2022
DOI: 10.3389/fnbeh.2022.846919
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The Value of Patient Registries to Advance Basic and Translational Research in the Area of Traumatic Brain Injury

Abstract: The number of individuals affected by traumatic brain injury (TBI) is growing globally. TBIs may cause a range of physical, cognitive, and psychiatric deficits that can negatively impact employment, academic attainment, community independence, and interpersonal relationships. Although there has been a significant decrease in the number of injury related deaths over the past several decades, there has been no corresponding reduction in injury related disability over the same time period. We propose that patient… Show more

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Cited by 15 publications
(3 citation statements)
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“…Participants were recruited from the Vanderbilt Brain Injury Patient Registry and through community advertisement. 38 All participants were at least 18 years old at the time of injury to minimize effects on development and younger than 55 years at the time of the study to conservatively limit the effects of age-related cognitive decline. All participants with TBI were in the chronic phase of injury (at least 6 months post).…”
Section: Methodsmentioning
confidence: 99%
See 1 more Smart Citation
“…Participants were recruited from the Vanderbilt Brain Injury Patient Registry and through community advertisement. 38 All participants were at least 18 years old at the time of injury to minimize effects on development and younger than 55 years at the time of the study to conservatively limit the effects of age-related cognitive decline. All participants with TBI were in the chronic phase of injury (at least 6 months post).…”
Section: Methodsmentioning
confidence: 99%
“…Participants: The participant pool included 50 adults in the chronic phase of moderate-severe TBI and 50 demographically matched noninjured comparison (NC) peers. Participants were recruited from the Vanderbilt Brain Injury Patient Registry and through community advertisement 38. All participants were at least 18 years old at the time of injury to minimize effects on development and younger than 55 years at the time of the study to conservatively limit the effects of age-related cognitive decline.…”
Section: Methodsmentioning
confidence: 99%
“…Participants were recruited through the Vanderbilt Brain Injury Patient Registry ( 55 ) and were a subset of individuals with TBI surveyed by Morrow and colleagues ( 21 ; see below). The study by Morrow et al included 53 adults (28 females) with moderate-severe TBI, but we excluded seven participants from that sample who reported that they never had a Facebook account.…”
Section: Methods For Acceptability Studymentioning
confidence: 99%