The use of social media platforms to discuss and educate the public on allergic contact dermatitis

Abstract

Background Social media platforms are increasingly used by patients to research and discuss medical problems. Objective The aim of this study was to identify by whom, how frequently, and in what manner allergic contact dermatitis (ACD) is discussed on social media sites. Methods Search terms “allergic contact dermatitis” and “contact dermatitis” were queried across Twitter, Instagram, Reddit, Facebook, YouTube, and Google search metrics. The frequency, content, and creators of the content were assessed. Results ACD content was identified on all platforms, generated by by patients, physicians, professional organizations, and companies. When comparing the volume of posts, more content was on Instagram than Twitter, particularly among patients. Patient support groups were identified on Facebook but not on Reddit. A formal analysis of YouTube videos found that the medical information presented in these videos was often of poor quality. Conclusions Patch testing physicians should be aware that information on ACD exists across social media sites. While some content is generated by physicians, patients and industry groups also post and share material. Patch testing physicians should know that there is an opportunity to share ACD information, but they should also be aware that patients are posting and creating online support communities independent of physicians. Highlights Online support communities exist for patients with ACD on Facebook. Online information is of lower quality, with a mean QUEST quality score of 7.4/28 on reviewed YouTube videos. Of the five social media sites reviewed, patients are most active on Instagram, Reddit, and Facebook. Approximately 9000 Google searches per month are conducted using contact dermatitis‐related search terms. Differences in terminology exist between physicians and non‐physicians. While the most popular hashtag term was “contact dermatitis”, physicians disproportionately authored posts tagged with “allergic contact dermatitis.”

Impact on quality of life of an intervention providing additional information to patients with allergic contact dermatitis; a randomized clinical trial

“…Moreover, it should be taken into account that a recent study have reported positive effects on the QoL by interdisciplinary inpatient rehabilitation measures, including patient education, that is, tertiary individual prevention, in patients with occupational hand eczema 33 . Physicians should be aware of that information about CD exist on social media platforms and are utilized and shared both by patient, physician and industry groups 34 . However, knowledge of the skin barrier and changes in lifestyle due to a contact allergy may lead to better compliance but may not necessarily lead to an improvement in life quality.…”

“… 33 Physicians should be aware of that information about CD exist on social media platforms and are utilized and shared both by patient, physician and industry groups. 34 However, knowledge of the skin barrier and changes in lifestyle due to a contact allergy may lead to better compliance but may not necessarily lead to an improvement in life quality. Implementing behavioural changes in the daily life of patients with CD may be seen as an extra burden to the patient.…”