The Transforming Power of Patient Advisors

Wynn, Joan D.

doi:10.18043/ncm.76.3.171

Cited by 4 publications

(5 citation statements)

References 1 publication

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“…With proper implementation, co-creation models have the potential to improve quality and patient safety. For example, within a decade of beginning system-wide improvement efforts that included establishing patient-family advisory councils, Vidant Health saw an 85 percent reduction in serious safety events and a 62 percent reduction in hospital-acquired infections [29].…”

Section: Benefits Of Co-creation In Health Carementioning

confidence: 99%

How Co-Creation Helped Address Hierarchy, Overwhelmed Patients, and Conflicts of Interest in Health Care Quality and Safety

Israilov¹,

Cho

2017

AMA Journal of Ethics

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Co-creation is health professionals' and systems' development of health care together with patients and families. Such collaborations yield an exchange of values, ideas, and priorities that can individualize care for each patient. Co-creation has been discussed interchangeably with coproduction and shared decision making; this article explores co-creation through the lens of quality improvement. Although there are barriers to co-creation including physician autonomy, patient overwhelm, and conflicts of interest, co-creation has been shown to promote patient engagement, peer learning, and improved outcomes. Further research is needed in co-creation for systems improvement. The History of Co-CreationA recent development in health care, co-creation has roots in the fields of management and public policy [1]. At its core, co-creation refers to a process of gathering input from various stakeholders with the common goal of producing a service or product [2]. Since multiple parties contribute to a collective effort in co-creation, the resulting service or product is theoretically of value for all involved [3]. In such a system, creation shifts from being a top-down to a negotiated process [4].The notion of co-creation was first formulated by Elinor Ostrom more than three decades ago [5]. In her case studies of public officials in Kenya and Brazil, Ostrom described the high level of public input that was gathered before decisions were made about infrastructure and education [6]. The first step in the design of new sanitation systems, for example, was setting up neighborhood meetings. This allowed citizens to express their specific needs and be informed about the effects of construction in their neighborhood [6]. Since this groundbreaking work was published, the applications of cocreation have progressed substantially. Now interchangeable with co-production, cocreation provides an incentive to mobilize resources, broadly construed, for service planning [4]. In other words, the combination of different points of view is considered a resource in and of itself, especially when the partnership utilizes marginalized viewpoints as previously unexplored community resources [7].

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Section: Benefits Of Co-creation In Health Carementioning

confidence: 99%

How Co-Creation Helped Address Hierarchy, Overwhelmed Patients, and Conflicts of Interest in Health Care Quality and Safety

Israilov¹,

Cho

2017

AMA Journal of Ethics

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“…The benefits of introducing patient and family advisors include enhanced collaboration among physicians, clinicians, leaders and patients and families and a cultural shift from "doing for" to "doing with." 6,7 The AHS strives to promote a modified co-design approach as best practice, without limiting participants to the methodology of the experience-based co-design approach. [8][9][10] Rather it encourages staff and patients and families to reflect on their experiences, work together to identify improvement priorities, devise prototypes, and implement and evaluate changes.…”

Section: Introductionmentioning

confidence: 99%

Patient and family engagement in Alberta Health Services: Improving care delivery and research outcomes

Singh

Burns

Rees

et al. 2018

Healthc Manage Forum

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Engaging patients and families in research and the design of quality improvement is an essential component of Patient and Family Centred Care (PFCC). Alberta Health Services (AHS) has been engaging patients and families to promote a cultural shift towards PFCC. The AHS trains patient and family advisors to share their experiences and encourages staff to work with advisors to co-design improvements in care. This article briefly describes the role and growth of patient and family advisors, advisory groups, and the participation of advisors in research initiatives through AHS' Strategic Clinical Networks. It also describes recent efforts to build AHS' patient and family engagement capacity by introducing standard patient engagement training, supporting the creation of the innovative Patient and Community Engagement Research internship program, and by developing tools to measure the impact of patient and advisors on AHS. And finally, this article provides key learnings for health leaders.

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“…19 Health systems and organizations that intentionally invite patients and families to participate in rounds, committees, and advisory panels and to share their stories in the boardroom have accelerated improvements in the quality of care they provide. 20 …”

Section: Charter Domainsmentioning

confidence: 99%

“…Organizations and systems that uphold patient partnerships as an integrated core value will exemplify professionalism and stand apart from others. 20 …”

Section: Charter Domainsmentioning

confidence: 99%

The Charter on Professionalism for Health Care Organizations

et al. 2017

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In 2002, the Physician Charter on Medical Professionalism was published to provide physicians with guidance for decision making in a rapidly changing environment. Feedback from physicians indicated that they were unable to fully live up to the principles in the 2002 charter partly because of their employing or affiliated health care organizations. A multistakeholder group has developed a Charter on Professionalism for Health Care Organizations, which may provide more guidance than charters for individual disciplines, given the current structure of health care delivery systems.This article contains the Charter on Professionalism for Health Care Organizations, as well as the process and rationale for its development. For hospitals and hospital systems to effectively care for patients, maintain a healthy workforce, and improve the health of populations, they must attend to the four domains addressed by the Charter: patient partnerships, organizational culture, community partnerships, and operations and business practices. Impacting the social determinants of health will require collaboration among health care organizations, government, and communities.Transitioning to the model hospital described by the Charter will challenge historical roles and assumptions of both its leadership and staff. While the Charter is aspirational, it also outlines specific institutional behaviors that will benefit both patients and workers. Lastly, this article considers obstacles to implementing the Charter and explores avenues to facilitate its dissemination.

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The Transforming Power of Patient Advisors

Cited by 4 publications

References 1 publication

How Co-Creation Helped Address Hierarchy, Overwhelmed Patients, and Conflicts of Interest in Health Care Quality and Safety

How Co-Creation Helped Address Hierarchy, Overwhelmed Patients, and Conflicts of Interest in Health Care Quality and Safety

Patient and family engagement in Alberta Health Services: Improving care delivery and research outcomes

The Charter on Professionalism for Health Care Organizations

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