The Value of Telephone Support Groups Among Ethnically Diverse Caregivers of Persons With Dementia

Bank, Adam L.; Argüelles, Soledad; Rubert, Mark P.; Eisdorfer, Carl; Czaja, Sara J.

doi:10.1093/geront/46.1.134

Cited by 85 publications

(70 citation statements)

References 21 publications

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“…any group session were assigned to group 0. Controls were also assigned to dummy groups based on date of study entry (groups [10][11][12][13][14][15][16][17][18][19]. Group (0-19) was then entered as a random effect to control for potential variability between groups that may affect outcomes.…”

Section: Methodsmentioning

confidence: 99%

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Evaluation of a Telephone-Based Support Group Intervention for Female Caregivers of Community-Dwelling Individuals With Dementia

Winter

Gitlin

2007

Am J Alzheimers Dis Other Demen

122

104

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Family caregivers, the “second victims” or hidden patients in dementia care, are at risk for social isolation, stress, depression, and mortality. Telephone-based support (telesupport groups) represents a practical, low-burden, low-cost source of emotional support. The present study evaluated the feasibility and effectiveness of professionally led telephone-based support groups for female family caregivers of community-dwelling dementia patients. Recruited through various community sources, 103 female caregivers were randomized to the telesupport group treatment or a control condition. Effects on caregiver burden, depression, and personal gains were evaluated at 6 months, the main end point. Older care-givers (≥65) in telesupport reported lower depression than control group caregivers did.

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Section: Methodsmentioning

confidence: 99%

“…18 That work also established the value, feasibility, and usability of telephone supports in both English-and Spanish-speaking caregivers. 19 Nevertheless, the effectiveness of telesupport has not been evaluated using randomized controlled designs.…”

Section: This Is the Author's Final Version Prior To Publication In Tmentioning

confidence: 99%

Evaluation of a Telephone-Based Support Group Intervention for Female Caregivers of Community-Dwelling Individuals With Dementia

Winter

Gitlin

2007

Am J Alzheimers Dis Other Demen

122

104

View full text Add to dashboard Cite

show abstract

“…The value of non-pharmacological treatments [22][23][24] and social interventions [25][26][27][28] are described along with an increased general understanding amongst healthcare professions as to the multidisciplinary needs of patients and their caregivers. It has been shown that early disease stages are associated with higher patient quality of life [29] .…”

Section: Introductionmentioning

confidence: 99%

The ICTUS Study: A Prospective Longitudinal Observational Study of 1,380 AD Patients in Europe

et al. 2007

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The long-term objective of the ICTUS study is to identify milestones in Alzheimer’s disease (AD) progression and to develop a model to predict disease course in individual AD patients in Europe. The secondary objectives are to describe the patterns of prescribing, and the socioeconomic impact of AD in Europe. Between 2003 and 2005 1,380 patients with probable AD were recruited in specialised (secondary care) clinics in 12 European countries. Their mean age was 76 years and they had a mean of 8.0 ± (SD) 4.6 years of education. Thirty-five percent were male. The mean MMSE score was 20.4 ± (SD) 4.0. Forty-three percent had very mild dementia (CDR 0.5) and 44% had mild dementia (CDR 1). All patients completed baseline evaluation and biannual follow-up is ongoing. The goals of the current study are to describe the specific methods for recruitment in this crosscultural setting and the characteristics of the inception ICTUS cohort, including clinical features, co-morbidity, neuropsychological performance, neuropsychiatric symptoms, functional impairment and social burden.

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“…This type of brief support has been moderately effective for caregivers in rural areas where access to care centers is lacking (Bank, Argüelles, Rubert, Eisdorfer, & Czaja, 2006). A particular role for occupational therapy could be providing problemsolving advice and monitoring progress.…”

Section: Discussion and Implications For Practicementioning

confidence: 99%

Effect of Educational and Supportive Strategies on the Ability of Caregivers of People With Dementia to Maintain Participation in That Role

Thinnes

Padilla

2011

The American Journal of Occupational Therapy

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A systematic review of evidence of the effectiveness of educational and supportive strategies for enabling caregivers of people with Alzheimer's disease (AD) or related dementias to maintain participation in that role was conducted as part of the American Occupational Therapy Association's Evidence-Based Literature Review Project. Forty-three articles met inclusion criteria. Results suggest that interventions that jointly engage people with AD and their caregivers in education and training in the home setting are more successful than strategies that focus solely on people with AD. Greater carryover is noted when education and training are implemented at the time that the caregiver identifies concerns. Interventions should provide caregivers with problem solving, technical skills, support, simple home modification strategies, and referral to community resources. Interventions mediated by technology have a positive effect on the caregiver and are especially important for those who live in rural areas. Thinnes, A., & Padilla, R. (2011). Effect of educational and supportive strategies on the ability of caregivers of people with dementia to maintain participation in that role.

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The Value of Telephone Support Groups Among Ethnically Diverse Caregivers of Persons With Dementia

Abstract: The findings demonstrate that telecommunications technology can overcome the often formidable logistical problems faced by both English- and Spanish-speaking caregivers, and it can provide benefits similar to those obtained in face-to-face support groups.

Cited by 85 publications

References 21 publications

Evaluation of a Telephone-Based Support Group Intervention for Female Caregivers of Community-Dwelling Individuals With Dementia

Evaluation of a Telephone-Based Support Group Intervention for Female Caregivers of Community-Dwelling Individuals With Dementia

The ICTUS Study: A Prospective Longitudinal Observational Study of 1,380 AD Patients in Europe

Effect of Educational and Supportive Strategies on the Ability of Caregivers of People With Dementia to Maintain Participation in That Role

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