The use of eHealth technologies to support communication with parents in the neonatal unit; an updated literature review for the COVID-19 era

Norris, Claire; Al-Muzaffar, Iyad

doi:10.1016/j.jnn.2020.12.002

Cited by 5 publications

(4 citation statements)

References 7 publications

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“…Systematic reviews still find few studies on the feasibility of eHealth in children's health care and no studies especially address access to health care. The studies of parents that are available indicate an overall acceptance of eHealth within their child's health care [14]. Supporting parents with tele homecare and videocalls (eHealth) has reduced emergency visits and hospital visits, and enhanced accessibility, with many parents in the experimental groups preferring eHealth to physical visits, not the least during the Covid-19 pandemic [14,15].…”

Section: Introductionmentioning

confidence: 99%

Access to health care perceived by parents caring for their child at home supported by eHealth—a directed approach introducing aperture

Hylén

Nilsson

Hallström

et al. 2022

BMC Health Serv Res

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Background In recent years a variety of eHealth solutions has been introduced to enhance efficiency and to empower patients, leading to a more accessible and equitable health care system. Within pediatric care eHealth has been advocated to reduce emergency and hospital outpatient visits, with many parents preferring eHealth to physical visits following the transition from hospital to home. Still, not many studies have focused on access from the parental perspective. Therefore, the aim of the study was to analyze access to health care as perceived by parents when caring for their child at home, with conventional care supported by eHealth following pediatric surgery or preterm birth. Methods Twenty-five parents who went home with their child following hospitalization and received conventional care supported by eHealth (a tablet) were interviewed in this qualitative study. Directed content analysis was used, guided by a framework for dimensions of access previously described as: approachability, acceptability, affordability, appropriateness, and availability. Results All dimensions of access were present in the material with the dimensions of approachability, appropriateness and acceptability most frequently emphasized. The dimensions highlighted a strong acceptance of eHealth, which was perceived by the parents as beneficial, particularly access to communication with health care personnel familiar to them. The chat function of the tablet was often mentioned as positive. A new dimension was also identified: “aperture.” It is defined by the pathways by which communication is transmitted in cyberspace, and these pathways are not easily visualized for parents submitting information, therefore generating concerns. Conclusions Parents generally experienced good access to the eHealth-supported health care. Describing access through its dimensions complemented previous descriptions of eHealth in pediatric care and gave new insights. As such, the new dimension of “aperture”, the indeterminate opening of pathways of communication reflecting the uncertainty of not comprehending cyberspace, could be further evaluated. The dimensional framework of access is recommended when evaluating eHealth in the future. Trial registration ClinicalTrials.gov identifier: NCT04150120.

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Section: Introductionmentioning

confidence: 99%

Access to health care perceived by parents caring for their child at home supported by eHealth—a directed approach introducing aperture

Hylén

Nilsson

Hallström

et al. 2022

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…Recently, studies have focused on the implications and consequences of eHealth solutions (special apps, mobile tablets, teleconferences) for parents' involvement and satisfaction with children's health care. The studies nd that parents are generally accepting and satis ed with eHealth solutions in the care of their children (24,25). Other studies show high parental satisfaction when using eHealth devices in neonatal and pediatric health care after the hospital discharge (26, 27).…”

Section: Introductionmentioning

confidence: 88%

Association between health literacy and satisfaction with health care among parents of long-term ill children: a cross-sectional study

Selezneva

Hallström

Vilhjálmsson

2023

Preprint

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Background: Inadequate health literacy has been shown to impact patient satisfaction with health care, a frequently used measure of health care quality. Low parental satisfaction with paediatric care can lead to lower compliance with prescribed medication and treatment and thus worsen the child's health outcomes. This study explored the relationship between the health literacy of parents of long-term ill children and parents’ satisfaction with the health care, and whether this relationship varied by the introduction of an eHealth device. Methods: This cross-sectional study was based on the data collected in a larger clinical study from questionnaires filled out by 77 parents of chronically ill children admitted to neonatal and specialized surgery departments in southern Sweden between August 2019 and June 2020. Statistical analysis was performed using Mann Whitney and Kruskal-Wallis nonparametric tests, Spearman's rank correlation and multivariate logistic regression. Results: A substantial and statistically significant correlation was observed between parental health literacy and almost all dimensions of parental satisfaction, with the highest correlation between health literacy and satisfaction with information (r=0.476, p<0.001). Health literacy was a significant independent predictor of high satisfaction with information and technical skills, and high overall satisfaction. An eHealth communication device moderated the relationship between health literacy and satisfaction with communication. Conclusion: The study indicates that health literacy is among important predictors of parents’ satisfaction with health care. Health services should be sensitive to variations in parental health literacy and should tailor information and communication to parental needs to secure the best health outcomes for chronically sick children. Further studies are needed to evaluate the clinical benefits of assessing parental health literacy for child health outcomes. Trial registration: ClinicalTrials.gov identifier: NCT04150120.

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“…Pre-COVID-19, cameras or Internet platforms were available at bedside but were used sparingly, mostly for parents with work requirements, limited maternity/paternity time, transportation issues, crowded or space-challenged NICUs, financial limitations, and family obligations (Norris & Al-Muzaffar, 2020). It has been proven that asynchronous video feeds have significantly improved the involvement of the family, bonding, staff/parent relationships, increased breast milk production, preterm outcomes, maternal health, and decreased stress and anxiety (Kirolos et al, 2020).…”

Section: Technology and Family Supports In The Nicu Pre-covid-19 Pand...mentioning

confidence: 99%

Shifting Landscapes of Practice Patterns for Pediatric Feeding and Dysphagia in Response to the COVID-19 Pandemic

et al. 2022

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Background: The COVID-19 pandemic required a shift in the landscape of practice patterns regarding management of pediatric feeding disorders. The challenging limitations impacted routine service delivery models and deemed it necessary for abrupt transition to optimize professional care to best meet the needs of clients and families. Telepractice platforms were explored across practice settings and often integrated new technology, telehealth practices, and family support systems. Purpose: The purpose of this clinical focus article was to consider the impact of COVID-19 on modifications in clinical practice related to pediatric feeding disorders and dysphagia. Conclusions: The COVID-19 pandemic demanded modification of clinical service delivery to pediatric clients having feeding disorders and dysphagia. The service challenges prior to the pandemic were further complicated by challenging limitations in service delivery, client accessibility, and family support resources. Telehealth offered a hybrid model for quality care when access to traditional in-person sessions was limited. Future research on this dynamic framework will guide us in evaluating the benefits and limitations in clinical practices. Ongoing research and development of resources are needed to ensure equitable and accessible services across settings.

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The use of eHealth technologies to support communication with parents in the neonatal unit; an updated literature review for the COVID-19 era

Cited by 5 publications

References 7 publications

Access to health care perceived by parents caring for their child at home supported by eHealth—a directed approach introducing aperture

Access to health care perceived by parents caring for their child at home supported by eHealth—a directed approach introducing aperture

Association between health literacy and satisfaction with health care among parents of long-term ill children: a cross-sectional study

Shifting Landscapes of Practice Patterns for Pediatric Feeding and Dysphagia in Response to the COVID-19 Pandemic

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