The use of a mobile educational tool on pressure injury education for individuals living with spinal cord injury/disease: a qualitative research study

Shirai, Takami; Bulandres, Priscilla; Choi, Jee-Ae; D'Ortenzio, David; Moon, Nathan W.; Musselman, Kristin E.; Gabison, Sharon

doi:10.1080/09638288.2020.1771780

Cited by 7 publications

(36 citation statements)

References 28 publications

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“…It is one of the first studies on the perceived opportunities and challenges of a mobile health application to support individuals with spinal cord injury in the prevention of pressure injuries. By capturing both the perspectives of people with spinal cord injury and health care professionals, it complements earlier work, which has predominantly focused on assessing patient views [ 32 ] and compliance with app-based interventions [ 33 ].…”

Section: Discussionmentioning

confidence: 99%

Opportunities and Challenges of a Self-Management App to Support People With Spinal Cord Injury in the Prevention of Pressure Injuries: Qualitative Study

Amann¹,

Fiordelli²,

Scheel‐Sailer³

et al. 2020

JMIR Mhealth Uhealth

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Background Mobile health applications can offer tailored self-management support to individuals living with chronic health conditions. However, there are several challenges to the adoption of these technologies in practice. Co-design is a promising approach to overcoming some of these challenges by enabling the development of solutions that meet the actual needs and preferences of the relevant stakeholder groups. Objective Taking spinal cord injury as a case in point, the overall objectives of this study were to identify the perceived benefits of a co-designed self-management app that could promote its uptake and to explore the factors that may impede adoption. Methods We adopted a qualitative research approach guided by the Technology Acceptance Model. Data were collected through semistructured interviews with individuals with spinal cord injury (n=15) and two focus groups with health care professionals specialized in spinal cord injury (n=7, n=5). Prior to the interviews and focus groups, study participants were given time to explore the app prototype. All interviews were transcribed verbatim and analyzed using inductive thematic analysis. Results Findings of our analysis indicate that study participants perceived the app prototype as potentially useful for supporting individuals with spinal cord injury in preventing pressure injuries. In particular, we identified three concrete use cases highlighting the benefits of the app for different audiences: (1) a companion for newly injured individuals, (2) an emergency kit and motivational support, and 3) a guide for informal caregivers and family members. We also uncovered several challenges that might impede the adoption of the self-management app in practice, including (1) challenges in motivating individuals to use the app, (2) concerns about the misuse and abuse of the app, and (3) organizational and maintenance challenges. Conclusions This study adds to a growing body of research that investigates individuals’ adoption and nonadoption behavior regarding mobile health solutions. Building on earlier work, we make recommendations on how to address the barriers to the adoption of mobile health solutions identified by this study. In particular, there is a need to foster trust in mobile health among prospective users, including both patients and health care professionals. Moreover, increasing personal relevance of mobile health solutions through personalization may be a promising approach to promote uptake. Last but not least, organizational support also plays an instrumental role in mobile health adoption. We conclude that even though co-design is promoted as a promising approach to develop self-management tools, co-design does not guarantee adoption. More research is needed to identify the most promising strategies to promote the adoption of evidence-based mobile health solutions in practice.

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Section: Discussionmentioning

confidence: 99%

Opportunities and Challenges of a Self-Management App to Support People With Spinal Cord Injury in the Prevention of Pressure Injuries: Qualitative Study

Amann¹,

Fiordelli²,

Scheel‐Sailer³

et al. 2020

JMIR Mhealth Uhealth

View full text Add to dashboard Cite

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“…The 24 included publications comprised 20 (83%) studies [ 36 , 37 , 40 , 42 - 57 , 59 ], 3 (12%) reports [ 38 , 39 , 58 ], and 1 (4%) protocol paper [ 41 ] (Table S1 Multimedia Appendix 3 ). The included publications primarily aimed to describe and develop mHealth tools (10/24, 42%) [ 38 , 39 , 43 , 45 , 46 , 48 , 54 , 56 - 58 ], evaluate implementation factors (9/24, 38%) [ 37 , 40 , 45 , 46 , 49 , 50 , 54 , 55 , 57 ], evaluate usability and user experience (7/24, 29%) [ 45 - 48 , 52 - 54 ] and effectiveness (6/24, 25%) [ 36 , 41 , 42 , 44 , 51 , 54 ], and describe stakeholder perspectives (1/24, 4%). The included publications were published between 2015 and 2022, and most (18/24, 75%) were published from 2018 onward [ 41 - 57 , 59 ].…”

Section: Resultsmentioning

confidence: 99%

“…The included publications were published between 2015 and 2022, and most (18/24, 75%) were published from 2018 onward [ 41 - 57 , 59 ]. The research teams were mainly based in North America (15/24, 62%) [ 38 , 40 - 42 , 44 - 47 , 50 , 52 , 53 , 55 , 56 , 58 , 59 ], followed by Europe (6/24, 25%) [ 36 , 37 , 48 , 49 , 54 , 57 ], Asia (2/24, 8%) [ 43 , 51 ], and Europe and Asia (1/24, 4%) [ 39 ].…”

Section: Resultsmentioning

confidence: 99%

“…Of the 20 included studies, 7 (35%) were quasi-experimental [ 37 , 42 , 43 , 50 , 51 , 53 , 57 ], 5 (25%) were mixed methods [ 46 - 48 , 54 ], 4 (20%) were qualitative [ 49 , 52 , 56 , 59 ], 2 (10%) were observational [ 45 , 55 ], and 2 (10%) were experimental [ 36 , 44 ]. The risk of bias was deemed low in just over half (11/20, 55%) of the included studies [ 44 , 45 , 47 , 49 , 51 , 52 , 55 - 57 , 59 ] ( Multimedia Appendix 4 [ 36 - 59 ]). No studies were excluded based on the risk assessment.…”

Section: Resultsmentioning

confidence: 99%

“…No studies were excluded based on the risk assessment. Study participants experienced various limitations in body functions, including musculoskeletal and movement-related functions [ 37 , 39 , 43 ], sensory functions and pain [ 36 , 47 , 51 , 59 ], urination and defecation [ 40 , 45 , 47 , 50 , 58 , 59 ], skin [ 38 , 45 - 50 , 52 , 53 , 59 ], sleep [ 54 ], and functions that help manage the psychological and social demands of daily life [ 44 , 45 , 47 , 54 , 59 ]. The sample sizes of the 20 included studies ranged from 4 to 75 participants where reported [ 36 , 37 , 40 , 42 - 57 , 59 ].…”

Section: Resultsmentioning

confidence: 99%

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Mobile Health Self-management Support for Spinal Cord Injury: Systematic Literature Review

Bernard¹,

Seijas²,

Davis³

et al. 2023

JMIR Mhealth Uhealth

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Background Self-management plays a critical role in maintaining and improving the health of persons with spinal cord injury (SCI). Despite their potential, existing mobile health (mHealth) self-management support (SMS) tools for SCI have not been comprehensively described in terms of their characteristics and approaches. It is important to have an overview of these tools to know how best to select, further develop, and improve them. Objective The objective of this systematic literature review was to identify mHealth SMS tools for SCI and summarize their characteristics and approaches to offering SMS. Methods A systematic review of the literature published between January 2010 and March 2022 was conducted across 8 bibliographic databases. The data synthesis was guided by the self-management task taxonomy by Corbin and Strauss, the self-management skill taxonomy by Lorig and Holman, and the Practical Reviews in Self-Management Support taxonomy. The PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) standards guided the reporting. Results A total of 24 publications reporting on 19 mHealth SMS tools for SCI were included. These tools were introduced from 2015 onward and used various mHealth technologies and multimedia formats to provide SMS using 9 methods identified by the Practical Reviews in Self-Management Support taxonomy (eg, social support and lifestyle advice and support). The identified tools focused on common SCI self-management areas (eg, bowel, bladder, and pain management) and overlooked areas such as sexual dysfunction problems and environmental problems, including barriers in the built environment. Most tools (12/19, 63%) unexpectedly supported a single self-management task instead of all 3 tasks (ie, medical, role, and emotional management), and emotional management tasks had very little support. All self-management skills (eg, problem-solving, decision-making, and action planning) had coverage, but a single tool addressed resource use. The identified mHealth SMS tools were similar in terms of number, introduction period, geographical distribution, and technical sophistication compared with SMS tools for other chronic conditions. Conclusions This systematic literature review provides one of the first descriptions of mHealth SMS tools for SCI in terms of their characteristics and approaches to offering SMS. This study’s findings highlight a need for increased coverage of key SMS for SCI components; adopting comparable usability, user experience, and accessibility evaluation methods; and related research to provide more detailed reporting. Future research should consider other data sources such as app stores and technology-centric bibliographic databases to complement this compilation by identifying other possibly overlooked mHealth SMS tools. A consideration of this study’s findings is expected to support the selection, development, and improvement of mHealth SMS tools for SCI.

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Factors that influence the provision of home-based rehabilitation services for people needing rehabilitation: a qualitative evidence synthesis

Vélez

Lugo-Agudelo

Lugo

et al. 2023

Cochrane Database of Systematic Reviews

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The use of a mobile educational tool on pressure injury education for individuals living with spinal cord injury/disease: a qualitative research study

Cited by 7 publications

References 28 publications

Opportunities and Challenges of a Self-Management App to Support People With Spinal Cord Injury in the Prevention of Pressure Injuries: Qualitative Study

Opportunities and Challenges of a Self-Management App to Support People With Spinal Cord Injury in the Prevention of Pressure Injuries: Qualitative Study

Mobile Health Self-management Support for Spinal Cord Injury: Systematic Literature Review

Factors that influence the provision of home-based rehabilitation services for people needing rehabilitation: a qualitative evidence synthesis

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