The user experiences and clinical outcomes of an online personal health record to support self-management of bipolar disorder: A pretest-posttest pilot study

Heuvel, Silvio C.G.H. van den; Meije, Daniëlle; Regeer, Eline J.; Sinnema, Henny; Riemersma, R.F.; Kupka, Ralph

doi:10.1016/j.jad.2018.05.069

Cited by 18 publications

(48 citation statements)

References 44 publications

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“…There were also concerns about the impacts on providers' available time for care, lack of reimbursement, or professional liability issues (36, 65, 69). Physicians voiced their concerns about excess time and efforts to handle issues related to the ePHRs due to lack of integration with EHRs (80,81).…”

Section: Facilitating/impending Conditionsmentioning

confidence: 99%

“…Perceived usefulness featured as a key driving factor for the intention to use ePHRs (49,50,60,66,80,81). For example, non-users mostly expressed concerns about simply not seeing the value of using a portal to manage their health or lack of personalization in using this technology (66).…”

Section: Perceived Usefulnessmentioning

confidence: 99%

“…Patients voiced their concerns about caregiver's access to their information and requested appropriate access limitation (53, 54, 69). Clinicians' attitudes towards caregiver involvement in ePHR use were controversial in one study: while 28.3% favored it, 32.1% disagreed because it impaired patients' privacy (81).…”

Section: Perception Of External Controlmentioning

confidence: 99%

“…The degree to which an ePHR was perceived as being consistent with the existing values, past experiences, and needs of its potential adopters i.e., chronic patients and their caregivers and providers were mentioned as an important factor for adoption in some studies (36,40,44,65,91). When comparing with the traditional chronic care, users asked for much easier navigation through ePHRs, access to additional information (e.g., progress notes, outside test results, personalized medication information, and a structure to track the course of treatment) or a customized ePHR based on their speci c chronic illness (36,39,41,44,46,51,61,63,79,81).…”

Section: Compatibilitymentioning

confidence: 99%

“…Patients acknowledged the need to consolidate data produced by multiple providers and scattered in different locations through ePHRs (33). A lack of interoperability between ePHRs and EHRs in provider o ces was noted in three studies resulting in excess workload and frustration (46,51,92). In a survey of patients from 29 states across the US, with at least 38 different types of portals, 51% reported having two or more portal accounts creating frustration when it came to patients remembering their names, and managing different portals from different providers (57).…”

Section: Characteristics Of Healthcare Settings Providers and Chronmentioning

confidence: 99%

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Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review

Niazkhani

Toni

Cheshmekaboodi

et al. 2020

Preprint

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Background: Electronic personal health records (ePHRs) are defined as electronic applications through which individuals can access, manage, and share health information in a private, secure, and confidential environment. Existing evidence shows their benefits in improving outcomes, especially for chronic disease patients. However, their use has not been as widespread as expected partly due to barriers faced in their adoption and use. We aimed to identify the types of barriers to a patient, provider, and caregiver adoption/use of ePHRs and to analyze their extent in chronic disease care.Methods: A systematic search in Medline, PubMed, Science Direct, Cumulative Index to Nursing and Allied Health Literature (CINAHL), the Cochrane Central Register of Controlled Trials, and the Institute of Electrical and Electronics Engineers (IEEE) database was performed to find original studies assessing barriers to ePHR adoption/use in chronic care until the end of 2018. Two researchers independently screened and extracted data. We used the PHR adoption model and the Unified Theory of Acceptance and Use of Technology to analyze the results. The Mixed Methods Appraisal Tool (MMAT) version 2018 was used to assess the quality of evidence in the included studies.Results: Sixty publications met our inclusion criteria. Issues found hindering ePHR adoption/use in chronic disease care were associated with demographic factors (e.g., patient age and gender) along with key variables related to health status, computer literacy, preferences for direct communication, and patient’s strategy for coping with a chronic condition; as well as factors related to medical practice/environment (e.g., providers’ lack of interest or resistance to adopting ePHRs due to workload, lack of reimbursement, and lack of user training); technological (e.g., concerns over privacy and security, interoperability with electronic health record systems, and lack of customized features for chronic conditions); and chronic disease characteristics (e.g., multiplicities of co-morbid conditions, settings, and providers involved in chronic care).Conclusions: ePHRs can be meaningfully used in chronic disease care if they are implemented as a component of comprehensive care models specifically developed for this care. Our results provide insight into hurdles and barriers mitigating ePHR adoption/use in chronic disease care. A deeper understating of the interplay between these barriers will provide opportunities that can lead to an enhanced ePHR adoption/use.

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Section: Facilitating/impending Conditionsmentioning

confidence: 99%

Section: Perceived Usefulnessmentioning

confidence: 99%

Section: Perception Of External Controlmentioning

confidence: 99%

Section: Compatibilitymentioning

confidence: 99%

Section: Characteristics Of Healthcare Settings Providers and Chronmentioning

confidence: 99%

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Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review

Niazkhani

Toni

Cheshmekaboodi

et al. 2020

Preprint

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An internet‐delivered self‐management programme for bipolar disorder in mental health services in Ireland: Results and learnings from a feasibility trial

Enrique

Duffy

Lawler

et al. 2020

Clin Psychology and Psychoth

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Bipolar disorder (BD) is a chronic condition that requires continued care. Psychological interventions are recommended by clinical guidelines but there are treatment barriers that prevent patients to access these services. Internet-delivered selfmanagement interventions are promising alternatives to improve treatment accessibility in patients with BD. Several studies indicate that these interventions are acceptable and beneficial for patients with BD, but no studies have been conducted in routine care settings. This trial aimed to examine the feasibility, acceptability, and preliminary efficacy of implementing an internet-delivered, clinician-supported intervention for BD as an adjunct to treatment as usual at two secondary-care services in Ireland. This study used an uncontrolled design with mixed-methods evaluation. Feasibility and acceptability were assessed in terms of recruitment, use of the intervention, and satisfaction from both clinicians and patients' perspectives. Personal recovery, quality of life, and severity of symptoms were measured at baseline and post-intervention. Fifteen patients signed consent and used the programme for 10 weeks. Usage of the intervention was adequate with high frequency of tool usage. There was a significant improvement in patients' sense of personal recovery (z = 2.38, p = .017). The intervention was found acceptable and easy-to-use; however, implementation barriers will need to be overcome for scaling the intervention. This is the first study testing the feasibility of a digital intervention for patients with BD in public mental health services in Ireland. More research is needed in order to increase the understanding of how to promote the integration and the uptake of digital interventions for individuals with BD.

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The Minimum Feature Set for Designing Mobile Apps to Support Bipolar Disorder-Affected Patients: Proposal of Essential Functions and Requirements

Heydarian

Shakiba

Kalhori

2023

J Healthc Inform Res

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The user experiences and clinical outcomes of an online personal health record to support self-management of bipolar disorder: A pretest-posttest pilot study

Cited by 18 publications

References 44 publications

Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review

Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review

An internet‐delivered self‐management programme for bipolar disorder in mental health services in Ireland: Results and learnings from a feasibility trial

The Minimum Feature Set for Designing Mobile Apps to Support Bipolar Disorder-Affected Patients: Proposal of Essential Functions and Requirements

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