The use of online visual analogue scales in idiopathic pulmonary fibrosis

Moor, Catharina C.; Mostard, Rémy L M; Grutters, Jan C.; Bresser, Paul; Wijsenbeek, Marlies

doi:10.1183/13993003.01531-2021

Cited by 9 publications

(6 citation statements)

References 16 publications

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“…Some studies advocate for the use of visual analogue scales or numeric rating scales instead of more lengthy PROMs [41]. Especially if completed online, these simple tools could provide added value for research and daily clinical practice by reducing missing values and allowing frequent data collection [42][43][44][45][46].…”

Section: Patient-reported Measuresmentioning

confidence: 99%

Untitled

2024

TTEH

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Home-based care of individuals with Advanced Lung Disease (ALD), delivered with home-monitoring tools or broader Telemedicine (TM) interventions, has the potential to reduce the inequality of access to specialist centers, reduce the health care burden, improve patients' quality of life, and prevent adverse outcomes associated with acute exacerbations through early identification. Current literature reports a high variability in the ways TM is provided and its efficacy, therefore there is an urgent need to perform new studies to test the most effective and re-source-sparing TM organizational and practical model. The "ideal" TM approach for patients with ALD would involve a comprehensive and integrated system that addresses the specific needs of these patients. The aim of the present research proposal is to analyze the effect of a telemonitoring pilot project on direct medical costs, health resource utilization, and mortality. We will carry out a monocentric, assessor-blind, two-arm (intervention/control) randomized controlled trial, enrolling 20 patients diagnosed with ALD evaluated for lung transplantation. In the inter-vention group, home telemonitoring will be based on few simple vital parameters, assessed au-tomatically and continuously by an Artificial Intelligent System, able to detect a worrisome trend and alert the clinical team. Primary outcomes will be health care utilization, mortality, and medication use. Secondary outcomes will be health-related QoL, psychological morbidity, lung function, and cost-effectiveness.

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Section: Patient-reported Measuresmentioning

confidence: 99%

Untitled

2024

TTEH

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“…PROMs can be administered mainly through the use of digital visual analogue scales and physical function through the use of simple surrogate measures, such as sit-to-stand tests and collaborations with known technology developers ( e.g. the Stanford-Apple collaboration 6MWT at home) [ 89 , 90 ]. Additionally, there is qualitative evidence that home monitoring tends to clinically improve the psychological well-being of patients with PF [ 91 ], with patients reporting feeling “more in control, that they had more tools to manage their disease”.…”

Section: Digital Management and Organisational Aspectsmentioning

confidence: 99%

Holistic management of patients with progressive pulmonary fibrosis

Oliveira,

Fabbri,

Gille

et al. 2023

Breathe

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Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.Educational aimsTo identify the main needs of patients with PF and their caregivers.To describe the components of a comprehensive approach to a supportive care programme for patients with PF.To identify further areas of research to address technical issues related to the management of patients with PF.

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“…In this issue of the European Respiratory Journal, two studies provide welcome insights into the validity of using VAS and NRS scales to assess symptoms and health status in IPF. MOOR et al [27] investigated the psychometric properties of four online VASs that measured the 1-week recall of dyspnoea (VASD), fatigue (VASF), cough (VASC), general wellbeing (VASG). Each item was represented by a 10-cm VAS (when used on a computer or tablet) with descriptors in Dutch at both ends.…”

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confidence: 99%

“…If confirmed in future studies, this may be an important consideration for study design and data interpretation. The study by MOOR et al [27] extends the understanding of the psychometric properties of VAS in people with IPF, but the selection of the four items included in the instrument was not described. Although the items are key traits associated with IPF, it is unclear if they reflect the experiences of participants recruited to the study [28].…”

mentioning

confidence: 99%

“…Third, for successful adoption into routine clinical practice, people asked to complete the instruments should be educated on the rationale for and benefit of collecting these data, which may improve completion rates. They should be collected alongside other routine tests and be available prior to clinical assessment, ideally completed using a web-based platform, as performed by MOOR et al [27], in order to inform the consultation and management plan.…”

mentioning

confidence: 99%

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