The Youth Health Care measure-satisfaction, utilization, and needs (YHC-SUN)-development of a self-report version of the Child Health Care (CHC-SUN) proxy-measure

Abstract

BackgroundThe transition of health care of youth (age 15–25) with chronic conditions requires the assessment of adolescents’ access, use and needs as well as satisfaction with the health services they use. The aim of this study was to test the adolescent adaptation of the parent version “Child Health Care Questionnaire - Satisfaction, Utilization and Needs” (CHC-SUN) concerning its psychometric performance and appropriateness for adolescents and young adults.MethodsThe Youth Health Care Measure (YHC-SUN) was designed to allow self-report of youth and it was pilot-tested in a small sample using cognitive debriefing. A cross-sectional survey in a sample of youth with chronic conditions in the transition period was carried out.ResultsOne hundred eighty-two ambulatory care patients with three conditions participated in the survey. The subscales of the section on satisfaction with care showed excellent internal consistencies, uni-dimensionality and fit to the model of the parent version. There was no impact of gender and education on satisfaction with care. Associations with age, diagnosis, experiences with care and health literacy affecting the satisfaction with care indicate discriminatory and content validity.ConclusionsPotential applications of the new instrument are evaluations of health care services for adolescents and young adults using self-reports and evaluations of transition programs and interventions such as patient education.

Evaluation of the use of health care services for non-communicable disease and prevention by children and adolescents in south Italy

“…These results point to the need for other sudies to investigate more thoroughly the non-medical mechanism of the health services use in order to provide important information to policy makers. However, the value of the utilization of the GP or FP in our survey is in accordance with the values found in a study conducted in Germany (68.3%) among younger adolescents [ 28 ] and in a survey conducted in Canada among adolescent and young adults. The latter found 67.1% of adolescents between 12 to 14 year olds and 69.8% between 15 to 19 year olds had used their family pediatrician in the last 12 months [ 29 ].…”

School-related experience and performance with inflammatory bowel disease: results from a cross-sectional survey in 675 children and their parents

“…The parent-reported instrument we used has since been modified for self-report in German-speaking youth, based on a mixed sample of 182 chronically ill adolescents including 28 patients with gastrointestinal (GI) disease. 38 In this study, 36% of patients in the GI group reported unmet needs relating to school or work, which was more than for any of the other disease groups (diabetes, multiple sclerosis, arthritis, skin disease, pulmonary conditions). With respect to the CHC-SUN, as in our survey, the school services subscore was lowest as compared with other domains in all patient groups, but in particular so for GI diseases.…”

Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)

“…Satisfaction with health care was measured on a general level by the Customer Satisfaction Questionnaire (CSQ-4) [ 22 ] and on a domain-specific level with a modified short-form of the Youth Health Care – Satisfaction, Utilization and Needs (YHC-SUN-SF) measure [ 23 ].…”

“…YHC-SUN-SF comprises two modules: a module covering “provision of health care services” and a module covering “satisfaction with health care”. Later, a self-reported version for adolescents “The Youth Health care measure - Satisfaction, utilization, and needs (YHC-SUN)” was developed [ 23 ] as well as short-forms of both versions (CHC−/ YHC-SUN-SF).…”