The usefulness and prognostic value of Memorial Symptom Assessment-Short Form and Condensed Memorial Symptom Assessment Scale in assessment of lung cancer patients

Bircan, Hacı Ahmet; Yalcin, Gonul Seven; Fidanci, Sumeyye; Karaibrahimoğlu, Adnan; Tuğlu, Hatice Çelik

doi:10.1007/s00520-019-05003-9

Cited by 10 publications

(4 citation statements)

References 44 publications

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“…The MSAS instrument was developed for oncology patients to gauge patient‐reported symptom profiles inclusive of each symptom's severity, frequency, and associated distress 22 . The validity, reliability, and responsiveness of the MSAS has been repeatedly demonstrated for evaluating symptom patterns experienced by cancer patients, including end‐of‐life symptomotology 23–28 . The original MSAS was notably developed for adult cohorts, requiring revisions for versatile and developmentally appropriate symptom assessments in pediatric patients with cancer 29,30 .…”

Section: Methodsmentioning

confidence: 99%

Homestead together: Pediatric palliative care telehealth support for rural children with cancer during home‐based end‐of‐life care

Weaver

Shostrom

Neumann

et al. 2021

Pediatric Blood & Cancer

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Background Children with terminal cancer and their families describe a preference for home‐based end‐of‐life care. Inadequate support outside of the hospital is a limiting factor in home location feasibility, particularly in rural regions lacking pediatric‐trained hospice providers. Methods The purpose of this longitudinal palliative telehealth support pilot study was to explore physical and emotional symptom burden and family impact assessments for children with terminal cancer receiving home based‐hospice care. Each child received standard of care home‐based hospice care from an adult‐trained rural hospice team with the inclusion of telehealth pediatric palliative care visits at a scheduled minimum of every 14 days. Results Eleven children (mean age 11.9 years) received pediatric palliative telehealth visits a minimum of every 14 days, with an average of 4.8 additional telehealth visits initiated by the family. Average time from enrollment to death was 21.6 days (range 4‐95). Children self‐reported higher physical symptom prevalence than parents or hospice nurses perceived the child was experiencing at time of hospice enrollment with underrecognition of the child's emotional burden. At the time of hospice enrollment, family impact was reported by family caregivers as 46.4/100 (SD 18.7), with noted trend of improved family function while receiving home hospice care with telehealth support. All children remained at home for end‐of‐life care. Conclusion Pediatric palliative care telehealth combined with adult‐trained rural hospice providers may be utilized to support pediatric oncology patients and their family caregivers as part of longitudinal home‐based hospice care.

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Section: Methodsmentioning

confidence: 99%

Homestead together: Pediatric palliative care telehealth support for rural children with cancer during home‐based end‐of‐life care

Weaver

Shostrom

Neumann

et al. 2021

Pediatric Blood & Cancer

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“…For each symptom, patients report its presence (yes/no), and, if present, how much the symptom bothers them on a scale from 0 (not at all) to 4 (very much). Studies have found the CMSAS to capture information on quality of life and survival equivalent to that assessed by the original 32-item Memorial Symptom Assessment Scale Short-Form scale [ 45 , 46 ].…”

Section: Methodsmentioning

confidence: 99%

Evaluating a couple communication skills training (CCST) intervention for advanced cancer: study protocol for a randomized controlled trial

Porter

Ramos

Baucom

et al. 2022

Trials

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Background For patients and their intimate partners, advanced cancer poses significant challenges that can negatively impact both individuals and their relationship. Prior studies have found evidence that couple-based communication skills interventions can to be beneficial for patients and partners. However, these studies have been limited by reliance on in-person treatment delivery and have not targeted couples at high risk for poor outcomes. This study tests the efficacy of a Couples Communication Skills Training (CCST) intervention delivered via videoconference for couples reporting high levels of holding back from discussing cancer-related concerns, a variable associated with poorer psychological and relationship functioning. Methods This RCT is designed to evaluate the efficacy of CCST in improving patient and partner relationship functioning (primary outcome). Secondary outcomes include patient and partner psychological functioning and patient symptoms and health care use. We also examine the role of objective and self-reported communication behaviors as mediators of treatment effects. Two hundred thirty patients with advanced lung, gastrointestinal, genitourinary, and breast cancer and their partners will be randomized to CCST or an education control intervention. Participants in both conditions complete self-reported outcome measures at baseline, mid-treatment, post-treatment, and 3 months post-treatment. Objective measures of communication are derived from video-recorded couple conversations collected at baseline and post-treatment. An implementation-related process evaluation (assessing implementation outcomes and potential barriers to/facilitators of implementation) will be conducted to inform future efforts to implement CCST in real-world settings. Discussion This trial can yield important new knowledge about effective ways to improve patient and partner adjustment to advanced cancer. Trial registration This study trial is registered at clinicaltrials.gov (Trial # NCT04590885); registration date: October 19, 2020.

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“…The contents and conceptualization of the thematic areas to be included in the game resulted from previous studies based on the theoretical subsidies of several authors (Calgary's Family Assessment and Intervention Model [15], Resilience Model [16], Theory of Transitions [17]), as well as various instruments for the assessment of symptoms in palliative care, scales of impact of symptoms on the quality of life of the person and the family, instruments on the burden of the caregiver and family in palliative care (ECCP-Palliative care capacity scale [18], EORTC QLQ-European Organization for Research and Treatment of Cancer Quality of Life Questionnaire [19], ESAS-Edmonton Symptom Assessment System [20], FACIT-F-Functional Assessment of Chronic Illness Therapy-Fatigue [21], GCQ-General Comfort Questionnaire [22], FS3I-Family systems stressors strengths inventory [23], MSAS-SF-Memorial Symptom Assessment Scale short form [24], POS-Palliative Care Outcome Scale [25]), and use of games in palliative care [26].…”

Section: First Phase: Exploratory Studymentioning

confidence: 99%

Developing a Card Game for Assessment and Intervention in the Person and the Family in Palliative Care: “Pallium Game”

Fernandes

Vale

Magalhães

et al. 2023

IJERPH

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Communication between the multidisciplinary team, the person, and the family in palliative and end-of-life situations implies, in most situations, a high negative emotional burden. Therefore, innovative strategies are needed to reduce it. The goal of this study is to describe the various stages of development and validation of a collaborative card game for people in palliative care and their families. Phase one is an exploratory study, Phase two is a Delphi study, and Phase three is a multiple case study. Participants for phases 2 and 3 were recruited using a convenience sampling method. The results demonstrate in an organized and structured way the different phases required to build a collaborative card game. The use of the game was found to be useful and effective. Four categories emerged from the content analysis of the open-ended responses: usability, evaluation tool, communication and therapeutic relationship, and meaning when using the game. A collaborative game in palliative care helps to create a space for individuals and families to express feelings and experiences, meeting the myriad of physical, psychosocial, and spiritual needs. The “Pallium game” is a useful and impactful approach to discussing sensitive topics in palliative care.

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The usefulness and prognostic value of Memorial Symptom Assessment-Short Form and Condensed Memorial Symptom Assessment Scale in assessment of lung cancer patients

Cited by 10 publications

References 44 publications

Homestead together: Pediatric palliative care telehealth support for rural children with cancer during home‐based end‐of‐life care

Homestead together: Pediatric palliative care telehealth support for rural children with cancer during home‐based end‐of‐life care

Evaluating a couple communication skills training (CCST) intervention for advanced cancer: study protocol for a randomized controlled trial

Developing a Card Game for Assessment and Intervention in the Person and the Family in Palliative Care: “Pallium Game”

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