The time to act is now: pseudo-systematic review

Ford, Nathan; Brigden, Grania; Ellman, Tom; Mills, Edward J.

doi:10.1136/bmj.m4143

Cited by 7 publications

(7 citation statements)

References 23 publications

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“…If a pathological part of the body yields no symptoms, is it medically real? U.S. medicine prides itself on swift action (Ford, et al, 2020;, but when that's not possible, the path falls apart. Chronic-illness patients suffer from the uncertainty (Charmaz, 1983).…”

Section: Illness and Surveillance Over Timementioning

confidence: 99%

This patient is a hidden messenger: NF2, watchful waiting, and records of care

DiBella¹

2023

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“Watchful waiting” is a medical approach that delays radical intervention, like surgery, but depends on regular imaging and patient self-scrutiny. To explore its social effects in a single case, I conducted an autoethnography of my patient archive from my diagnosis and 17 years of watchful-waiting treatment for neurofibromatosis, type II, a genetic disorder. I show how watchful waiting encourages self-surveillance and the stress it causes. I also discuss how the personal medical archive, with its complicated structure of reports, CDs, and notes, is a tool for communication as well as a cause of moral obligation for the patient. I contrast these uses with information studies of medical records that focus on records’ collaborative use within medical institutions. I conclude that my case has been held in stasis, reinforced by diagnostic surveillance that I participate in, due to the vagueness of “watchful waiting” as a treatment protocol and the uncertainty of more invasive treatments themselves. Through this study, I recenter patients and their needs in the discussion of medical archives and contribute to the collective recognition of disability through the genre of the illness narrative and the method of archival ethnography. I consider how my results conflict with general calls for “open notes” in medical care and cultures of life-logging and -tracking.

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Section: Illness and Surveillance Over Timementioning

confidence: 99%

This patient is a hidden messenger: NF2, watchful waiting, and records of care

DiBella¹

2023

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“…We asked whether "now is the time" for an update-an important type of question in medical research. 12…”

Section: Aims Of Bogus 2020mentioning

confidence: 99%

Biased Outcome reporting Guidelines for Underwhelming Studies (BOGUS) statement and checklist

Bauer

2021

BMJ

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Most biomedical research is flawed. While existing reporting guidelines (eg, STROBE, CONSORT, STARD) highlight the strengths of already strong studies, few resources exist to highlight the "strengths" of weak studies. The Biased Outcome reporting Guidelines for Underwhelming Studies (BOGUS) initiative fills a real gap in the multitude of existing guidelines. Representing a vast effort undertaken by a single individual with multiple opinions over seven days of productive pandemic procrastination, the guidelines are a first for "precision reporting" of underwhelming studies, and underscore ways of reporting underdeveloped methods and underachieving efforts. These guidelines will allow authors to better underemphasise limitations, underestimate bias, and undervalue their readers without underselling their work.

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“…What is unknown of course, is what follows the call to action. While we don’t have anything approaching a randomised control trial, one influential study published in a previous BMJ Christmas issue found no conclusions could be drawn on whether the frequent appeals to “act now” resulted in action 1. The call to action, however, has several obvious advantages over actually acting.…”

mentioning

confidence: 92%

“…While it is always time to act,1 it can be hard to know where or how to start in a world facing unprecedented crises. This can be demoralising and frustrating, but there is one form of action we can all turn to at times like these: the call to action.…”

mentioning

confidence: 99%