS-FEP trial)

et al. 2022

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IntroductionAccess to mental health services is a challenge, especially for young people who are over-represented in the unemployment and poverty index in South Africa. Therefore, continuing care is a problem after hospital discharge for young people with first-episode psychosis (FEP) due to a lack of clinical engagement and follow-up, for which they need support, including financial, to improve their outcomes. This pilot randomised control trial (RCT) aims to assess the feasibility and acceptability of financial support, in the form of an unconditional cash transfer (UCT), among young patients with FEP to prevent relapse.Methods and analysisThis study will use a 1:1 ratio two-arm open-label pilot RCT of 60 young participants (18–29 years) with FEP in remission, who will be recruited from specialised psychiatric facilities in KwaZulu-Natal Province, South Africa. This study will implement an UCT and assess its feasibility, acceptability and preliminary clinical outcomes (ie, medication adherence, relapse, quality of life, personal and social function). The follow-up time will be 3 months, the outcomes being measured at baseline, months 1 and 3. Descriptive and conventional content analysis will be done for quantitative and qualitative data, respectively.Ethics and disseminationThe study obtained provisional approval from the Biomedical Research Ethics Committee at the University of KwaZulu-Natal(#BREC/00004117/2022). Also is registered on the South African National clinical trial registry (#DOH-27-092022-5894) and approved by the KwaZulu-Natal department of health (#NHRD Ref: KZ_2002209_033). The results from this investigation will be actively disseminated through peer-reviewed journal publications, conference presentations and stakeholder engagement.Trial registration numberDOH-27-092022-5894.

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“…Hence, addressing spiritual needs is described as a core issue for supporting recovery (21)(22)(23). However, if professionals lack understanding and reflective skills, then this can be challenging (24).…”

Section: Introductionmentioning

confidence: 99%

A ‘near‐life experience’: lived experiences of spirituality from the perspective of people who have been subject to inpatient psychiatric care

Koslander

Rönning

Magnusson

et al. 2020

Scandinavian Caring Sciences

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Aims To describe lived experiences of spirituality from the perspective of people who have been subject to inpatient psychiatric care and to interpret these experiences from an understanding of health as dialectical. Methods After approval from a regional ethical board, eleven participants were recruited from two organisations for people with mental health problems. Participants were asked to narrate about spiritual experiences and occasions where such experiences had come close. The transcribed interviews were analysed by means of a phenomenological hermeneutical approach. Findings A structural analysis of the text resulted in three themes; perceiving the presence of something extra mundane, making sense of reality and struggling for acceptance. The comprehensive understanding highlights spiritual experiences as going beyond religion, even though religious experiences appear as part of it. These experiences can indeed be a resource contributing to experiences of hope, connectedness, meaning and coherence in life. However, they can also give rise to doubt, anxiety and feelings of loneliness and hopelessness. Rather than understanding spiritual experiences as being either ‘good’ or ‘bad’, we could approach spirituality as something that is always present in alternate and inter‐related forms. Metaphorically, this could be understood as a ‘near‐life experience’, summarising participants’ experiences related to their struggle with issues related to suffering and health which are simultaneously present. Conclusions If psychiatric nurses could approach this complexity and, without being judgemental, explore seemingly positive and negative experiences of spirituality as dialectically related to each other, rather than viewing them as either resources or problems, this could contribute to insiderness care and hopefully also support people who struggle with these experiences to seek help when needed.

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The supportive care needs of individuals recovering from first episode psychosis: A scoping review

Abstract: Unmet needs in each of the seven domains of need of the SCNF were identified in this population. There are a number of gaps in the literature relating to the specific needs of this population and the timing for which individuals may require more supportive care in their recovery journey.

Cited by 7 publications

References 30 publications

Supportive care needs of adults living with a peripherally inserted central catheter (PICC) at home: a qualitative content analysis

Supportive care needs of adults living with a peripherally inserted central catheter (PICC) at home: a qualitative content analysis

Developing and testing unconditional cash transfer strategies among young adults with first-episode psychosis in South Africa: a study protocol for a pilot randomised control trial (PRS-FEP trial)

A ‘near‐life experience’: lived experiences of spirituality from the perspective of people who have been subject to inpatient psychiatric care

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