The unity of respiratory patient advocacy

Grouse, Lawrence

doi:10.21037/jtd.2016.07.03

Cited by 3 publications

(5 citation statements)

References 2 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Overall, our main outcomes indicate that there is a lack of COPD awareness and knowledge among the Saudi general population estimated around 77%, particularly among those who are currently (73.5%) and were previously (67%) smoking (p <0.001). This findings is consistent in both developed and developing countries worldwide [22]. Several studies have reported varying but low COPD awareness rates.…”

Section: Discussionsupporting

confidence: 85%

“…Several studies have reported varying but low COPD awareness rates. The lowest was found in an Indian survey that included over 6000 participants from urban cities and reported 0.9% COPD awareness rate [ 23 ], whereas it was 4% in Brazil [ 22 , 24 ], 8% in France [ 25 ], 10% in Germany [ 22 ], 17% in Spain [ 26 ] and Canada [ 27 ], and 21.3% in Japan [ 28 ]. Although the current study demonstrated relatively higher rate of COPD awareness (23.13%) in Saudi Arabia, there is still a significant gap of knowledge, particularly among those aged 41–50 years old [OR: 0.58 (0.49 to 0.76)] and 51–60 years old [OR: 0.69 (0.56 to 0.84)], despite being at a greater risk of developing COPD [ 29 ].…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

A nationwide survey of public COPD knowledge and awareness in Saudi Arabia: A population-based survey of 15,000 adults

Alqahtani,

Aldhahir,

Siraj

et al. 2023

PLoS ONE

View full text Add to dashboard Cite

Background There is a concerning lack of representative data on chronic obstructive pulmonary disease (COPD) awareness in Saudi Arabia, and a significant proportion of the population is vulnerable to developing a smoking habit, which is a major risk factor for the disease. Methods Population-Based Survey of 15,000 people was conducted to assess the public knowledge and awareness of COPD across Saudi Arabia from October 2022 to March 2023. Results A total of 15002 responders completed the survey, with a completion rate of 82%. The majority 10314 (69%) were 18–30 year and 6112 (41%) had high school education. The most common comorbidities among the responders were depression (7.67%); hypertension (6%); diabetes (5.77%) and Chronic Lung Disease (4.12%). The most common symptoms were dyspnea (17.80%); chest tightness (14.09%) and sputum (11.19%). Among those who complains of any symptoms, only 16.44% had consulted their doctor. Around 14.16% were diagnosed with a respiratory disease and only 15.56% had performed pulmonary function test (PFT). The prevalence of smoking history was 15.16%, in which current smokers were 9.09%. About 48% of smokers used cigarette, 25% used waterpipe and around 27% were E-cigarette users. About 77% of the total sample have never heard about COPD. Majority of current smokers (73.5%; 1002), ex-smokers (68%; 619), and non-smokers (77.9%; 9911) are unaware of COPD, p value <0.001. Seventy five percent (1028) of the current smokers and 70% (633) of the ex-smokers have never performed PFT, p value <0.001. Male, younger age (18–30 years), higher education, family history of respiratory diseases, previous diagnosis of respiratory disease, previous PFT, and being an ex-smokers increases the odds of COPD awareness, p-value <0.05. Conclusion There is a significantly low awareness about COPD in Saudi Arabia, especially among smokers. A nationwide approach must include targeted public awareness campaigns, continued healthcare professional education, community-based activities encouraging diagnosis and early detection, advice on smoking cessation and lifestyle changes, as well as coordinated national COPD screening programs.

show abstract

Section: Discussionsupporting

confidence: 85%

Section: Discussionmentioning

confidence: 99%

A nationwide survey of public COPD knowledge and awareness in Saudi Arabia: A population-based survey of 15,000 adults

Alqahtani,

Aldhahir,

Siraj

et al. 2023

PLoS ONE

View full text Add to dashboard Cite

show abstract

“…Ghorpade et al 13 conducted a study in urban slums and rural settings in India and observed awareness about COPD in 1% of the population. Other studies have reported awareness rates of 49% in Turkey, 14 21% in Japan, 15 17% in Spain, 16 8% in France, 17 17% in Canada, 18 4% in Brazil, 1910% in Germany, 19% and 1% in Korea 19 . Our study data and study by Ghorpade et al 13 give a clear statement as the Indian rural population is least aware of COPD.…”

Section: Discussionsupporting

confidence: 67%

“…Other studies have reported awareness rates of 49% in Turkey, 14 21% in Japan, 15 17% in Spain, 16 8% in France, 17 17% in Canada, 18 4% in Brazil, 1910% in Germany, 19% and 1% in Korea. 19 Our study data and study by Ghorpade et al 13 give a clear statement as the Indian rural population is least aware of COPD. Lack of knowledge regarding the disease, less awareness about treatment options, and absence of use of spirometry by family physicians were the hurdles for less awareness about COPD in the community.…”

Section: Prevalence Of Awareness Of Copd In Rural Settings Attending ...mentioning

confidence: 49%

Respiratory questionnaire‐based analysis of awareness of COPD in a large multicenter rural population‐based study in India

Patil¹,

Patil

Bhise

et al. 2022

Chronic Diseases and Translational Medicine

View full text Add to dashboard Cite

Background: Chronic obstructive pulmonary disease (COPD) is a more prevalent chronic lung disease with a significant health burden, and the majority of these cases receive inadequate treatment. Methods: Prospective, observational, interview (questionnaire) based complete workup COPD study, screened 12,000 cases with chronic respiratory symptoms with cough, sputum production, and shortness of breath. A total of 6000 COPD cases were enrolled after the spirometry test. COPD cases were assessed as disease knowledge and methods of treatment offered by applying questionnaires to patients and treating physicians.Results: In the present study, 3% of study cases were aware of their COPD illness, 54% were not having knowledge about the disease, and 43% cases were not accepting the COPD diagnosis (p < 0.0001). A total of 58% of cases received inhalation treatment as levosalbutamol monotherapy in 31% cases, levosalbutamol plus beclometasone in 18% cases, and formoterol plus budesonide or salmeterol plus fluticasone only in 9% of COPD cases (p < 0.0001). Total 42% cases received oral treatment as theophylline in 16% cases, salbutamol in 7% cases, oral steroids in 19% cases (p < 0.0001). Conclusion: "Doctor-patient-drug trio" discordance clubbed as "difficult doctor, difficult patient, and difficult treatment" is a very crucial issue observed during diagnosis and management of COPD in peripheral settings in India. K E Y W O R D S chronic obstructive pulmonary disease, difficult doctor, inhalation treatment, salmeterol fluticasone, spirometry Research HighlightsCOPD is an underestimated chronic lung disease and is halfheartedly treated in rural settings in India. In the present study, we observed that 43% of cases were difficult to accept COPD diagnosis, 91% of cases did not receive rational inhalation treatment, and 42% of cases were treated with oral medicines over rational inhalation treatment.

show abstract

“…They align with professional expertise and reiterate issues that challenge care for these conditions outside of BC. Worldwide, there is a need to increase awareness of asthma and COPD as priority chronic respiratory diseases,41–43 increase prevention through mitigation of risk factors, address challenges with asthma and COPD diagnosis,44 45 and better leverage integrated care for effective maintenance 39 40. The features that patients affirmed as valuable could be replicated across VCH for more consistent delivery of quality care and promote equitable health outcomes.…”

Section: Discussionmentioning

confidence: 99%

Opportunities to improve asthma and COPD prevention and care: insights from the patient journey obtained through focus groups

Collins-Fairclough,

Rideout,

Joshi

et al. 2023

BMJ Open Qual

View full text Add to dashboard Cite

BackgroundThe healthcare experiences of patients hold valuable insights for improving the quality of services related to their well-being. We therefore invited and explored the perspectives of patients living with asthma and chronic obstructive pulmonary disease (COPD) on their interaction with the systems supporting health, in order to identify opportunities to improve services to prevent, treat and manage these conditions.MethodsTwo virtual focus groups were held in August 2021, one for adult asthma and one for COPD, to learn of patients’ experiences receiving care for these conditions in the Vancouver Coastal Health (VCH) region of British Columbia. Participants were recruited through online postings or their clinician. We discussed the care pathway for each condition and invited participants to share their experiences of the past 5 years, specifically their reflections on the process, including feelings, points of praise and frustration, and opportunities for improvement in this context. Composite patient journey maps were developed for each condition to reflect the experiences shared. Audio recordings of the focus groups were transcribed and used in qualitative data analysis.ResultsThematic analysis revealed the following as possible areas for improvement: low public awareness of asthma and COPD and associated risk factors, non-standardised diagnosis pathways that delay diagnosis, and inconsistency in delivering valued aspects of care such as supports for self-management, trust-inspiring acute care, empowering patient communication and timely access to care.ConclusionWe successfully used focus groups to generate composite journey maps of the experiences of patients living with asthma (n=8) and COPD (n=9) to identify features that these patients consider important for improving the healthcare system for asthma and COPD in VCH. Health professionals, decision makers and patient advocates in VCH and beyond can consider these insights when evaluating, and planning changes to, current practices and policies in service delivery.

show abstract

The unity of respiratory patient advocacy

Cited by 3 publications

References 2 publications

A nationwide survey of public COPD knowledge and awareness in Saudi Arabia: A population-based survey of 15,000 adults

A nationwide survey of public COPD knowledge and awareness in Saudi Arabia: A population-based survey of 15,000 adults

Respiratory questionnaire‐based analysis of awareness of COPD in a large multicenter rural population‐based study in India

Opportunities to improve asthma and COPD prevention and care: insights from the patient journey obtained through focus groups

Contact Info

Product

Resources

About