The Tools to Understand

Allen, James; Mohatt, Gerald V.; Rasmus, Stacy M.; Hazel, Kelly L.; Thomas, Louis B.; Lindley, Sharon

doi:10.1300/j005v32n01_04

Cited by 86 publications

(136 citation statements)

References 20 publications

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“…But in both places, participants stressed the need to adapt communication strategies to the local context. As “team science” gains currency in academia [Disis and Slattery, 2010], genetic research can benefit from the inclusion of communication scholars and, in the case of research with culturally distinct populations, locally based bi-cultural liaisons [Allen et al, 2006; Burhansstipanov et al, 2005; Wong-Parodi and Strauss, 2014]. …”

Section: Discussionmentioning

confidence: 99%

Community dissemination and genetic research: Moving beyond results reporting

Trinidad

Ludman

Hopkins

et al. 2015

American J of Med Genetics Pt A

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The community-based participatory research (CBPR) literature notes that researchers should share study results with communities. In the case of human genetic research, results may be scientifically interesting but lack clinical relevance. The goals of this study were to learn what kinds of information community members want to receive about genetic research and how such information should be conveyed. We conducted 8 focus group discussions with Yup’ik Alaska Native people in southwest Alaska (N=60) and 6 (N=61) with members of a large health maintenance organization in Seattle, Washington. Participants wanted to receive genetic information they “could do something about” and wanted clinically actionable information to be shared with their healthcare providers; they also wanted researchers to share knowledge about other topics of importance to the community. Although Alaska Native participants were generally less familiar with western scientific terms and less interested in web-based information sources, the main findings were the same in Alaska and Seattle: participants wished for ongoing dialogue, including opportunities for informal, small-group conversations and receiving information that had local relevance. Effective community dissemination is more than a matter of presenting study results in lay language. Community members should be involved in both defining culturally appropriate communication strategies and in determining which information should be shared. Reframing dissemination as a two-way dialogue, rather than a one-way broadcast, supports the twin aims of advancing scientific knowledge and achieving community benefit.

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Section: Discussionmentioning

confidence: 99%

Community dissemination and genetic research: Moving beyond results reporting

Trinidad

Ludman

Hopkins

et al. 2015

American J of Med Genetics Pt A

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“…The Circumpolar Indigenous Pathways to Adulthood (CIPA) study is part of a long-term community-based and participatory program of research at the University of Alaska Fairbanks, Center for Alaska Native Health Research examining the strengths and resources of Alaska Native people and their communities; the goal of this work is to develop interventions for Yup’ik youth and their families that increase these strengths and protections (Allen et al, 2011; Allen, et al, 2006; Allen, et al, 2009; Mohatt, Rasmus, et al, 2007; Mohatt, Rasmus et al, 2004; Mohatt, Hazel at al. 2004).…”

mentioning

confidence: 99%

“Where I have to learn the ways how to live:” Youth resilience in a Yup’ik village in Alaska

Rasmus

Allen

Ford

2014

Transcult Psychiatry

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What is it like to grow-up Yup’ik and come-of-age today in a traditional hunting-gathering community setting located in a remote region of Alaska? Current research describes a contemporary experience often laden with trauma and crisis. Youth in Yup’ik communities today face threats to their very survival as they encounter, early on, things that their ancestors never faced – including alcohol-related deaths, violence in many forms, and high rates of suicide among their young peers. Yet all is not despair for the youth growing up in these remote indigenous communities. Many youth grow-up to become skilled hunters, strong leaders, and able parents. This paper reports findings from the Alaskan Yup’ik site of the Circumpolar Indigenous Pathways to Adulthood (CIPA) study. The goal of this study is to identify strengths and resilience in youth living in a Yup’ik community in southwest Alaska. Interviews were conducted with 25 youth age 11–18, currently residing in a southwest Alaska community. Qualitative analysis revealed important connections between local stressors, community-level protective resources, and youth-driven, solution-focused strategies for overcoming hardship and learning the ‘ways how to live.’ Findings from this study contribute critical information on indigenous youth protection and resilience, including community and cultural resilience processes beyond the individual level, and enhance our understanding of the types of resources that can lead to improved outcomes for Alaska Native youth.

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“…Having meaningful opportunities to be involved within one's community is another protective factor known to enhance the resilience of circumpolar Indigenous youth by strengthening relationships in the community and providing opportunities for praise and feeling ownership (Mohatt et al, 2004;Allen et al, 2006;Ford et al, 2012;DeCou et al, 2013). In addition, community involvement is one way of increasing social capital and strengthening social networks, important determinants of adaptive capacity for climate change (Ebi and Semenza, 2008).…”

Section: Discussionmentioning

confidence: 99%

“…The opportunity to be meaningfully involved in their community, whether through research projects or community programs, is one of the many protective factors known to enhance circumpolar Indigenous youth resilience to a variety of stresses, including climate change challenges (Mohatt et al, 2004;Allen et al, 2006;Ford et al, 2012;DeCou et al, 2013;Petrasek MacDonald et al, 2013b). Other protective factors that promote Indigenous youth resilience and have been identified by community-based research across the North include positive role models, community connectedness, continuous communication and interaction, connecting generations, belief in self, sense of purpose, staying busy, community pride, and cultural traditions and practices (Mohatt et al, 2004;Allen et al, 2006;Wexler and Goodwin, 2006;Bals et al, 2010;Wexler, 2014;Wexler et al, 2014). These known protective factors are synonymous with key characteristics of strong adaptive capacity.…”

Section: Introductionmentioning

confidence: 99%

Youth-Led Participatory Video as a Strategy to Enhance Inuit Youth Adaptive Capacities for Dealing with Climate Change

Macdonald¹,

Ford²,

Willox³

et al. 2015

ARCTIC

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ABSTRACT. Rapid climatic and environmental changes experienced throughout the Canadian North are having significant impacts on the lives of Inuit, with implications for the future of the large Inuit youth population. Within the adaptation research and practitioner community, youth voices, perspectives, and involvement are essential in ensuring representative and sustainable adaptation strategies. This paper examines the potential of youth-led participatory video (PV) as a strategy to foster known protective factors that underpin the resilience of youth and their capacity to adapt to various stresses, including impacts of climate change. The work draws on a case study from the Inuit community of Rigolet, Nunatsiavut, Labrador, Canada, where a two-week PV workshop was conducted with seven youth and followed by in-depth interviews with participants and community members. The findings show that PV may be a pathway to greater adaptive capacities because the process connects to known protective factors that enhance resilience of circumpolar indigenous youth. PV also shows promise as a strategy to engage youth in sharing insights and knowledge, connect generations, and involve young Inuit in planning and decision making in general.Key words: participatory video; protective factors; resilience; adaptive capacity; climate change adaptation; youth; Inuit; Nunatsiavut; Arctic; Canada RÉSUMÉ. Les changements climatiques et environnementaux rapides qui surviennent dans le Nord canadien ont des répercussions importantes sur la vie des Inuits, avec des conséquences pour l'avenir de la grande population de jeunes Inuits. Au sein de la communauté de praticiens et de recherche sur l'adaptation, la voix des jeunes, leurs perspectives et leur participation sont essentielles pour assurer la mise en oeuvre de stratégies d'adaptation représentatives et durables. Cet article examine la possibilité de faire des vidéos participatives dirigées par les jeunes comme stratégie pour favoriser les facteurs de protection connus qui sous-tendent la résilience chez les jeunes et leur capacité d'adaptation face à divers agents stressants, notamment les conséquences du changement climatique. Le document s'inspire d'une étude de cas de la communauté des Inuits de Rigolet, Nunatsiavut, au Labrador, Canada, où un atelier sur la vidéo participative d'une durée de deux semaines a eu lieu avec sept jeunes, suivi d'entrevues approfondies avec des participants et des membres de la communauté. Les résultats démontrent que la vidéo participative pourrait être une façon d'améliorer les capacités d'adaptation parce que le processus est relié à des facteurs de protection connus qui améliorent la résilience des jeunes indigènes de la région circumpolaire. La vidéo participative s'avère également une stratégie prometteuse pour amener les jeunes à échanger leurs idées et connaissances, établir un lien entre les générations et faire participer les jeunes Inuits à la planification et à la prise de décisions en général.

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The Tools to Understand

Cited by 86 publications

References 20 publications

Community dissemination and genetic research: Moving beyond results reporting

Community dissemination and genetic research: Moving beyond results reporting

“Where I have to learn the ways how to live:” Youth resilience in a Yup’ik village in Alaska

Youth-Led Participatory Video as a Strategy to Enhance Inuit Youth Adaptive Capacities for Dealing with Climate Change

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