‘The System is Not Set up for the Benefit of Women’: Women’s Experiences of Decision-Making During Pregnancy and Birth in Ireland

Huschke, Susann

doi:10.1177/10497323211055461

Cited by 13 publications

(6 citation statements)

References 52 publications

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“…Humane values and respect were parallel to gender preferences. This finding reinforces the recommendations in the present study, and in previous research, concerning the importance of the interpersonal aspect in forming a woman’s birth experience as a whole ( Huschke, 2022 ; Marques et al, 2020 ; Rodrigues et al, 2021 ).…”

Section: Discussionsupporting

confidence: 93%

The Experience of Pregnancy and Childbirth Overshadowed by Obstetric Violence and Structural Barriers of the Israeli Health System from the Perspective of Arab and Jewish Women

Alnabilsy

Sharon

2023

Qual Health Res

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The aim of this study was to give a voice to Arab and Jewish women in Israel who had suffered obstetric violence during various stages of fertility treatments, pregnancy, and childbirth and also to learn from the women about their experiences of obstetric violence subject to the barriers of the Israeli health system, and their recommendations of possible solutions. The study underlines the unique gender, social, and cultural context in Israel concerning pregnancy and childbirth, and was based on the feminist approach that strives to promote human rights, and eradicate phenomena of gender-related, patriarchal, and social structures. The study used a qualitative-constructivist methodology. Twenty semi-structured interviews with ten Arab women and ten Jewish women were thematically analyzed, and five main themes emerged: first, the women’s experience of becoming pregnant and pregnancy overshadowed by physical and emotional barriers from caregivers and the close environment; second, the women’s awareness of their bodies and needs during pregnancy dominated by the challenges of the health services; third, the women’s awareness of their bodies and needs during childbirth alongside incompatible expectations and nonattentive medical staff; fourth, the women’s descriptions of experiences and types of obstetric violence; and fifth, the women’s recommendations to eradicate obstetric violence.

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Section: Discussionsupporting

confidence: 93%

The Experience of Pregnancy and Childbirth Overshadowed by Obstetric Violence and Structural Barriers of the Israeli Health System from the Perspective of Arab and Jewish Women

Alnabilsy

Sharon

2023

Qual Health Res

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“…Today, the focus rests with the cases considered special or perhaps theoretically more challenging like obtaining IC from minors or neurologically/psychologically impaired patients, providing consent in advance or providing broad consent for big data or biobank research (Coors et al, 2015; Hickey, 2007; Sheehan, 2011; Slaughter et al, 2007; Steinsbekk et al, 2013; Zawistowski & Frader, 2003). In obstetrics, questions that are debated are what kind of consent is to be implemented before birth (particularly where a ‘normal’ vaginal birth is planned) (Dietz & Callaghan, 2018; Ely et al, 2022), how homebirth is negotiated (Cheyney, 2008) and how decision-making is experienced during birth (Huschke, 2022). With regard to early parenthood, the focus rests with ethically difficult decisions surrounding terminating life support for critically ill infants (Beyer et al, 2023; van Manen, 2014) and disease screening (Nicholls & Southern, 2013).…”

Section: Prologuementioning

confidence: 99%

Five Coffin Nails to Informed Consent: An Autoethnography of Suffering Complications in Breastfeeding

Klingler

2023

Qual Health Res

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This autoethnography describes an illness episode caused by breastfeeding complications. It focuses on informed consent processes accompanying this illness episode. Informed consent is a cornerstone of ethical medical practice and has to be obtained before a medical intervention can legally be implemented. It is therefore not trivial that in practice, informed consent processes often fail to achieve what they are set out to. With this autoethnography, I want to provide a review of how informed consent processes can fail in the context of breastfeeding, but also draw attention to what these situations can mean and feel like for those affected. I provide in-depth descriptions of five scenes from my illness episode each representing a different barrier to informed consent. The scenes were developed based on emotional recall and written to grant access to the emotional dimensions of my experience in the tradition of evocative autoethnography. As part of my story, I engage with various issues like practices of prescribing, communicative requirements in vulnerable situations to ensure understanding, the dual purpose of informed consent in the moral and legal realm, and the moralized breastfeeding discourse. Possible routes for change to abolish or reduce described barriers to informed consent are discussed.

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“…Furthermore, healthcare professionals often tend to take on a paternalistic and authoritarian attitude towards older mothers because of their age (Aldrighi et al 2016 ), i.e. they decide upon the kind of information to share and on the way of relaying it in order to ensure the choice of what they consider to be the best choice (Huschke et al 2022 ). The often almost exclusive focus on the delivery of a healthy baby risks to disregard women’s experiences and feelings.…”

Section: A New Way Of Thinking About the Ethics Of Advanced Motherhoodmentioning

confidence: 99%

Rethinking advanced motherhood: a new ethical narrative

De Clercq,

Martani,

Vulliemoz

et al. 2023

Med Health Care and Philos

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The aim of the study is to rethink the ethics of advanced motherhood. In the literature, delayed childbearing is usually discussed in the context of reproductive justice, and in relationship to ethical issues associated with the use and risk of assisted reproductive technologies. We aim to go beyond these more “traditional” ways in which reproductive ethics is framed by revisiting ethics itself through the lens of the figure of the so-called “older” mother. For this purpose, we start by exploring some of the deep seated socio-cultural discourses in the context of procreation: ageism, ableism and the widespread bias towards geneticism and pronatalism. Afterwards, we provide a critical overview of the key arguments against or in support of advanced motherhood. We then briefly discuss how entrenchment by both sides has produced an impasse in the debate on the ethics of advanced motherhood and proceed by arguing that it is fundamental to bring about a change in this narrative. For this purpose, we will revisit the feminist usage of the concept of vulnerability which will allow us both to criticize culturally prescribed norms about motherhood and to address the painful reality of age-related fertility decline. In the last section, we argue that instead of defining “older” motherhood as an ethical problem, we should problematize the fact that female reproductive ageing is an understudied and ill-sourced topic. We believe that allocating resources to research to better understand female reproductive ageing is not only ethically permissible, but might even be ethically desirable.

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‘The System is Not Set up for the Benefit of Women’: Women’s Experiences of Decision-Making During Pregnancy and Birth in Ireland

Cited by 13 publications

References 52 publications

The Experience of Pregnancy and Childbirth Overshadowed by Obstetric Violence and Structural Barriers of the Israeli Health System from the Perspective of Arab and Jewish Women

The Experience of Pregnancy and Childbirth Overshadowed by Obstetric Violence and Structural Barriers of the Israeli Health System from the Perspective of Arab and Jewish Women

Five Coffin Nails to Informed Consent: An Autoethnography of Suffering Complications in Breastfeeding

Rethinking advanced motherhood: a new ethical narrative

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