The transition of stroke survivors from hospital to home

Ploderer, Bernd; Stuart, Jonathon; Tran, Vivian; Green, Theresa; Muller, Jennifer

doi:10.1145/3152771.3152772

Cited by 15 publications

(11 citation statements)

References 40 publications

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“…Viewed through TDF, this also engages with the importance of self-identification in either hindering or supporting healthy behavior. The study of stroke survivors by Ploderer et al [ 15 ] also highlighted the people’s efforts to manage the illness as well as everyday life activities and to reconstruct their identities.…”

Section: Discussionmentioning

confidence: 99%

“…This paper builds on recent research on posthospital transitions [ 5 , 15 ] and on rehabilitation and self-management in chronic conditions [ 16 , 17 ]. It responds directly to calls for research in the cardiovascular domain to engage more deeply with both behavioral change theories and with patient experience.…”

Section: Introductionmentioning

confidence: 99%

“…Similar studies on posthospital transitions in chronic patients describe how discharged patients are often unprepared to self-manage their condition at home [ 5 ]. Being discharged from hospital meant a transition from a safe environment at the hospital to an unknown environment at home [ 15 , 21 ]. The transition of people with cardiac conditions from hospital after surgery to their homes is equally likely to create challenges and design opportunities, which this paper seeks to address; there is a need for more participatory and iterative approaches to design patient-centered eHealth systems [ 19 , 22 ].…”

Section: Introductionmentioning

confidence: 99%

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Transitions in Technology-Mediated Cardiac Rehabilitation and Self-management: Qualitative Study Using the Theoretical Domains Framework

Tadas¹,

Pretorius²,

Foster³

et al. 2021

JMIR Cardio

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Background An acute cardiac incident is a life-changing event that often necessitates surgery. Although surgery has high success rates, rehabilitation, behavioral changes, and self-care are critical to long-term health. Recent systematic reviews have highlighted the potential of technology in this area; however, significant shortcomings have also been identified, particularly with regard to patient experience. Objective This study aims to improve future systems and to explore the experiences of cardiac patients during key phases after hospitalization: recuperation, initial rehabilitation, and long-term self-management. The key objective is to provide a holistic understanding of behavioral factors that impact people across these phases, understand how experiences evolve over time, and provide user-centered recommendations to improve the design of cardiac rehabilitation and self-management technologies. Methods Semistructured interviews were conducted with people who attended rehabilitation programs following hospitalization for acute cardiac events. Interviews were developed and data were analyzed via the Theoretical Domains Framework, a pragmatic framework that synthesizes prior theories of behavioral change. Results Three phases that arise posthospitalization were examined, namely, recuperation, rehabilitation, and long-term self-management. Through these phases, we describe the impact of key factors and important changes that occur in patients’ experiences over time, including the desire for and redefinition of normal life, the need for different types of formal and informal knowledge, the benefits of safe zoning and connectedness, and the need to recognize capability. The use of the Theoretical Domains Framework allows us to show how factors that influence behavior evolve over time and to identify potential sources of tension. Conclusions This study provides empirically grounded recommendations for the design of technology-mediated cardiac rehabilitation and self-management systems. Key recommendations include the use of technology to support a normal life, leveraging social influences to extend participants’ sense of normality, the use of technology to provide a safe zone, the need to support both emotional and physical well-being, and a focus on recognizing capability and providing recommendations that are positive and reinforce this capability.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Transitions in Technology-Mediated Cardiac Rehabilitation and Self-management: Qualitative Study Using the Theoretical Domains Framework

Tadas¹,

Pretorius²,

Foster³

et al. 2021

JMIR Cardio

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show abstract

“…Personal informatics systems often must account for domain-specific needs, such as needs related to a specific setting (e.g., a workplace, a hospital) or with a specific population (e.g., older adults, a people with specific chronic condition). To help inform design, personal informatics researchers often engage with domain experts (e.g., health coaches as study or co-design participants [2,242], healthcare providers as design consultants and co-authors [222,223]). Beyond descriptions in specific projects, we have limited understanding of how frequently domain experts tend to be involved as collaborators and participants.…”

Section: Research Foundations and Approachesmentioning

confidence: 99%

“…Physical activity and sleep were predominantly explored in relation to wellbeing, with 117 (64%) and 78 (62%) publications in those domains touching only on wellbeing. Clinical health domains included monitoring and treating chronic conditions (98 publications) such as migraine [214,255] and stroke [220,222] as well as cessation goals ( 13) such as with smoking (8 publications, including [210,211,267]) and alcohol consumption (4 publications, including [142,300]). Diabetes (35 publications) and chronic pain (23 publications) were the most prevalent chronic conditions examined.…”

Section: Rq1: the Literature Focuses On Health And Wellbeingmentioning

confidence: 99%

Mapping and Taking Stock of the Personal Informatics Literature

Epstein

Caldeira

Figueiredo

et al. 2020

Proc. ACM Interact. Mob. Wearable Ubiquitous Technol.

120

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The research community on the study and design of systems for personal informatics has grown over the past decade. To take stock of what the topics the field has studied and methods the field has used, we map and label 523 publications from ACM's library, IEEE Xplore, and PubMed. We surface that the literature has focused on studying and designing for health and wellness domains, an emphasis on understanding and overcoming barriers to data collection and reflection, and progressively fewer contributions involving artifacts being made. Our mapping review suggests directions future research could explore, such as identifying and resolving barriers to tracking stages beyond collection and reflection, engaging more with domain experts, and further discussing the privacy and ethical concerns around tracked data.

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Gamification of Upper Limb Tangible-Wearable Rehabilitation Devices

Olcay

Seçkiner

2020

Lecture Notes in Management and Industrial Engineering

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The transition of stroke survivors from hospital to home

Cited by 15 publications

References 40 publications

Transitions in Technology-Mediated Cardiac Rehabilitation and Self-management: Qualitative Study Using the Theoretical Domains Framework

Transitions in Technology-Mediated Cardiac Rehabilitation and Self-management: Qualitative Study Using the Theoretical Domains Framework

Mapping and Taking Stock of the Personal Informatics Literature

Gamification of Upper Limb Tangible-Wearable Rehabilitation Devices

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