The willingness to participate in health research studies of individuals with Turkish migration backgrounds: barriers and resources

Dingoyan, Demet; Schulz, Holger; Mösko, Mike

doi:10.1016/s0924-9338(12)75701-2

Cited by 26 publications

(46 citation statements)

References 27 publications

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“…There are no other studies that we are aware of with refugees’ perspectives on research engagement with which to compare our results. Of note, our research findings about refugees are in line with previous findings about the perspectives of ethnic minorities more generally [14,15], however, this study also elicited unique variables not previously identified in the literature.…”

Section: Discussionsupporting

confidence: 91%

“…A 2012 German study [14] with Turkish migrants, a 2005 Canadian study [15] with migrant women, and a 2003 American study [3] of African American, Latino and Chinese Americans all used qualitative methods to elicit participant perspectives on research. These studies, by adding participants’ voices, have resulted in greater understanding of ethnic minority participants’ willingness to engage in health research and suggestions have been made for culturally appropriate research designs for minority participant involvement [2,4,5,8,10,14,16]. With respect to the opinions of refugees in particular, one longitudinal cohort study of refugee youth in Australia [17] asked refugee participants about their experiences having engaged with the research study for many years.…”

Section: Introductionmentioning

confidence: 99%

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Recruitment of Refugees for Health Research: A Qualitative Study to Add Refugees’ Perspectives

Gabriel

Kaczorowski

Berry

2017

IJERPH

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Research is needed to understand refugees’ health challenges and barriers to accessing health services during settlement. However, there are practical and ethical challenges for engaging refugees as participants. Despite this, there have been no studies to date specifically investigating refugee perspectives on factors affecting engagement in health research. Language-concordant focus groups in British Columbia, Canada, with four government-assisted refugee language groups (Farsi/Dari, Somali, Karen, Arabic) inquired about willingness to participate in health research. Twenty-three variables associated with the willingness of refugees to participate in health research were elicited. Variables related to research design included recruitment strategies, characteristics of the research team members and the nature of the research. Variables related to individual participants included demographic features such as gender and education, attitudes towards research and previous experience with research. This research can be used to increase opportunities for refugees’ engagement in research and includes recommendations for subgroups of refugees that may have more difficulties engaging in research.

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Recruitment of Refugees for Health Research: A Qualitative Study to Add Refugees’ Perspectives

Gabriel

Kaczorowski

Berry

2017

IJERPH

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“…Thus, it is possible that individuals who were already mentally burdened were more likely to participate in the survey, presumably because they had less fear of discussing the topic of mental strain or perhaps because they were hoping for a supportive conversation. In this context and as a possible explanation for the very low response rate of the study, a qualitative focus group investigation prior to the survey also indicated that the participants had strong prejudices and mistrust in research studies [62]. A further aspect might be the fear of lacking data protection and stigmatization within the Turkish community in the case of participation.…”

Section: Discussionmentioning

confidence: 99%

Lifetime prevalence of mental disorders among first and second generation individuals with Turkish migration backgrounds in Germany

et al. 2017

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BackgroundThis paper focuses on the lifetime prevalence of mental disorders in individuals with Turkish migration backgrounds in Germany, as there is a lack of reliable epidemiological data on this subject.MethodsIn total, 662 adults with Turkish migration backgrounds were interviewed in Hamburg and Berlin by trained, bilingual interviewers using the computerized Composite International Diagnostic Interview (CIDI DIA-X Version 2.8) to assess diagnoses according to the DSM-IVTR.ResultsThe analyses showed a weighted lifetime prevalence of 78.8% for any mental disorder, 21.6% for more than one and 7.3% for five or more disorders. Any mood disorder (41.9%), any anxiety disorder (35.7%) and any somatoform disorder/syndrome (33.7%) had the highest prevalences. Despite the sociodemographic differences between the first and second generations, there were no significant differences in the lifetime prevalence between generations, with the exception of any bipolar disorder. Female gender, older age and no current partnership were significantly associated with the occurrence of any mood disorder.ConclusionsOverall, the results indicate a high lifetime prevalence in individuals with Turkish migration backgrounds in Germany. These initial data are highly relevant to the German clinical and psychosocial healthcare system; however, the methodological limitations and potential biases should be considered when interpreting the results.

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“…To identify barriers to participation in the target group and to improve the survey participation rate, several focus groups with individuals with Turkish migration backgrounds were conducted [28]. After conducting a comprehensive research of available survey material, selected interview instruments (i.e., the computerized Composite International Diagnostic Interview, Diagnostic Expert System Interview, shortened: CIDI DIA-X Version 2.8 and questionnaires were subsequently translated into Turkish [29].…”

Section: Methodsmentioning

confidence: 99%

Prevalence of Mental Disorders and Health Service Utilization among Individuals with Turkish Migration Backgrounds in Germany: A Study Protocol for an Epidemiological Investigation

Mösko

Dingoyan

Penka³

et al. 2016

OJPsych

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Background: There is a lack of reliable epidemiological data on prevalence and comorbidity rates of mental disorders in the migrant population in Germany. Despite existing national and international data on the extent of psychosocial burdens in migrant populations the prevalence among the study population remains unclear. The aim of this study was to collect prevalence data for the largest migrant population in Germany-individuals with Turkish migration backgrounds-using a culturally and linguistically sensitive approach. Methods: The study employs a cross-sectional design. The multi-centre study (Hamburg, Berlin) is based on a sample of individuals with Turkish migration backgrounds living in the two cities stratified by age, gender, and education. The study programme consists of three phases: 1) a qualitative focus group to collect information on how to increase the participation rate of the target population as a minority group in Germany; 2) a translation phase to create culture and linguistic sensitive versions of the assessment tools (e.g., the Composite International Diagnostic Interview (CIDI) for Turkish speaking individuals; and 3) a baseline community study to assess the lifetime, 12-month and four-week prevalence and comor-

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The willingness to participate in health research studies of individuals with Turkish migration backgrounds: barriers and resources

Abstract: The willingness to participate in health research studies can be increased through particular efforts, which should be tailored to the recruitment of the underrepresented target population.

Cited by 26 publications

References 27 publications

Recruitment of Refugees for Health Research: A Qualitative Study to Add Refugees’ Perspectives

Recruitment of Refugees for Health Research: A Qualitative Study to Add Refugees’ Perspectives

Lifetime prevalence of mental disorders among first and second generation individuals with Turkish migration backgrounds in Germany

Prevalence of Mental Disorders and Health Service Utilization among Individuals with Turkish Migration Backgrounds in Germany: A Study Protocol for an Epidemiological Investigation

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