‘There is nothing beautiful or life-affirming in it’: experiences of harm in a narrative course combining rehabilitative and palliative care approaches for people who have or have had cancer

Gärtner, Henriette Søby; Blix, Bodil H.; Raunkiær, Mette; Timm, Helle

doi:10.1080/13576275.2024.2360521

Mortality

2024

DOI: 10.1080/13576275.2024.2360521

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‘There is nothing beautiful or life-affirming in it’: experiences of harm in a narrative course combining rehabilitative and palliative care approaches for people who have or have had cancer

Henriette Søby Gärtner,

Bodil H. Blix,

Mette Raunkiær

et al.

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2024

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“The Most Fantastic Thing is Coming Here as an Individual and Going to Bed as Part of a Group”: Participants’ Experiences From a Residential Course, for People With Advanced Cancer

Gärtner,

Blix,

Raunkiær

et al. 2024

Omega (Westport)

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People who suffer from advanced cancer may experience a loss of ability to participate in everyday life and meaningful activities, challenging their sense of identity and social relations. Social support in patient-to-patient interactions and the sharing of experiences with people in similar situations may help alleviate distress. This article is based on an ethnographic field study carried out in relation to three residential narrative courses, which included 36 persons with advanced cancer. In this study, we aimed to explore whether the courses were perceived as significant by the participants and, if so, in what ways. The field work included 185 hr of observations, six focus group interviews and nine individual interviews. The data were analyzed using an abductive thematic approach. Our findings indicate that the residential courses were generally experienced as meaningful and that in particular the setting, the community, and gaining hope were experienced as significant.

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“The Most Fantastic Thing is Coming Here as an Individual and Going to Bed as Part of a Group”: Participants’ Experiences From a Residential Course, for People With Advanced Cancer

Gärtner,

Blix,

Raunkiær

et al. 2024

Omega (Westport)

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‘There is nothing beautiful or life-affirming in it’: experiences of harm in a narrative course combining rehabilitative and palliative care approaches for people who have or have had cancer

Cited by 1 publication

References 39 publications

“The Most Fantastic Thing is Coming Here as an Individual and Going to Bed as Part of a Group”: Participants’ Experiences From a Residential Course, for People With Advanced Cancer

“The Most Fantastic Thing is Coming Here as an Individual and Going to Bed as Part of a Group”: Participants’ Experiences From a Residential Course, for People With Advanced Cancer

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