The Use of Focus Groups to Characterize Symptoms in Persons With Multiple Sclerosis

Newland, Pamela; Thomas, Florian P.; Riley, Marguerite; Flick, Louise H.; Fearing, Arleen

doi:10.1097/jnn.0b013e318268308b

Cited by 22 publications

(43 citation statements)

References 26 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…41 Feels like being in a vacuum (with a lid on). 46 ''Feeling drained,'' 31,44 ''numb,'' 25 and ''heavy'' were commonly described. 28,46 The term ''abnormal'' was specially used in five studies in relation to the fatigue experienced.…”

Section: Focus Groupsmentioning

confidence: 99%

“…Fatigue unprecedented by exertion was especially difficult to manage. 13,29,30,34,35,47,49,52,58,59,66 There was seemingly ''no way of knowing when it would strike,'' 44 and as a result, people described feeling in the ''lap of the gods'' unable to control onset or their lives as a consequence. 51 Fatigue was described as pernicious and insidious as a result 22, 62 where it undermined peoples' sense of control.…”

Section: Thementioning

confidence: 99%

See 1 more Smart Citation

The Experience of Fatigue Across Long-Term Conditions: A Qualitative Meta-Synthesis

Whitehead

Unahi

Burrell

et al. 2016

Journal of Pain and Symptom Management

View full text Add to dashboard Cite

Although similarities in the nature of the fatigue experienced were found across conditions, differences were also evident and could be mapped for cancer-related fatigue and post-stroke fatigue. Further qualitative research on the experience of fatigue across a wide range of chronic conditions would further contribute to understanding similarities and differences across conditions and inform both research and practice in relation to assessment and management.

show abstract

Section: Focus Groupsmentioning

confidence: 99%

Section: Thementioning

confidence: 99%

The Experience of Fatigue Across Long-Term Conditions: A Qualitative Meta-Synthesis

Whitehead

Unahi

Burrell

et al. 2016

Journal of Pain and Symptom Management

View full text Add to dashboard Cite

show abstract

“…For example, Johnson et al 15 noted a relationship between fatigue and cognitive impairments in patients with MS, describing a cycle where fatigue led to difficulty thinking, which, in turn, led to increased fatigue. Newland et al 16 conducted a series of focus groups to explore how patients with MS describe their symptom experience. These groups yielded information on how symptoms tended to cluster, most notably fatigue, cognitive impairment, heat intolerance, and vision loss.…”

Section: The Interconnectedness Of Ms Symptoms: the Fatigue Cascade Ementioning

confidence: 99%

Understanding Drivers of Employment Changes in a Multiple Sclerosis Population

Coyne¹,

Boscoe²,

Currie³

et al. 2015

International Journal of MS Care

View full text Add to dashboard Cite

Background: Qualitative data are lacking on decision making and factors surrounding changes in employment for patients with multiple sclerosis (MS). This study aimed to increase our understanding of the key symptoms and factors leading patients with MS to leave work or reduce employment. Methods: Adults with MS who reported leaving the workforce, reducing work hours, or changing jobs due to MS in the past 6 months were recruited from four US clinical sites. Patients participated in semistructured interviews to discuss MS symptoms and reasons for changing employment status. All interviews were transcribed and coded for descriptive analyses. Results: Twenty-seven adults (mean age = 46.3 years, mean duration of MS diagnosis = 10.9 years) with a range of occupations participated; most were white (81.5%) and female (70.4%). Physical symptoms (eg, fatigue, visual deficits) (77.8%) were the most common reasons for employment change; 40.7% of patients reported at least one cognitive symptom (eg, memory loss). Fatigue emerged as the most pervasive symptom and affected physical and mental aspects of patients' jobs. Most patients (85.2%) reported at least two symptoms as drivers for change. Some patients reported a significant negative impact of loss of employment on their mental status, family life, and financial stability. Conclusions: Fatigue was the most common symptom associated with the decision to leave work or reduce employment and can lead to a worsening of other MS symptoms. Comprehensive symptom management, especially fatigue management, may help patients preserve their employment status.

show abstract

“…The last study purpose was to define and recognize co-occurrence symptoms by using quantitative approach [11]. Three focus groups conducted an examination of symptoms such as balance, heat intolerance, vision and cognition.…”

Section: Resultsmentioning

confidence: 99%

“…Just as Cook and colleague [11], utilized the SIM to provide a framework for their research in understanding patients' symptom experiences and their patterns in patients with HIV. The SMT has been used by many researchers as their framework.…”

Section: Testabilitymentioning

confidence: 99%

Analysis of University of California in San Francisco (UCSF) Symptom Management Theory and Theory Implication for Persons with Neurological Disorders/Diseases

Cwiekala-Lewis

Parkyn

Modliszewska

2017

PNIN

View full text Add to dashboard Cite

Introduction. According to the World Health Organization (WHO), in 2015 neurological disorders accounted for 12% of total deaths worldwide. Presented data demonstrates that neurological neuropsychiatric disorders (NND) cause a substantial burden on global health. A majority of neurological disorders are progressive and currently have no cure. Aim. Is to evaluate current evidence of a middle range theory of Symptom Management Theory (SMT) created by University of California in San Francisco (UCSF) School of Nursing and to analyze implication of the theory for persons with NND. Material and Methods. Systematic review of the literature will be presented. SMT will be analyzed and evaluated based on Walker and Avant with special consideration to theory utilization in research encompassing NND. Study quality was assessed using the Quality Index (QI) checklist developed by Downs & Black in 1998. Results. A total of seven articles was included to support empirical relationships between SMT components evidenced in studies involving adults with neurological disorders/diseases. Overall, the literature supports SMT as a theoretical framework for symptoms management for persons with neurological disorders/diseases. Conclusions. The SMT is still in experimental stages. Analysis of the SMT proved that the theory is parsimonious, logical in its adequacy and may be generalized to other studies. This review created a solid beginning to explore recommendations to promote standards for symptom management in future investigations of NND. Further research is needed involving measurement of symptoms of multidimensional symptom management with persons with NND. (JNNN 2017;6(2):55-65)

show abstract

The Use of Focus Groups to Characterize Symptoms in Persons With Multiple Sclerosis

Cited by 22 publications

References 26 publications

The Experience of Fatigue Across Long-Term Conditions: A Qualitative Meta-Synthesis

The Experience of Fatigue Across Long-Term Conditions: A Qualitative Meta-Synthesis

Understanding Drivers of Employment Changes in a Multiple Sclerosis Population

Analysis of University of California in San Francisco (UCSF) Symptom Management Theory and Theory Implication for Persons with Neurological Disorders/Diseases

Contact Info

Product

Resources

About